Anyone else feel their Doctor(s) let them down ?

chris66

Well-Known Member
Messages
161
Type of diabetes
Type 2
Treatment type
Diet only
You may want to revisit the current research on cholesterol. I’m not finding gps any better informed on cholesterol than they are on carbs. Most don’t even bother looking at ratios or have heard of particle size in my experience so far.

There are numerous threads on here about cholesterol (myths) and it’s protective qualities especially for more mature women.
Again comes down to Dr/patient care in that Dr seems happy to sign a prescription for statins but never seem to be checked for cholesterol level, the mentality being you have high cholesterol you're stuck with it take these for the rest of your life.
 

HSSS

Expert
Messages
7,471
Type of diabetes
Type 2
Treatment type
Diet only
Again comes down to Dr/patient care in that Dr seems happy to sign a prescription for statins but never seem to be checked for cholesterol level, the mentality being you have high cholesterol you're stuck with it take these for the rest of your life.
Even if they do the tests they don’t seem to understand a huge amount about what the numbers mean. My latest discussion deteriorated into mumbles and “well yes” and “mmmms” and “we’ll you seem to know what you’re talking about” and an abrupt change of subject.
 

SlimLizzy

Well-Known Member
Messages
3,239
Type of diabetes
Prediabetes
Treatment type
Diet only
Dislikes
football, both the game and the culture.
I have a really good relationship with my Dr. Great guy who has been very supportive through suicide planning, strokes etc.

But when it comes to my Diabetes I cant help but feel very let down.

Blood test tells him I am pre-diabetic. Doesn't explain what that actually means or what I should do about it.

Second test confirms Diabetes.

So, in four years since diagnosis, I have felt woefully unprepared and very let down by a system that gives no guidance, no support and criticises when it goes wrong but is incapable of advice to get you back on track.

Ask your doctor if there is an Xpert Health Managing Diabetes course running near you. This is an NHS initiative, being rolled out UK wide. Am on the Preventing Diabetes version. Finding it very informative and not at all preachy.
My doctor recommended the course, but nobody else in the practice had heard of it. Several months later asked the diabetic nurse about it. Think she got me my invitation.
Another member of the course got his HbA1c result and was immediately sent to dietian, given sensible, (cut carbs and sugar advice) and enrolled onto the course. Postcode lottery service.
 

Sue192

Well-Known Member
Messages
594
Type of diabetes
Type 2
Treatment type
Diet only
It's interesting (if alarming) to read this thread and how GPs, nurses etc treat their patients. I'm beginning to think my GP's attitude was a blessing. Ok, I had none of the other 'classic three', i.e. overweight and high bp and cholesterol, and he was of the opinion that hereditary and having to sit at the screen all day were the main causes, so no pushing of statins etc. He also did say that 'there is mounting evidence to show that brisk walking is as good as going to the gym and it seems to help'. What did shock me was the absolutely clueless diabetes support group first meeting, offering cake and squash, recipes for said cake and other not-so-low-carb things from The Other Site, and photocopies of the Eatwell Disaster. The nurse sheepishly admitted that she 'wasn't happy' with the latter, so why push it? I was the only patient there and only stayed a couple of minutes.
 
Messages
18,448
Type of diabetes
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Bullies, Liars, Trolls and dishonest cruel people
I am sorry to read this.

I suppose their argument would be too many diabetic people, too much cost and time spent. They don't get that its vitally important to us and we aren't another ******* statistic. You aren't worthless at all, none of us are; its the system that's failing us.

I'd be chasing up that Diabetic nurse for answers.

Stay strong!.

Edited for language by moderator.

Thank you @Patrick66, I did chase them up today, another message left, so watch this space.................
 
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JohnEGreen

Master
Messages
13,231
Type of diabetes
Other
Treatment type
Diet only
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Tripe and Onions
I have posted this else where but recently my daughter was told by her GP's practice that her HbA1c of 42 was normal and that the pre-diabetes range was from 48 to 49 mmol/L unbelievable.
 

DavidGrahamJones

Well-Known Member
Messages
3,263
Type of diabetes
Type 2
Treatment type
Other
Dislikes
Newspapers
Anyone else ?

The GPs I had several years ago were exactly like that and why I changed surgeries, I was lucky enough to be in a position to do so and I realise that many do not have the same opportunity to change.
I think it's best to put yourself in a position where you know more than the people you deal with, which currently is not much. There's a lot to be learned and fortunately it's all on this forum, you have to decide what's best for you and I think the only way we can know that is by seeing what our meters say.
 

Patrick66

Well-Known Member
Messages
978
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
People. Noise. Swearing. Many foods.
I have posted this else where but recently my daughter was told by her GP's practice that her HbA1c of 42 was normal and that the pre-diabetes range was from 48 to 49 mmol/L unbelievable.
Quite amazing but the more I read, the less surprised I am.
 

Patrick66

Well-Known Member
Messages
978
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
People. Noise. Swearing. Many foods.
It's interesting (if alarming) to read this thread and how GPs, nurses etc treat their patients. I'm beginning to think my GP's attitude was a blessing. Ok, I had none of the other 'classic three', i.e. overweight and high bp and cholesterol, and he was of the opinion that hereditary and having to sit at the screen all day were the main causes, so no pushing of statins etc. He also did say that 'there is mounting evidence to show that brisk walking is as good as going to the gym and it seems to help'. What did shock me was the absolutely clueless diabetes support group first meeting, offering cake and squash, recipes for said cake and other not-so-low-carb things from The Other Site, and photocopies of the Eatwell Disaster. The nurse sheepishly admitted that she 'wasn't happy' with the latter, so why push it? I was the only patient there and only stayed a couple of minutes.

Sorry but the idea of being served cake made me smile. It seems so...logical in the sense that support “groups” always seem to think a plate of biscuits or a slice of cake is the answer to all your problems.
 

Robin101

Well-Known Member
Messages
79
Type of diabetes
Type 2
Sorry but the idea of being served cake made me smile. It seems so...logical in the sense that support “groups” always seem to think a plate of biscuits or a slice of cake is the answer to all your problems.
Let's not forget the cup of tea - Milk? Sugar? :)
 

garyb888

Active Member
Messages
31
hi Patrick. Have you considered intermittent fasting in combination with a careful, moderate low-carb (<100 carbs/day) diet? Not exactly rocket science, but it's worked wonders for me, and within only a couple of months time. I suggest you try it, and if it works for you you can forget about all the ignoramus doctors out there in their silly white coats. Collectively, they would make a great Monty Python sketch or two.
 

Patrick66

Well-Known Member
Messages
978
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
People. Noise. Swearing. Many foods.
Let's not forget the cup of tea - Milk? Sugar? :)
I do have a drop of milk in my tea lol...but no sugar.

I’m surprised they didn’t offer original Pepsi...and free refills..:)
 

Patrick66

Well-Known Member
Messages
978
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
People. Noise. Swearing. Many foods.
hi Patrick. Have you considered intermittent fasting in combination with a careful, moderate low-carb (<100 carbs/day) diet? Not exactly rocket science, but it's worked wonders for me, and within only a couple of months time. I suggest you try it, and if it works for you you can forget about all the ignoramus doctors out there in their silly white coats. Collectively, they would make a great Monty Python sketch or two.
I do fast now and again.

My appetite has become so variable I think my carb count is actually pretty low.
 

garyb888

Active Member
Messages
31
I do fast now and again.

My appetite has become so variable I think my carb count is actually pretty low.
Try an 18:6 fast and do it every day, not once in a while. Intermittent in regards to IF means the fast is not continuous, but broken up into regular "fasting windows" and "eating windows". Read stuff by Dr. Jason Fung to get more details...

Regarding carb count, if you read the nutrition labels on most food items you can know exactly what you are consuming, and for non-packaged items you can check on the internet for things like avocados, etc. Until you check carefully you are playing Russian Roulette with your health...
 

Patrick66

Well-Known Member
Messages
978
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
People. Noise. Swearing. Many foods.
Try an 18:6 fast and do it every day, not once in a while. Intermittent in regards to IF means the fast is not continuous, but broken up into regular "fasting windows" and "eating windows". Read stuff by Dr. Jason Fung to get more details...

Regarding carb count, if you read the nutrition labels on most food items you can know exactly what you are consuming, and for non-packaged items you can check on the internet for things like avocados, etc. Until you check carefully you are playing Russian Roulette with your health...
With respect I don’t think I am playing Russian Roulette with my health.

I’m not going overboard, I've had one “bad” hba1c in 4 years and unfortunately it came at the wrong time for me. My diets never varied by much and now it’s even more restrictive.

I am very dubious about the benefits of fasting and books written by “experts” as too many are out to get a quick buck and never have proven scientific data to back it up. Often they cause more harm than good. I’ll fast if I feel like I want to and my appetite will guide me in that but I don’t think doing it every day would be something I’d wish to follow.
 

Diawara

Well-Known Member
Messages
1,298
Type of diabetes
Type 2
Treatment type
Diet only
Thank you, i have already signed up for a six week course couple of hours a week starting on the 19th March, just a case of wha do i do in the meantie, am attempting to change diet which so far has only really cut out sugar and try to check what addatives are in foods i buy, but getting fed up with chicken or fish all the time.
i wonder if @JoKalsbeekor @Rachox will give you some advice and if you follow it you will possibly know more than the intructors on your course...
 

kitedoc

Well-Known Member
Messages
4,783
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
black jelly beans
Hi @Major Buckmaster, over the 52 years on insulin I could say that doctors that I have met and treated me have cover the range.
But my first GP diagnosed me at age 13. I was told by my specialist few GPs may have been as astute. Dr S offered me excellent care until I had to (reluctantly) move way.
My first specialist was very open minded and ahead of his time (talking about 19966 edit --> 1966) and onwards). Before I was discharged from hospital he invited my parents around to his home and over a meal discussed my diabetes, injections, diet etc. He also spent time with me on hospital visits to answer questions.
With University I came across a range of hospital doctors at the Diabetes clinic in the major hospital next door. The nurse were very supportive but some doctors were arrogant and basically used fear of complications to frighten people into following the diet and insulin regimes ( and remembering that glucose meters only became available to the public in 1980 or so (in Australia at least). Yet other doctors there were more progressive, welcoming. Some of the first research about the differences in absorption rates of insulin between various parts of the body was performed there.
Australia of course has some differences in its healthcare system compared to UK and more private GPs and specialist abound here (I think ). That makes for perhaps more ability to choose who one's GP and specialists are.
I have friends and acquaintances who seem to have got a very raw deal from their GP or specialist about their diabetes treatment.
Others much less so.
And we have to remember that doctors, particularly GPs, the expansion of medical knowledge and technology and the increasing bureaucracy can affect their ability to 'be all things to all people'.
But a GP and specialist that are interested in you as a person, who listen to you and not just use 'cookbook' medicine are gems to be revered. If one shares a similar sense of humour or appreciates each other's humour so much the better.

IMG_3086 (2).jpg
 
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