Leg and foot pain

[fairy108_]

Kelly’s, I have hips that feel like yours ,I also have pn pain and had the tests like you did could feel everything but still get pn pain it’s debilitating at best ..Hope you get some answers .

 

[NicoleC1971]

I was tempted to go for a jog this morning and start building up muscles but the pain is to severe do you think building up muscles would help? Also do you think the 2 stone weight gain so suddenly may be the cause? My legs are just not used to the weight? Xx

Hi and sorry you are suffering from being getting back into control again. I hope you keep up the good work as your body enjoys stability not chaos! I have a PT client who had type 2 and had these tpe of pains following a recent illness where his diabetes went astray. I found a useful thread on this site re neuropathy and a nutritional solution called The Anti oxidant Miracle by Lester Packer (its on Amazon).
I am guessing you may not get a definitive diagnosis but believe you can't do yourself harm by trying to eat a bit more Vitamin C, E and B12 that are mentioned in this book. Magnesium helps all these too and helps the muscles relax too. You don't need to go to Holland and Barrett either as it is best to eat these in real food. Other thought are you on any other new meds that may have side effects?? Statins for example..

 

[Eliseanne]

Hi everyone - it is four in the morning here and I am pacing up and down waiting fir the codeine tablet to work! I have only been suffering for just over a week - this just came on suddenly. Horrendous leg pains plus hip pain too in the middle of the night. I am stiff and sore in the morning but that eases when I get going. Dr says my glucose levels have just come down too fast and I have insulin neuritis. I have codeine for the pain plus Lyrica. I am not keen on the second pill - makes me feel sleepy and nauseous all day. Anyone else feeling ill on this medication?

 

[Eliseanne]

Thanks for the tips. I agree about the hot baths - they do help. Why is it that the pain comes on when I am horizontal and not during the day when I am running around at work? What do you think of the Lirica tablets? Do they work at all? Even though I am on a small dose of 50mg they really knock me out .

 

[leahkian]

Hello Kelly can i ask what is your BP like because if it is low your legs will feel like lead so you have to drink lots of water, are you taking gabapentin or pre gabilin because these are sometimes given to stop the pain but a side effect is you can put weight on as i found out. If you went of the rails it could be the insulin and the nerve endings, i had 3 ops for carpel tunnel and a op on my elbow but nothing changed. It was over 10 years later when they said it was diabetes that caused the pain and the numbness and most of my nerve endings were damaged and that they would try and find away to ease the pain but if you think you are not getting answers of your doctor then call your diabetic team. One last thing it may be the insulin that you are taking may be causing the pain.

 

[ickihun]

Thanks for the tips. I agree about the hot baths - they do help. Why is it that the pain comes on when I am horizontal and not during the day when I am running around at work? What do you think of the Lirica tablets? Do they work at all? Even though I am on a small dose of 50mg they really knock me out .

I'm using lyrics (pregabalin) tablets. 75x2 times a day for nerve pain. I take my evening one with 3 other painkillers to start my 5hrs of bedtime sleep.

 

[ian4468]

Hi, regarding leg/foot pain, I have a similar problem, though perhaps a different cause:

Literally the same time I was diagnosed as Type 1, I told the nurses/doctors, my foot had a dull pain. I was told, there wasn't a problem, even though the pain was getting worse, by the day.
After being discharged, a week later, I visited my GP, who examined my foot and came to the conclusion, there was NO pulse and was rushed to the local hospital, to see a vascular specialist. I was taken to have a CT Scan, which resulted in me being diagnosed with one or more blood clots. I was told the diabetes had turned my blood to mush, with the result, a choice of no foot or an operation.
The operation (about three hours) was successful up to a point; however my foot is in constant pain, I can't take Ibroprofen, as I am on blood thinners, which doesn't get on well, so only co-codomol or paracetamol, which is like having "smarties", ie no use what-so-ever. This has been going on now for six weeks, yet trying to find a podiatrist or even a doctor is laughable.
If I knew this was going to happen, my choice of no foot or an operation may well have been different.
I have since seen the consultant, who simply asked, " Is my foot getting better and can I walk?" My answer, "My foot is painful everyday, I don't get painkillers and I use a stick, oh and feel like a criple". I have to wait another six weeks to endure this again, until the consultant checks again. Not really sure if I can wait this long.

 

[Eliseanne]

Gosh poor you! My pain seems to come and go. Tonight I slept until three then had to take a codeine tablet. The more I am upright the better it is - So it must be something to do with circulation. I am waiting to see my doctor to find out next steps - this came on very suddenly literally from one day to the next so I am hoping it will go just as quickly. Try the walking really gently I am sure it will help and get to see a doctor a bit sooner - 6 weeks is much too long to go in so much pain. I really feel for you and hope that things improve soon for you.

 

[ian4468]

Gosh poor you! My pain seems to come and go. Tonight I slept until three then had to take a codeine tablet. The more I am upright the better it is - So it must be something to do with circulation. I am waiting to see my doctor to find out next steps - this came on very suddenly literally from one day to the next so I am hoping it will go just as quickly. Try the walking really gently I am sure it will help and get to see a doctor a bit sooner - 6 weeks is much too long to go in so much pain. I really feel for you and hope that things improve soon for you.

Thank you
As for some additional info: After the operation, while in recovery, I said to a nurse that I couldn't move my toes. She spoke to the consultant, who responded by instructing me to "wiggle my toes".
Six weeks later, I can move my big toes about half a centimetre, but none of the others (same foot). When I saw the consultant I mentioned this, and asked could it be nerve damage, ie the pain and lack of movement, he replied "Why would you say that"? I replied, I have diabetes, and my foot seemed OK before the operation. That's when he asked if I could walk.

 

[johnbear2]

Been type 1 diabetes for 15 years and have a rare genetic condition called melas syndrome,I have been to the neurophysiology with my leg muscles, my rare genetic condition causes too much lactic acid in the muscles

 

[Elaine p]

hi guys i am type 1 diabetic and last year went off the rails a bit and didn’t control it well at all. anyway i started taking my insulin properly in January and have gained 2 stone my problem is my legs are killing me :-( i have been to the doctors and he checked my pulse and sensation in my feet and legs and said it is definitely not neuropathy and it is just my body getting used to the insulin again. Here are my symptoms and has anyone else experienced this? My legs feel very sore like i have been for a 20 mile hike muscles aching like mad all day every day for over 2 months my feet are really sore as well they had shooting pains in them that come on suddenly then disappear i am messaging them all the time but nothing seems to be working, my muscles feel like they are burning and not even ibuprofen seem to work at all and it is keeping me up through the nights now please can someone point me in the right direction my doctor keeps fobbing me off i think :-( but i am in agony now

Hi Kelly, I have the same symptoms and it’s really getting me down. I’m in pain all day and it’s keeping me awake at night too. At times, I can hardly walk. I’ve been out today but now I’m suffering. My gp suspected I have a vitamin d deficiency and I was tested last week. I had the results back yesterday and I am deficient. A kind lady on this forum suggested using magnesium oil to help and on research have found that people who are vitamin d deficient are also low in magnesium, hence my trip out today to mind magnesium oil. I was unable to get any in town so bought some oral magnesium tablets to take alongside the vitamin d. I will order the magnesium oil off Amazon. I’m hoping i’ll see an improvement in my symptoms soon as I feel quite depressed with it all. Hope you also find some relief soon, best wishes x

 

[DaveXF]

Looking for some advice in this, if possible.
As noted earlier, I've been showing all the 'classic signs' of DN.
Pain in the big toes, heel pain and itching, calf cramps, general allover itching and aching ankles.
Apart from the aching ankles, if I'm stood still for some time, it's all but gone ( or barely noticeable).
Have I just dodged a bullet, or is this common for it to come back in waves...just as I start to feel good about myself again?
We tried the. Ipswich toe test yesterday...which we expanded to from an back of the toes and I could identify not just the toe but where exactly it was being touched.
What I have noticed is that my ankles are quite dark BUT, I'm tanned and enjoying the lanzarote sun at the minute.

Confused...

 

[Toplada]

I was diagnosed as type 1 earlier this year (lada) but suspected I had a problem earlier (stupid bloke phobia of going to the docs). HbA1c was 106 but got it down to 46 in six months with insulin and generally losing my appetite. Have chronic feet and leg pain at the moment though and maculopathy in both eyes (following recent screening). Always grateful for others views. I’m hoping it might be temporary due to change in blood sugar, but bricking it a bit at moment.

 

[Irene Banting]

I have had type 1 for 55 years. I have neuropathy in my feet. My sister has severe neuropathy too. Some things she has found helpful:- Gabapentin, Lyrica, both on prescription and some side effects. Benfotiamine/ Milgamma:- this is a combination of B- vitamins which have been shown to help treat and prevent neuropathy. My sister reckons her feet are much better on the Gabapentin and Benfotiamine. I have tried both but they haven't helped mine. I have also been on Lyrica and Tramadol but hated the side effects more than the pain so weaned myself off them. I have recently read about an over the counter medication called PEA ( palmitoylethanolamide) it sounds almost too good to be true but I am forever the optimist and have ordered some. You can get it on Amazon UK. I suggest Googling it. Good luck to anyone with these horrible feet!

 

[maximo]

hi guys i am type 1 diabetic and last year went off the rails a bit and didn’t control it well at all. anyway i started taking my insulin properly in January and have gained 2 stone my problem is my legs are killing me :-( i have been to the doctors and he checked my pulse and sensation in my feet and legs and said it is definitely not neuropathy and it is just my body getting used to the insulin again. Here are my symptoms and has anyone else experienced this? My legs feel very sore like i have been for a 20 mile hike muscles aching like mad all day every day for over 2 months my feet are really sore as well they had shooting pains in them that come on suddenly then disappear i am messaging them all the time but nothing seems to be working, my muscles feel like they are burning and not even ibuprofen seem to work at all and it is keeping me up through the nights now please can someone point me in the right direction my doctor keeps fobbing me off i think :-( but i am in agony now

I am T1 approx 10yrs. I have neuropathy and osteoarthritise....over this last year pain has disabled me aat times when walking and just sitting around.....I do believe that excercise helps but like yourself find it difficult when I have constant pain in feet and ankles....I have tried Tramadol but now on Gabapentin 3600 per day and up to 8 cocodomol for osteo stuff.....It does not kill all the pain but takes the edge off things....Not well controlled and sitting at 98 bmi.....I also suffer from anxiety and stree which do not help.....I suggest seeing your gp again and asking him for something to ease things a bit......