Kidney Problems

walshdon

Active Member
Messages
31
Type of diabetes
Type 1
Treatment type
Pump
I need some advice. My blood pressure started going high 3 yrs ago and since then I have been under consultant who put me on ramipril which I stopped because of the coughing then losartan. My kidneys dropped to 24 so doctor too me off and now I am back up but consultant said it isn't the tablets it's my diabetes. Has anyone been given wrong information as I am thinking of going private for a second opinion and a scan as I have never had one.
 
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Crocodile

Well-Known Member
Messages
683
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
I can't have it often
What does '24' refer to. It's a bit unfortunate that both hypertension and diabetes are not the kidney's best friends. Ideally I would have thought that both conditions should be optimally treated.
 

walshdon

Active Member
Messages
31
Type of diabetes
Type 1
Treatment type
Pump
24 is the egfr kidney level result. Said would put me on transplant list at 25 but has now risen to 32 now I am off the losartan tablets.
 

Crocodile

Well-Known Member
Messages
683
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
I can't have it often
OK, that's pretty low. Mine are a bit impaired (60) as well but have at least been stable for a good while now. Keeping sugar under control certainly stopped the slide. Lucky I don't have hypertension I suppose. I'm a T2 so not really up to speed with all the nuances of T1. How's your sugar management. Are you overweight.
Glenn
 

walshdon

Active Member
Messages
31
Type of diabetes
Type 1
Treatment type
Pump
OK, that's pretty low. Mine are a bit impaired (60) as well but have at least been stable for a good while now. Keeping sugar under control certainly stopped the slide. Lucky I don't have hypertension I suppose. I'm a T2 so not really up to speed with all the nuances of T1. How's your sugar management. Are you overweight.
Glenn
Probably 20lb overweight and hba1c is 9% so both a little higher than perfect. I have got a freestyle libre and I am making sure my sugars are better controlled.
 

Crocodile

Well-Known Member
Messages
683
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
I can't have it often
@walshdon
9% is too high to avoid complications. I appreciate it is difficult and hard work. Lucky I've caught mine before it was too late. For reference, a HbA1c of 9% equates to an average bg of 11.8mmol/L.
Good luck with it. Hopefully your Libre will make it easier for you to keep it down.
Glenn
 

Crocodile

Well-Known Member
Messages
683
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
I can't have it often
@Contralto
egfr is the estimate of the filtration rate of the kidneys in mL per minute. 24 is very low and indicates a large loss of kidney function. 30 is a little better and just bordering between severe impairment and chronic. The formula is quite complex and depends on age and sex as well as creatinine levels.
 

leahkian

Well-Known Member
Messages
302
There are more medications that you can try like lisinopril and others, it is a matter that your GP or consultant should be looking into. It is hard to do but losing weight will also help and certain foods they tell you to try and cut out of your diet, sometimes renal function can stagnate for a time. My renal function stopped at around 20% for 7 years know one can explain why it happened but it did, kidneys function can go up as well as down but if you are not on a fluid restriction drinking water to flush the kidneys out can help. Diabetes causes the kidneys to fail but in life there are things that happen to our diabetes which can make it unstable such as stress effects diabetic control and therefore can damage the kidneys. In some ways diabetes makes you eat certain foods to help maintain a good BG level but these foods may effect your kidney function so it is a catch 22. There are many renal consultants in the country but you need to find a hospital that does transplants and i am sure Manchester is one of them but at the time of needing to go on the list your renal and diabetic consultant will invite you to a meeting. When i went there was both consultants as well as a transplant doctor and nurse, you will have to go for many test ECG, blood,scans and a test where you are on a exercise bike with a mask on to see if the heart can take the strain of the transplant. You have to do these every year as a pre op assessment, my own personal experience was that i move all my care to the Freeman hospital at Newcastle. I changed my diabetic doctor from Durham hospital to a one who was involved with transplants and then moved all my care there as they were not getting letters but once its under one roof everything was better. It is about 30 mins drive to the Freeman from a 5 mins drive to Durham but the care was on a different level.
 

Grant_Vicat

Well-Known Member
Messages
1,178
Type of diabetes
Don't have diabetes
Treatment type
I do not have diabetes
Dislikes
Intolerance, selfishness, rice pudding
I need some advice. My blood pressure started going high 3 yrs ago and since then I have been under consultant who put me on ramipril which I stopped because of the coughing then losartan. My kidneys dropped to 24 so doctor too me off and now I am back up but consultant said it isn't the tablets it's my diabetes. Has anyone been given wrong information as I am thinking of going private for a second opinion and a scan as I have never had one.
Hi @walshdon Having been right through 40 years of deteriorating kidney function and eventually getting a transplant, I thought I should offer a bit of advice and hope! Firstly, as posted above, a good HbA1c is the best chance of keeping the wolf from the door. Secondly, if you stop any hypertension drugs it is vital to be taking a replacement offered by a consultant. Before 2013 I was on Perindopril, Irbesartan and Indapamide, all at once. The following is an excerpt from the book in my hands:
Dr Clark referred me to Addenbrooke's in 2000 because he was concerned about my deteriorating kidney function. The first signs of problems showed up in 1973 and in 2000 Dr Bradley reckoned that in five years I would probably be looking at dialysis, something that I had feared for some years. As I have got older I have become more and more squeamish in terms of blood tests, cannulas, or in other words anything that is invasive. I had already been on a concoction of drugs [Irbesartan,Perindopril and Indapamide] and now it was expanded somewhat. I guess this was the reason why I continued right up to 14th August 2013 without undergoing dialysis. In November 2011 Professor Watson and Dr Williams, who are both pancreas specialists, asked me what I thought about having a pancreas transplant in addition to a kidney transplant. It was as though I was woken up in the middle of an otherwise ordinary dream; as though everything I had accepted over the last fifty-two years had simply been a nightmare. These men were God. Up until that day I had been resigned to being diabetic for the rest of my life, but at least with a replacement kidney. My mind became a turbine. The unpalatable thought of being under the knife, at considerable risk to life, was far outweighed by the likely benefits. I never had any doubt that Addenbrooke's, one of the finest transplant centres in the world, would deliver the goods, or organs.

From 2000 -2013 I was on a limited protein and phosphates diet to preserve what little kidney function I had. Has anyone discussed this with you? As also mentioned above, if you are not at a major hospital, it might help if you spoke to your GP explaining why at this stage you need specialist attention. I have been lucky over the years. At university I became an outpatient (and inpatient!) of King's College Hospital from 1978 - 2000 and then Addenbrooke's (Cambridge University) ever since. Once you start talking to real experts, your hope for the future should start to increase dramatically. I hope so.
 
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