Freestyle Libre

Anyone else currently getting this on the NHS?

  • yes

    Votes: 3 50.0%
  • been told no

    Votes: 3 50.0%

  • Total voters
    6

Omnipod

Well-Known Member
Messages
531
Type of diabetes
Type 1
Treatment type
Insulin
To my surprise I went to collect my prescription and in it was Freestyle Libre sensors - 2 sensors per month on repeat. I waited 2.5 years for this.
 
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kev-w

Well-Known Member
Messages
1,901
Type of diabetes
Type 1
Treatment type
Insulin
Dear Kevin
Further to our phone conversations, please find below a statement from the CCG:
The CCG has considered the recommendation issued by the Regional Medicines Optimisation Committee on the 25 October 2017 to make the following commissioning decision on the use of FreeStyle Libre®.
FreeStyle Libre® will be commissioned for patients with Type 1 diabetes mellitus (T1DM) that meet one or more of locally agreed criteria. The patient must:
  • Be aged four and above;
  • Be under specialist care;
  • Use multiple daily injections of insulin or insulin pump therapy;
  • Be considered, by a specialist, to benefit because they currently finger prick test 8 or more times per day, and the introduction of FreeStyle Libre® will significantly reduce testing frequencies.
The CCG have made the decision based on the evidence for the device being cost neutral and it will be monitoring the use of the device and associated costs in collaboration with providers, patients and their families over the next 6-12 months.

FreeStyle Libre® will be provided initially on a 6 month trial basis. The decision to continue will be made by the diabetes specialist team, only where agreed criteria are met. The criteria includes a reduction in usage of blood glucose test strips, a reduction in hypoglycaemia frequency and episodes of severe complications, as well as hospital admissions, an improvement in the control of diabetes and improved quality of life.

The decision to provide FreeStyle Libre® sensors will remain the responsibility of the diabetes specialist team in secondary care.

All patients (or carers) must be willing to undertake training in the use of FreeStyle Libre®. They are required to commit to regular scans that can demonstrate evidence of FreeStyle Libre® use in self-management, as well as on-going regular follow-up and monitoring.

The CCG is liaising with the hospital and primary care to implement the new arrangement.

The full commissioning statement can be found on the CCGs website via this link:

http://www.valeofyorkccg.nhs.uk/data/uploads/publications/commissioning-statements/ys-position-statement-freestyle-libre-fnl-4-25-01-2018.pdf

I hope this information is helpful and we apologise again for the delay.

Which sounded quite good, but they withdrew the link which had different criteria to what's shown in the body of text quoted (blood testing >8 x had been removed) and they're now having another meeting next week.

Rhymes with bankers.....
 

Omnipod

Well-Known Member
Messages
531
Type of diabetes
Type 1
Treatment type
Insulin
definitely a post code lottery.... and a situation of how efficient and caring the Regional Medicines Optimisation Committee are in the area you reside. Perhaps some committee's have type 1 members or family members. The entire way they do it is not very fair as we all pay into the system fairly.
 
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kev-w

Well-Known Member
Messages
1,901
Type of diabetes
Type 1
Treatment type
Insulin
The 'clinical need post code lottery' and not following RMOC guidelines is the basis of any complaints to anyone's local CCG, "if it's a national health service then we should get it if they do" kind of complaint, which is the line you can pursue with your local MP too, the York MP has written to the CCG to be kept updated, and I believe they will allow it with restricted uptake sooner or later.

If every T1 made a formal written complaint to their local non prescribing CCG (which has to follow NHS complaints procedures) it would up the ante somewhat, I saw just my single complaint mentioned in the minutes of our local CCG AGM and it wont be dealt with until after the commissioning decision...
 
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becca59

Well-Known Member
Messages
2,856
Type of diabetes
Type 1
Treatment type
Insulin
To my surprise I went to collect my prescription and in it was Freestyle Libre sensors - 2 sensors per month on repeat. I waited 2.5 years for this.

And you are where?
 

becca59

Well-Known Member
Messages
2,856
Type of diabetes
Type 1
Treatment type
Insulin
west sussex

Am in Leeds self funding, it is a red area. Meaning if you are lucky enough to be well controlled by working b***** hard at it you are stuffed.

Doesn’t seem quite right, this postcard lottery. Have always felt all children should be at top of queue, but the rest of us when working pay our national insurance the same as the next person.