Hi
I was diagnosed with type 2 diabetes about 5 years ago and diagnosed with type 1/LADA about 3 years ago after my pancreas failed.
I have since been trying to get an insulin pump on the NHS after an ex pump nurse said that it’s the right way to go.
I have been using the freestyle libre for about a year now and I have managed reasonable blood sugar control but I still think it could be better.
After 6 months of trying to get a referral to a consultant I finally got an appointment where she said yes, a pump would be ideal. It took 8 months for me to get a further response where I was finally told I would get a pump by 3rd October 2018 and I would be seeing 2 companies of my choice and the consultant about its late September 2018. I was pretty thrilled about this.
However, my happiness was short lived, turns out the appointment wasn’t with a consultant but with a pump team, where I was told I would not be getting a pump anytime soon and they didn’t even think I was a good candidate stating and I quote “An insulin pump is just another way of delivering insulin and is unlikely to help you”.
I have had trouble keeping my blood sugar flat as I have a heart condition that can cause erratic blood sugar drops, this causes problems with the Levemir and I end up with a hypo that I struggle to get out of. I was hoping that a pump would help as I could disable the flow of insulin, this would also help my constant fear of hypos. But they didn’t seem to think this was enough to warrant a pump.
I am somewhat devastated and I am unsure what to do next.
I was diagnosed with type 2 diabetes about 5 years ago and diagnosed with type 1/LADA about 3 years ago after my pancreas failed.
I have since been trying to get an insulin pump on the NHS after an ex pump nurse said that it’s the right way to go.
I have been using the freestyle libre for about a year now and I have managed reasonable blood sugar control but I still think it could be better.
After 6 months of trying to get a referral to a consultant I finally got an appointment where she said yes, a pump would be ideal. It took 8 months for me to get a further response where I was finally told I would get a pump by 3rd October 2018 and I would be seeing 2 companies of my choice and the consultant about its late September 2018. I was pretty thrilled about this.
However, my happiness was short lived, turns out the appointment wasn’t with a consultant but with a pump team, where I was told I would not be getting a pump anytime soon and they didn’t even think I was a good candidate stating and I quote “An insulin pump is just another way of delivering insulin and is unlikely to help you”.
I have had trouble keeping my blood sugar flat as I have a heart condition that can cause erratic blood sugar drops, this causes problems with the Levemir and I end up with a hypo that I struggle to get out of. I was hoping that a pump would help as I could disable the flow of insulin, this would also help my constant fear of hypos. But they didn’t seem to think this was enough to warrant a pump.
I am somewhat devastated and I am unsure what to do next.