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- 61
Hey everyone
Im rarely one to stand up and have a say but today i think i need to...let me know if you agree...
Well im a mum of a 19yr old with autism and both of us have been newly brought into the t1 world with her diagnosis 3mths ago. My daughter is non verbal with an intellectual disabilty.
I.was told it would be beneficial to use the novomix 30/70regime twice daily...given minor carb info(the rest i sought for myself in other literature )and we head home heads down bum up to work at this new regime.
Well i did...i worked **** hard i cut carbs reduced carbs altered carbs for 3 months checked sugars rechecked sugars stayed up for 3 whole months to ensure sugars werent dropping in the night which they did sometimes quite drastically and i caught many a hypo occuring doing this each night.
Spoke to my diabetes educator each day she reassured me i was a trooper doin one hell of a job...Btw im not chasing accolades from anyone but just want to do whats right for my daughter...as would any loving parent right?
So on Sunday i stare at my daughter who diligently adheres to my every instruction eats when required...does everything possible to help me in the process...and i think ..what am i doing?
I am bursting at the seams to do everything possible for her but no ones happy ....i have to change this i thought. it doesnt feel right to me...a phone call to the diabetic educator is in order.
I ring ...i explain my concerns ...guess what she replies ? I couldnt have stuck.to this regime for 4 weeks and you stuck it out for 3months ...i was wondering when you were going to break...
i was ready to cry tbh...pardon me this isnt a test i thought to myself its my daughters life. Why did she continue to.advise me coax me along knowing full well it was awfully hard to keep up?
Im.certainly no diabetic guru but it hurt being told this...i felt like i had wasted 3 months of excessive modifications that were literally killing me mentally and physically and restricting my daughters lifestyle and happiness.
I read read and read more i dont like to be mis informed..i dont know how others that are not capable of finding out things cope...its scary to think about.
Trust is imperative...in your diabetic team...i dont think ive got it anymore.
Another learning curve i guess...a big learning curve ...
thanks for giving me an opportunity to have my say...
Im rarely one to stand up and have a say but today i think i need to...let me know if you agree...
Well im a mum of a 19yr old with autism and both of us have been newly brought into the t1 world with her diagnosis 3mths ago. My daughter is non verbal with an intellectual disabilty.
I.was told it would be beneficial to use the novomix 30/70regime twice daily...given minor carb info(the rest i sought for myself in other literature )and we head home heads down bum up to work at this new regime.
Well i did...i worked **** hard i cut carbs reduced carbs altered carbs for 3 months checked sugars rechecked sugars stayed up for 3 whole months to ensure sugars werent dropping in the night which they did sometimes quite drastically and i caught many a hypo occuring doing this each night.
Spoke to my diabetes educator each day she reassured me i was a trooper doin one hell of a job...Btw im not chasing accolades from anyone but just want to do whats right for my daughter...as would any loving parent right?
So on Sunday i stare at my daughter who diligently adheres to my every instruction eats when required...does everything possible to help me in the process...and i think ..what am i doing?
I am bursting at the seams to do everything possible for her but no ones happy ....i have to change this i thought. it doesnt feel right to me...a phone call to the diabetic educator is in order.
I ring ...i explain my concerns ...guess what she replies ? I couldnt have stuck.to this regime for 4 weeks and you stuck it out for 3months ...i was wondering when you were going to break...
i was ready to cry tbh...pardon me this isnt a test i thought to myself its my daughters life. Why did she continue to.advise me coax me along knowing full well it was awfully hard to keep up?
Im.certainly no diabetic guru but it hurt being told this...i felt like i had wasted 3 months of excessive modifications that were literally killing me mentally and physically and restricting my daughters lifestyle and happiness.
I read read and read more i dont like to be mis informed..i dont know how others that are not capable of finding out things cope...its scary to think about.
Trust is imperative...in your diabetic team...i dont think ive got it anymore.
Another learning curve i guess...a big learning curve ...
thanks for giving me an opportunity to have my say...