Anyone With Type 1 And No Complications

Messages
4
hi everyone i wanted to ask is there any type 1 with no complications. apart from good blood sugar level what would you say helped you stay complication free.
47 years type 1 with no apparent complications which is wierd because as a child reading the Balance magazine I really believed that I’d be lucky to live to reach the age of 30! Blood sugar control was not great in the early days but technology has got better and better so I now expect to live into my nineties. It’s great to hear positive stories from my fellow Type 1s.
 
K

Knikki

Guest
Yes...they have found that stem cells will grow into beta cells and start producing insulin. As everybody’s body is different, I am hoping that this is what will happen with me. But this is only a clinical study that will last for 2 years and when the study time has concluded, the ‘pouches’ with the stem cells will be removed.
I have enclosed the study ‘Letter of Interest’ which explains the study details. As this is a Canadian study, unfortunately only Canadian residents are eligible to participate.

Yes I did a little background reading on the subject, it does seem very interesting and a possible way of fixing T1D's but from the little I read it is still in its early stages, most stem cell stuff is and the jury seems out on how Stem Cells could be used in adults to stimulate Beta Cell production.

However saying all that I wish you all the best for the next two years and I do hope that you keep us updated on how you get on. :)

With that I am going to raise a glass and salute you later on :pompous:
 

Girlfriend01

Newbie
Messages
3
Type of diabetes
Family member
Treatment type
Insulin
This is a great thread reading all of your positive stories!

My boyfriend was diagnosed with T1 a few months ago, and in the back of my mind I always worry about the future complications that he is at risk of. Reading positive experiences helps me manage my worries!

My boyfriend is still coming to terms with it, I've shown him this thread and told him to join himself but he doesn't want to just yet. Hopefully one day.

Stay healthy everyone :) xxxx
 

kitedoc

Well-Known Member
Messages
4,783
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
black jelly beans
47 years type 1 with no apparent complications which is wierd because as a child reading the Balance magazine I really believed that I’d be lucky to live to reach the age of 30! Blood sugar control was not great in the early days but technology has got better and better so I now expect to live into my nineties. It’s great to hear positive stories from my fellow Type 1s.
Hi @Jan(I love Goldies), 51 years on insulin here, from age 13, here in Australia. I recall those frightening days, sitting in diabetes clinics with other patients, blind, amputees etc. And the harping on by doctors about complications. I am glad you have survived that era too ! I have had cataracts replaced (I blame the Aussie sun !!), carpal tunnel releases, trigger finger releases but that is all. Life has improved with starting on an insulin pump in 2011. I was too stubborn to do so earlier! Now retired and at least these days I have to agree with my specialist that encouraging children and teenagers with type 1 diabetes to obtain a good normal age retirement plan once employed is a great step forward. Best Wishes and please keep posting about your experiences.
 

kitedoc

Well-Known Member
Messages
4,783
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
black jelly beans
This is a great thread reading all of your positive stories!

My boyfriend was diagnosed with T1 a few months ago, and in the back of my mind I always worry about the future complications that he is at risk of. Reading positive experiences helps me manage my worries!

My boyfriend is still coming to terms with it, I've shown him this thread and told him to join himself but he doesn't want to just yet. Hopefully one day.

Stay healthy everyone :) xxxx
Good on you @Girlfriend01 ! My specialist says that he encourages all new type 1 diabetics to obtain a good normal age retirement plan. The treatments etc are that good these days!!
 

kitedoc

Well-Known Member
Messages
4,783
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
black jelly beans
I agree with what @helensaramay says.

However managing T1D is an all round package, cardio/weights help keep the body in shape, keeps blood supply moving around the body.
Watching what you eat, managing your blood sugars, regular check ups at the various clinics will do much more.
However if you choose to ignore T1D (which some do) and run high BSL for a long time then it will bite you, and bite bad, and no amount of exercise will be able to fix the problems that could occur.
And exercise helps keep a cake fad in check !!??
 
  • Like
Reactions: Robinredbreast

kitedoc

Well-Known Member
Messages
4,783
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
black jelly beans
60 years on insulin and still going strong. When diagnosed (I was 16) the consultant warned about what could happen if I did not follow the diet. The thought of becoming blind and/or losing my legs was terrifying. no means of testing Blood sugars in those days and I was no saint. One complication was receding gums and jawbone that led to abscesses and subsequent loss of perfect teeth when I was in my late twenties. About 7 years ago needed laser treatment on my eyes but no further complications.
Type 1 diabetes is something you have to learn to live with. No point moaning about it.
I count myself lucky because my maternal grandmother died of it in 1924. I intend living life to the full for a good many more years.
Thank heaven for those scientists, Banting and Best, who gave us the gift of life. I am eternally grateful to them.
Thank you @cassie091, that is an very inspirational story, says muggins here with only 51 years under his belt !
 
  • Like
Reactions: kev-w

kitedoc

Well-Known Member
Messages
4,783
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
black jelly beans
I’ve been a T1D for almost 52 years (diagnosed the Christmas before I turned 3 in March). So far, I’ve had no major complications...other than frozen shoulder which I guess thawed when I moved to a different province (I live in Canada), carpal tunnel surgery on both wrists, and trigger finger (thumb) on right hand. I may have some eye issues going on but my optometrist said nothing serious and we will keep an eye on it..no pun intended lol. I’ve just started the ViaCyte clinical study with implanted stem cells under my skin. I am really excited about this and hopefully there will be something good come out of this 2 year study that will go on to finding a cure for T1D
Wow, @Blondie3369, That is fantastic and you are now an official guinea pig for a most interesting study. 51 years on insulin here in Australia. Cataracts replacements, and similar carpal tunnel and trigger finger issues. The insulin pump has done wonders for control. I used to do 7 day canoe trips here, but kite flying and making as a hobby keeps me out of mischief these days !!
 

Khushi Nagpal

Active Member
Messages
28
Type of diabetes
Type 1
Treatment type
Insulin
If any diabetic get diagnosed with any of the numerous complications diabetes has, it will always be something of great sorrow.
I live in Dubai and notice people ( in my school or outside community ) who take Diabetes lightly and don’t do the best they can in trying to control their sugar levels, which really saddens me.

I’m nearly 15 years old, so it has been nearly 10 years without any complication for me, and a decent Hba1c.
 

Ray B

Active Member
Messages
41
Type of diabetes
Type 1
I'm 6.5 years in and no complications so far.

I aim for tight control all the time (non-diabetic levels) , then if do I get complications I can at least say I've tried my hardest and have no regrets.
Type1 for 70years, no complications till late sixties never hospitalised although have had treatment for foot ulcers Thanks to good health care no further problems, some age related issues , however I continue to stay healthy by exercise and positive outlook on life, also having good family support has been essential. Hope this helps.
 
  • Like
Reactions: Wurst
D

Deleted Account

Guest
I live in Dubai and notice people ( in my school or outside community ) who take Diabetes lightly and don’t do the best they can in trying to control their sugar levels, which really saddens me.
I would consider mental health problems as possible complications due to diabetes.
Therefore, whilst I agree it is sad when people appear to take diabetes lightly, they may act that way because they are struggling to cope with the condition.
We are all different, react different ways both physically and mentally so I try not to judge someone who appears to take a serious condition lightly - I don't know what is going on in their mind.
 

Alison54321

Well-Known Member
Messages
1,221
Type of diabetes
Type 1
Treatment type
Insulin
Type1 for 70years, no complications till late sixties never hospitalised although have had treatment for foot ulcers Thanks to good health care no further problems, some age related issues , however I continue to stay healthy by exercise and positive outlook on life, also having good family support has been essential. Hope this helps.

70 years! now that is very impressive, well done.
 

Dannymum

Member
Messages
16
One of my best friends has been T1D for 25 years with NO complications at all. It is perfectly possible but hard work,
try to keep HBA1C to a good level and KEEP ACTIVE.

I am trying my best with my 13 year old, as he had suddenly become sluggish and not keen to do lots of sport.
 
  • Like
Reactions: kev-w

Madmaureen

Well-Known Member
Messages
140
Type of diabetes
Type 1
hi everyone i wanted to ask is there any type 1 with no complications. apart from good blood sugar level what would you say helped you stay complication free.
Yes myself type 1for 48years!
Looked after myself as far as I could in the beginning had 3 children holidays abroad looking after my mother and the last 15 years lived alone. Was scared and now I have the libre my life has changed for the better! I can cope and do not have any night time hypos which is what I was experiencing before the libre but now it is brilliant. One word FREEDOM!! I have learned so much how to do it how to live alone never be afraid just work through it comes in the end!
 

kev-w

Well-Known Member
Messages
1,901
Type of diabetes
Type 1
Treatment type
Insulin
Type1 for 70years, no complications till late sixties never hospitalised although have had treatment for foot ulcers Thanks to good health care no further problems, some age related issues , however I continue to stay healthy by exercise and positive outlook on life, also having good family support has been essential. Hope this helps.

I read that twice with a big cheesy grin on my face :) insulin was just 26 years discovered 70 years back!!

I doff my cap to you ma'am :) and thanks for posting it up, I've got to ask if you've tried the Freestyle Libre though?
 

Madmaureen

Well-Known Member
Messages
140
Type of diabetes
Type 1
I read that twice with a big cheesy grin on my face :) insulin was just 26 years discovered 70 years back!!

I doff my cap to you ma'am :) and thanks for posting it up, I've got to ask if you've tried the Freestyle Libre though?
Yes I have the libre self.funded and adore it!
My life is so much better for using it no hypos no episodes of needing help have lost weight too one word FREEDOM!!
 

prancer53

Well-Known Member
Messages
209
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Professionals who know little about diabetes who generalise!!
57 years....type 1. Put it down to good BM s/ HBAc1 s, understanding of type 1, food-- cho contained in, exchanges and an absolute ton of exercise (as recommended by docs in 1960 s when 1st diagnosed) and not being obsessed by diabetes but doing the right thing in order to have energy to do as I wanted to do!!!!!!!. Trained full time as a dancer (Mother originally sent me to ballet lessons to follow doc's advice re exercise then at 16 was accepted at a London ballet school for professional, full time training). Worked as a professional dancer to until I was 27 yrs. Listening to my body. I never, ever wanted to lack energy as when I was 8 years old and diagnosed with type 1. Upshot was that I was in control of diabetes, my life, what I wanted to do etc. Not feeling sorry for myself but just getting on with things. Developing coping strategies. Remaining very active throughout life & looking after myself.....think that's just about it. Wasn't brilliant during early teenage years.....teenage rebellion ruled...OK (ha ha) but realised error of my ways and reformed pretty quickly...!! Think that's it. So lovely to read these messages from others who have had type 1 for ages...so many people I knew have died of awful complications at a young age.....xx
 
Last edited:
  • Like
Reactions: kev-w

prancer53

Well-Known Member
Messages
209
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Professionals who know little about diabetes who generalise!!
After I danced (gave up at 27 because I married and was working in the Italian Operetta Company in Italy) I worked in advertising for 10 years and was a top revenue producer (with only the odd day off for sickness). Had 2 children, mid to late thirties who were normal weights (7 lbs & 6 lbs 6ozs respectively---probably underweight these days....so many 9lb ers plus)!!!. Stayed at home with the children till they were both at secondary school. Studied for a degree & graduated at 50 (dance degree---lots of exercise again). Accepted at The Royal Academy of Dance, London for postgraduate teacher qualifications then worked as a secondary school teacher (& worked on Queen Mary 2 & Brittania organising & delivering youth activities in school holidays) until I retired March 2018. Absolutely loving retirement. Do a range of activity every day incl 3 x 1 1/2 hrs a week ballet classes with ex Royal Ballet bods (keeps me on my toes!!), pilates & HITT classes (high intensity exercise classes). Did try Tai Chi...a bit slow so gave it up.....!!!! Life can be more than good after insulin. Real low point was when hubby broke his neck because I was working a 75 hr week (advertising) but still had to perform care duties particularly at weekends when I was off work.....that was v hard work....never had a full nights sleep because was woken up several times a night to sort him out when things went wrong yet still had to get up at 5am to begin sorting him out before I left home at 7am & drove 50 miles or so to where I was working--. Returned home by 10pm and had to do so much when I returned home plus get him into bed, which took another hour. Didn't look after myself so well then, for about a year. GP recommended yoga.....missed the point completely--- all I did was work & care ....no time at all to do anything else!!! After I had children care emerged out of the blue.....everyone seemed to think it was such hard work....I didn't think so but everyone is entitled to their opinions...... !!!!!!!!!!!!!! vAnyway, on the whole, life has been more than good!!!!!
 
  • Like
Reactions: kev-w

prancer53

Well-Known Member
Messages
209
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Professionals who know little about diabetes who generalise!!
Above endeth the first lesson....ha ha....truly hope it doesn't sound like a sermon...isn't meant to (nothing more annoying).....!!!
 

prancer53

Well-Known Member
Messages
209
Type of diabetes
Type 1
Treatment type
Insulin
Dislikes
Professionals who know little about diabetes who generalise!!
I read that twice with a big cheesy grin on my face :) insulin was just 26 years discovered 70 years back!!

I doff my cap to you ma'am :) and thanks for posting it up, I've got to ask if you've tried the Freestyle Libre though?
Blimey you look good.....obviously kept yourself well all those years. Can't get cgm s or anything where I live. Docs tell me "there are only bm s" "CGM s only used for diagnostic purposes".....like how stupid do they think I am......????
 
  • Like
Reactions: kev-w