Neuropathy Garbage

Ponchu

Well-Known Member
Messages
292
I’ve had dramatic improvement in pain when I dropped to 20 carbs daily, at about the 30 day mark.

Jordan Peterson said “I could try anything for 30 days.”

I agree.

I’ve had untreated Type 2 for years so I’ve done some damage including tingling feet.

It’s almost not noticeable now -6 months in.

I don’t know if neuropathy is really reversible or not —

Yet I’ve read testimonies and have my own experience


I’m open to trying most anything that is sensible for 30 days.

After arthritis & torn rotator cuff, I had to give up playing guitar and was very limited in exercise.

I’ve gained weight on “low fat heart healthy” Eating.

How dramatic is the change?

I’m down to about 15% body fat and this week I did 10 pull ups and...

Played some Christmas fingerstyle tunes on the guitar.


Maybe?

Hang in there!
 
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Stephen Lewis

Well-Known Member
Messages
207
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Hypocrites, liars, donald trump (no capitals for emphasis)
Stephen - Have you ever been a smoker, and if you were, when did you stop?

Secondly, have you been taking ALA or R-ALA. I've not used it myself, but my understanding is the R-ALA is much more effective than straightforward ALA, and worth paying the premium for.

I think those who use it in the UK, often source it online, maybe even via Amazon, but don't quote me on that!.
I did smoke for many years but rarely more than 10 a day and stopped 9 years ago. I have been taking ALA but my pharmacy has either stopped getting it or cannot fins a supplier. It looks like I will have to go online and make sure I get the R-ALA. Does anyone have the name of a reputable supplier - I am always wary of online shopping.
Thanks Glenn for the carb suggestion. I will try to bring my amount down to 50 gms a day or less and try to get my BG down to the 5s.
I also read the research paper suggested by Indy51 and it looks as if continuous monitoring is the way to go and make sure I eat low GI foods to monitor and reduce the spikes.
I agree with NicoleC1971 that the nerve issue is more to do with the signalling which is why the pregabalin does help as it reduces the intensity of the signal in the brain which is interpreted as less pain.
Thanks everybody at least I now have some treatment ideas and objectives to provide motivation.
 
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ickihun

Master
Messages
13,698
Type of diabetes
Type 2
Treatment type
Insulin
Dislikes
Bullies
I have severe nerve pain in my feet and have to take pregabalin to help with sleep etc. The garbage is that this is supposed to be damage to the nerves that cannot be cured and/or damage to the capillaries. You may remember as a child that stopping blood flow to the feet caused pins and needles. The nerves were providing a warning that you needed to change your sitting position. In fact the main purpose of the nerves was originally to provide warnings of danger. Pregabalin may help the pain but it does not treat the cause - so typical of drug companies to treat symptoms as this keeps the money rolling in!

I even get more discomfort when there is a quick increase in air pressure. The nerves responding to increased pressure.

Does anyone know of a treatment that will help improve the blood flow except for high blood pressure tablets which did help a couple of years ago?
Try supplement R-ala up to 600mg daily but start on low dose first.
 

DCUKMod

Master
Staff Member
Messages
14,298
Type of diabetes
I reversed my Type 2
Treatment type
Diet only
I did smoke for many years but rarely more than 10 a day and stopped 9 years ago. I have been taking ALA but my pharmacy has either stopped getting it or cannot fins a supplier. It looks like I will have to go online and make sure I get the R-ALA. Does anyone have the name of a reputable supplier - I am always wary of online shopping.
Thanks Glenn for the carb suggestion. I will try to bring my amount down to 50 gms a day or less and try to get my BG down to the 5s.
I also read the research paper suggested by Indy51 and it looks as if continuous monitoring is the way to go and make sure I eat low GI foods to monitor and reduce the spikes.
I agree with NicoleC1971 that the nerve issue is more to do with the signalling which is why the pregabalin does help as it reduces the intensity of the signal in the brain which is interpreted as less pain.
Thanks everybody at least I now have some treatment ideas and objectives to provide motivation.

Stephen, as I said earlier, I haven't ever used R-ALA, but our friend, @Bluetit1802 uses it. Hopefully she'll indicate her supplier.

Well done on giving up pn smoking. You'll be hard pressed to do anything better for your overall health. It affects every part of us.
 

DaveXF

Well-Known Member
Messages
96
An interesting thread...
My pennyworth,
According to many sources, DN is not reversible...there are plenty of sites with no obvious links to big pharma which say this, so why would they spout this unless it is believed to be true?
Tonight, my feet are fizzing...the first time since Sunday.
However so is my back, my right elbow and left wrist.
My circulation is excellent ( dopplerntests today) and my BP is ok...not great but OK.
Each joint on each toe has hairs, so have a good blood supply and yet they still fizz.
 

Bluetit1802

Legend
Messages
25,216
Type of diabetes
Type 2 (in remission!)
Treatment type
Diet only
@Stephen Lewis

I buy Swansons R-ALA double strength. It is available on Amazon

https://www.amazon.co.uk/Swanson-Do...+Double+Strength+R-Fraction+Alpha+Lipoic+Acid

and also from
https://www.healthmonthly.co.uk/swanson_ultra_double_strength_r-fraction_alpha_lipoic_acid?search_string=Swanson Ultra Double Strength R-Fraction Alpha Lipoic Acid

I do know that Swansons products are available in most countries if you have a Google.

I think it is Germany, or somewhere on the continent that it is used by the medical profession to treat more severe neuropathy. In those cases large doses are given by infusion.
 

Antechinus

Well-Known Member
Messages
135
Type of diabetes
Don't have diabetes
Treatment type
I do not have diabetes
Don't smoke, have maybe 3 1/2 pints of pale ale a year, take vitamin B12, have lost 20 lbs in the past 6 months so BMI is good, my last 2 A1Cs were 6.0 and 6.3 and my 3 times daily bg is averaging 6.0 for the last month. The problem started 17 months ago when my so called specialist cut my Metformin dose in half and my A1C shot up to 11.3 in November 2017 and the pain started. Got worse on insulin from last February.
But I don't think the nerves are in any way damaged. They are hyper sensitive especially to pressure so are sending the full message plus some to the brain. Not sure why hypersensitive would be classed as damaged. Just need a cure not a symptom treating drug.

Extreme sensitivity to even the slightest touch is a known symptom of PN.
 

Antechinus

Well-Known Member
Messages
135
Type of diabetes
Don't have diabetes
Treatment type
I do not have diabetes
This has been an interesting thread and an interesting read. But I cant help but think maybe there is an element of treatment induced neuropathy, which is different from regular diabetic PN. Maybe someone with more knowledge about it may shed some information. Not a diagnosis; but your symptoms appeared when your meds got messed up, is that right?
 

DCUKMod

Master
Staff Member
Messages
14,298
Type of diabetes
I reversed my Type 2
Treatment type
Diet only
This has been an interesting thread and an interesting read. But I cant help but think maybe there is an element of treatment induced neuropathy, which is different from regular diabetic PN. Maybe someone with more knowledge about it may shed some information. Not a diagnosis; but your symptoms appeared when your meds got messed up, is that right?

Antechinus - Not specifically on this thread, but I do agree there are likely to be those who experience symptoms of peripheral neuropathy, or other things, like disrupted vision, actually when their bodies are in a state of repair, which can be a little down the road from diagnosis.

My take on the PN/extremities position is that there could, for some, have been a period of very slowly developing loss of sensation during what an off-line T2 friend of mine refers to as hos "damage years". During that time sensations diminish, and are not so likely to be noticed, on a day to day basis, whereas when tingling (which can be sign sensation is recovering) appears, it is definitely easier to notice.

For some, the tingle/discomfort/pain is a transient phase and unfortunately, for some it remains.

That is my purely personal take on it, from observations on this site, for some years.

Having only ever once experienced post operative neuropathy where I had some ribs scraped to remove a (thankfully benign) tumour. It was the most wearing pain, in it's consistency and persistency. Thankfully, careful dressing and (some!) patience has seen it virtually resolve itself in a couple of years.

For anyone stuck with that sort of pain; they have my absolute sympathy.
 

Joy nz

Member
Messages
9
I have Neuropathy in my feet. My doctor did not do any thing about my blood sugar levels for quite some time ,changed my doctor and he said that should never had happened,. on insulin and neuropathy is not pleasant when in bed .Have tried medication with no sucess but would love to try medical marajana oil but its not legal here.
 

Crocodile

Well-Known Member
Messages
683
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
I can't have it often
How long has your blood sugar been back in control. It really makes a difference but takes time. My neuropathy hardly bothers me at all now. Sugar control, R-ALA and tens together have all helped.
 
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Stephen Lewis

Well-Known Member
Messages
207
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Hypocrites, liars, donald trump (no capitals for emphasis)
I could even smoke marijuana in Canada but I suspect that will not help. I am continuing with my low carb diet that has really helped the glucose levels - A1c down to 6.9 from 9.5 last February. Earlier in this thread it was suggested using R-Alpha Lipoic Acid and my diabetic clinic said I could have up to 1800 mgs per day. This would have been very expensive at over $16 for 60 100 mg tablets. I am currently taking 3 x 400 mg per day that cost about $12 for 60. The increased dose is much more effective. The pain is less. I also try and keep my feet very warm as this helps to increase blood flow which hopefully will stop the nerves from reacting. The pregabalin seems to help but I may cut the quantity if the improvement from ALA continues.
BTW - my neuropathy got worse on insulin that I no longer take.
 

Crocodile

Well-Known Member
Messages
683
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
I can't have it often
I could even smoke marijuana in Canada but I suspect that will not help. I am continuing with my low carb diet that has really helped the glucose levels - A1c down to 6.9 from 9.5 last February. Earlier in this thread it was suggested using R-Alpha Lipoic Acid and my diabetic clinic said I could have up to 1800 mgs per day. This would have been very expensive at over $16 for 60 100 mg tablets. I am currently taking 3 x 400 mg per day that cost about $12 for 60. The increased dose is much more effective. The pain is less. I also try and keep my feet very warm as this helps to increase blood flow which hopefully will stop the nerves from reacting. The pregabalin seems to help but I may cut the quantity if the improvement from ALA continues.
BTW - my neuropathy got worse on insulin that I no longer take.
Do you think your A1c can come down further. I noticed much better improvement after a few months of A1c with a 5 in front of it. Hard work and vigilance but worth the effort.
 
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Stephen Lewis

Well-Known Member
Messages
207
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Hypocrites, liars, donald trump (no capitals for emphasis)
That's what I am working on. I can use the Freestyle Libre on and off (because of the cost and no coverage) so I am trying to get my A1cs closer to 5 by keeping my bg below about 7.5 at all times. The CGM helps me see if spikes are occurring and I can figure out what was the cause. Hoping for A1c below 6.0 in May and counting down. I do not want lift off!:)