Hi i would just like some advice. My son who was diagnosed in 2016 with Type 1 diabetes. Started on Lantus and nova-rapid. After about 3 months he started to feel really fatigued and had pains in his limbs and stomach. i went online to search these symptoms and found that others had these symptoms and said it was caused by the Lantus slow release. I stopped giving him the Lantus and within a day he started to feel better and his humour and personality came back. After speaking to diabetic nurses i was told it could not be the Lantus and i should not stop him taking it. His levels did start to creep up especially at night time. After further research online and speaking to the Independant Diabetes Trust https://www.iddt.org/ who one lady had the same problem when her daughter was taken off Hypurin Porcine Isophane and or Neutral and put onto Human/analog type. she became ill after a few months and quality of life for a teen was nil, consequently went back on Porcine and all illness and symptoms went away within days.
With these findings i spoke to my sons consultant and asked if my son could trial the Hypurin Procine Insulin, he was horrified and said we don't use this anymore and if i continue down this rout he could not continue to be my sons consultant. As my sons was not taking a slow release insulin and his levels where creeping up at night he persuaded us to Try Levemir. But after a few weeks he became ill again. Next meeting with consultant explained been unwell so consultant suggest he take Levemir in morning and no other insulin during the day except to take with his evening meal, hes been off school more than ever and started having hypos. I want my son to trial the Procine Insulin but my consultant wont prescribe it. Does anyone on here from UK use it? and what area do you live in? and does anyone else have similar problems and any advice.
Feeling desperate as sons quality of life is diminishing and i can see his spirit is fading.
Julie mother of 14 year old boy with type 1 diabetes
With these findings i spoke to my sons consultant and asked if my son could trial the Hypurin Procine Insulin, he was horrified and said we don't use this anymore and if i continue down this rout he could not continue to be my sons consultant. As my sons was not taking a slow release insulin and his levels where creeping up at night he persuaded us to Try Levemir. But after a few weeks he became ill again. Next meeting with consultant explained been unwell so consultant suggest he take Levemir in morning and no other insulin during the day except to take with his evening meal, hes been off school more than ever and started having hypos. I want my son to trial the Procine Insulin but my consultant wont prescribe it. Does anyone on here from UK use it? and what area do you live in? and does anyone else have similar problems and any advice.
Feeling desperate as sons quality of life is diminishing and i can see his spirit is fading.
Julie mother of 14 year old boy with type 1 diabetes