Pip Assessment - What To Expect?

AlexB95

Newbie
Messages
1
Type of diabetes
Type 1
Treatment type
Pump
Hi all
I am type one for 24 years and have had, in the last 3 years, multiple treatments including two surgeries for a frozen shoulder. The consultant has been amazing and says that while the pain is now largely controlled, I have an aggressive form of the frozen shoulder and it’s unlikely I’ll get any improved movement. This is a direct result of the diabetes apparently, no matter that I’m quite well controlled!
I struggle to wash, cook, dress and manage medications such as the libre and things in time of hypo as remaining strength in my arm goes. Cleaning, while not on the form, is also a struggle.
I have letters from physio and orthopaedic consultant to this affect.
I have PIP assessment on Thursday- can anyone advise me what to expect or offer any advice? I am really stressed about it. I am a proud diabetic and quite annoyed with myself that my body has let me down in this way! I hate asking for help but have come tin the conclusion this is the only way. I don’t want my 8 year old or my husband becoming my carers. I’m in my 30s!
I’m curious as to whether I’ll be asked to prove how I dress/struggle etc
With thanks in advance
Alex
 

Pipp

Moderator
Staff Member
Messages
10,665
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Hi all
I am type one for 24 years and have had, in the last 3 years, multiple treatments including two surgeries for a frozen shoulder. The consultant has been amazing and says that while the pain is now largely controlled, I have an aggressive form of the frozen shoulder and it’s unlikely I’ll get any improved movement. This is a direct result of the diabetes apparently, no matter that I’m quite well controlled!
I struggle to wash, cook, dress and manage medications such as the libre and things in time of hypo as remaining strength in my arm goes. Cleaning, while not on the form, is also a struggle.
I have letters from physio and orthopaedic consultant to this affect.
I have PIP assessment on Thursday- can anyone advise me what to expect or offer any advice? I am really stressed about it. I am a proud diabetic and quite annoyed with myself that my body has let me down in this way! I hate asking for help but have come tin the conclusion this is the only way. I don’t want my 8 year old or my husband becoming my carers. I’m in my 30s!
I’m curious as to whether I’ll be asked to prove how I dress/struggle etc
With thanks in advance
Alex
Hello, @AlexB95 Welcome to forum. As this is your first post I am tagging @daisy1 , who posts information for new members, and will do that here soon.
Regarding your Pip assessment query: You will have already sent in the application form, and this is an opportunity to give information not just on your health conditions, but how those conditions affect your ability to carry out daily tasks . I hope you did that without feeling you needed to understate anything. The assessment will be an opportunity to fully explain face to face, anything further you need to get across to support your written application. It is probably too late for you to get individual help from Citizens Advice Bureau, or a Welfare Benefits agency, but if you search Internet in your area for benefits advice you may be lucky.
Alternatively, in the past I have asisted people with applications for benefits using this website: www.benefitsandwork.co.uk . They provide guides to ESA and PIP , but I think there is a membership fee of about £20 to get full access.
 

pumas

Well-Known Member
Messages
52
Type of diabetes
Don't have diabetes
Treatment type
I do not have diabetes
It may be worthwhile looking at how to appeal a refusal. It could help you to make sure you emphasise the crucial criteria and be aware of pitfalls.

Do take someone with you. You can record the interview, giving advance notice.

I had an Incapacity Benefit assessment years ago and was amazed at the number of incorrect, computer generated answers, some to questions I wasn't asked!
 

ickihun

Master
Messages
13,698
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Bullies
It depends on what you have disclosed on your form.
In assessment mention money you spend on assisting your movements in keeping yourself clean e.g sponge on handle or partner assists. My partner on shower days has to help but due to suspect fibromyalgia on top of obesity immobilities and tiredness from most drugs I take and underactive thyroid. Betablockers with 3 painkillers knacker me out. Before I've showered or dressed to leave the home. Asthma can stop alot too.

Your specialist is normally wrote to for info.
Ive heard if you have a specialist for mobility problems then you have more proof than just your word.
Many disabilities are already included in the means test. As some disabilities only come with restrictive lifestyle and are self explanatory.
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
@AlexB95

Hello Alex and welcome to the Forum :) Here is the Basic Information we give to new members and I hope you will find it useful. Ask as many questions as you need to and someone will be able to help.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you'll find well over 235,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.

There are two approaches to controlling your carbs:
  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes.

Over 145,000 people have taken part in the Low Carb Program - a 10 week structured education course that is helping people lose weight and reduce medication dependency by explaining the science behind carbs, insulin and GI.

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips

The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:
  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic.

Note: This post has been edited from Sue/Ken's post to include up to date information.
Take part in Diabetes.co.uk digital education programs and improve your understanding. Most of these are free.

  • Low Carb Program - it's made front-page news of the New Scientist and The Times. Developed with 20,000 people with type 2 diabetes; 96% of people who take part recommend it... find out why

  • Hypo Program - improve your understanding of hypos. There's a version for people with diabetes, parents/guardians of children with type 1, children with type 1 diabetes, teachers and HCPs.