Another Newbie

Addyb

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Hi all. Thought I'd sign up and say hello. It's a bit of a surprise how this has all happened for me.

Long story short(ish)
History of kidney stones and more recently was booked in for laser treatment. Pre op tests detected high levels of glucose in urine. First blood test came back with a number of 54.

Had to have the laser again so pre op tests flagged it up again. My local gp sent me for a second round of tests and this time the result was 59. I'm now booked in to see a diabetic nurse next week. Not sure what to expect tbh. I bought a glucose testing kit (SD Codefree?) and my first reading today was 19.6 which I gather is high.

Anyway just wanted to say hi and I look forward to digesting and offering my own help when I can. Any other details anyone wants to know feel free to ask.

For the record I'm a 41 year old male.
 
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Juicyj

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Hi @Addyb Welcome to the forum :)

Thank goodness you had to have pre-op tests as otherwise you could of gone for a while without picking this up, so blessing in disguise really. Tagging @daisy1 for our new members info which is a useful guide.
 
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Addyb

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Hi @Addyb Welcome to the forum :)

Thank goodness you had to have pre-op tests as otherwise you could of gone for a while without picking this up, so blessing in disguise really. Tagging @daisy1 for our new members info which is a useful guide.

Yeah it makes me wonder how long I've potentially had it for. I've not felt right for quite a while but as I've had kidney issues I've just put the tiredness and thirst down to meds for that and the fact I have 2 autistic little girls that don't really sleep.

Anyway I'm kind of relieved I now probably have the answer to that and I can move forward now.

Thanks for the reply, most appreciated :)
 

Guzzler

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Hello, welcome and Ouch! Kidney stones are no fun.
 

Prem51

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Welcome to the forum @Addyb. Well done on getting a blood glucose meter. 19.6 is quite high. But many of the Type 2s on here have lowered their blood glucose levels by adopting a Low Carbohydrate High Fat (lchf) approach to eating. I don't know if lchf is compatible with kidney stones and their treatment. I expect some T2 forum members might know, and you should discuss with your HCPs before changing diet.

If the experience of many of us is anything to go by you won't get much advice at your appointment wit the Diabetic Nurse. Usually they weigh and measure you and take your blood pressure. The soles of your feet will be poked to see if you have any neuropathy affecting feeling, and you will be advised to put moisturising cream on your feet and to wear comfortable protective footwear. You will also be referred for eye screening for retinopathy.
 

Daibell

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Hi and welcome. Yes, 19.5 is quite high and needs to be brought down. Do follow the low carb diet advice. Can you let us know what your BMI/weight is? If you have some excess weight then the right diet and possibly the drug Metformin which the DN may well prescribe should help. If you are slim or have lost weight recently then there are other possible types of diabetes rather than T2. Do come back here as more questions arise
 
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Addyb

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Thanks for the information so far peeps :)
I'm currently 15st 12. My bmi is from memory about 30.

Should I book In for a normal eye test (Not had one in decades) or would this eye screening detect issues anyway? Sorry if that sounds daft.
 

Resurgam

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The diabetes screening and the normal opticianl testing are looking for totally different things, but if you are reducing your blood glucose levels at the moment it would not be a good idea to have your eyes tested, not until you reach a stable, lower level, as the change in blood glucose is almost bound to affect your eyes. If you find that your can't focus to read then some cheap reading glasses will probably do the trick until things settle down, as expensive 'proper' glasses might very well be useless in a few weeks.
 

LadyLovely

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If you are slim or have lost weight recently then there are other possible types of diabetes rather than T2. Do come back here as more questions arise[/QUOTE]

Hi Daibel Interested to know what other possible types it could be?
 

Addyb

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I'm not slim that's for sure. I have lost around 7lbs but I've been unwell with my kidney treatment so it's hard to say if diabetes is the cause.
 

Addyb

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The diabetes screening and the normal opticianl testing are looking for totally different things, but if you are reducing your blood glucose levels at the moment it would not be a good idea to have your eyes tested, not until you reach a stable, lower level, as the change in blood glucose is almost bound to affect your eyes. If you find that your can't focus to read then some cheap reading glasses will probably do the trick until things settle down, as expensive 'proper' glasses might very well be useless in a few weeks.

Good idea. Didn't think of that. Thanks.
 

Prem51

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If you are slim or have lost weight recently then there are other possible types of diabetes rather than T2. Do come back here as more questions arise

Hi Daibel Interested to know what other possible types it could be?[/QUOTE]


Sometimes adults who become diabetic are misdiagnosed as T2 when they are actually T1 - Theresa May was one. She was diagnosed T2 after losing weight, then after meds failed to lower bgs was rediagnosed as T1 after further tests.
 

Addyb

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Hi Daibel Interested to know what other possible types it could be?


Sometimes adults who become diabetic are misdiagnosed as T2 when they are actually T1 - Theresa May was one. She was diagnosed T2 after losing weight, then after meds failed to lower bgs was rediagnosed as T1 after further tests.[/QUOTE]

Interesting. I wonder what these further tests are. It's something I've wondered what makes them diagnose one over the other.
Basically if I changed diet and had meds and my BG didn't alter, that could indicate type 1?
 

jayney27

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Hi all. Thought I'd sign up and say hello. It's a bit of a surprise how this has all happened for me.

Long story short(ish)
History of kidney stones and more recently was booked in for laser treatment. Pre op tests detected high levels of glucose in urine. First blood test came back with a number of 54.

Had to have the laser again so pre op tests flagged it up again. My local gp sent me for a second round of tests and this time the result was 59. I'm now booked in to see a diabetic nurse next week. Not sure what to expect tbh. I bought a glucose testing kit (SD Codefree?) and my first reading today was 19.6 which I gather is high.

Anyway just wanted to say hi and I look forward to digesting and offering my own help when I can. Any other details anyone wants to know feel free to ask.

For the record I'm a 41 year old male.
Hi and welcome, you have found a great place for info, friendship, support and motivation.
We have all been where you currently are, newly diagnosed and a little bit in shock, however, lots of us have and continue to have success at reducing BG levels and weight.
Reach out if you have questions, as I’ve said we are a friendly helpful group of people.
I wish you well and hope that you soon see some better numbers in relation to your levels and in the scales :)
 

Addyb

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Thanks for all replies so far. It's a lot to take in but I guess my biggest question is about progression of it all.

Say for example I only needed a diet change. Would this after x amount of time not keep it low enough and then would I need tablets as well? If this was the case then would tablets only work for so long before I'd possibly need injections? Again in x amount of years.

Or is it more black and white that I'd need a diet change and medication to control and if I stopped either or both my levels would rise up again and potentially keep rising?
 

Prem51

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Sometimes adults who become diabetic are misdiagnosed as T2 when they are actually T1 - Theresa May was one. She was diagnosed T2 after losing weight, then after meds failed to lower bgs was rediagnosed as T1 after further tests.

Interesting. I wonder what these further tests are. It's something I've wondered what makes them diagnose one over the other.
Basically if I changed diet and had meds and my BG didn't alter, that could indicate type 1?[/QUOTE]
I think it's the 'GAD' test for glucose intolerance, where you drink a lot of lucozade then your bgs are measured at intervals to see how long it takes for your levels to come down. I may be wrong about that, I haven't really looked into it, but others on here probably know more.
The reason why people are sometimes misdiagnosed is because T1s are usually diagnosed when they are children. If you are showing diabetic symptoms as an adult it is often assumed you must be T2.
If your bgs didn't change with carb reduction and/or meds you should ask your GP if you might be T1.
 

daisy1

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@Addyb

Hello Addyb and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you like and someone will help.

BASIC INFORMATION FOR NEWLY DIAGNOSED DIABETICS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.
 

Prem51

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Thanks for all replies so far. It's a lot to take in but I guess my biggest question is about progression of it all.

Say for example I only needed a diet change. Would this after x amount of time not keep it low enough and then would I need tablets as well? If this was the case then would tablets only work for so long before I'd possibly need injections? Again in x amount of years.

Or is it more black and white that I'd need a diet change and medication to control and if I stopped either or both my levels would rise up again and potentially keep rising?
Well NHS advice is that T2 is progressive, and inevitably leads to increasing medication. But that might be due to their advice to continue eating carbs.
More doctors and hcps are saying that reducing carbs can control T2 without medication and it does not have to be progressive.
 
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Krystyna23040

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Well NHS advice is that T2 is progressive, and inevitably leads to increasing medication. But that might be due to their advice to continue eating carbs.
More doctors and hcps are saying that reducing carbs can control T2 without medication and it does not have to be progressive.
I agree with this. Advised to base my diet on starchy carbs and low fat. I was on Novarapid and Lantus insulin - injecting after everything I ate. Diabetes complications worsening Changed to low carb - result was improved blood sugars, diabetes in remission and all the diabetes complications reversed. I am absolutely sure that diabetes would return if I started eating starchy carbs and sugar again. But as I absolutely love this way of eating there is actually no chance of this happening. What also seems to be happening is that my good blood sugars are improving further - which bodes well for the future.
 

Alexandra100

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Basically if I changed diet and had meds and my BG didn't alter, that could indicate type 1?
I think so, or T1.5 / LADA. There is a Forum further down dedicated to that. However, one of the signs of T1 is often (but not always) unexplained weight loss. Given that there are far more T2s than T1s, I'd assume T2 til further evidence.
 
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