Hi,
My daughter is 9.5 and was diagnozed 3 months ago with type 1.
She is now in her honeymoon period, and not taking any insulin for over a month.
The weird thing is that she gets hypoglycemia, usually before its time to eat. It even got as low as 49 (2.7).
But she is not getting any insulin, so how is that possible?
Has anyone encounter such a situation?
Hi there
@yoyogali what you experience though is rare, it can happen to some of the honeymooners, according to our peadiatric endocrinologist.I also encountered a number of sceintific studies on the internet describing the phenomenon. The doctors don't know exactly why it is happening to some of the patients, but assume that it may be that the children were diagnosed quite early thus still a lot of beta cells are preserved. Have you checked her c peptide level?
One thing which is certain is that unfortunatelly it is only temporary and can last from one month up to a whole year in some patients, according to the data...My son was close to dismissing the insulin entirely at one point during the honeymoon and on specific occasions such as a sports day he didn't need any at all.
I got to know a girl while we were staying in the recovery hospital after the dx, who was dxd at age of 14 and didn't take any insulin for the first four months and her sugars were within range.She told me that she was very actively playing volleyball.After a while, the numbers started creeping in and she gradually assumed the insulin therapy. None of this had any effect on her subsequent control, she said.
Hope this little insight helps a little.
Best of luck
Natt