Good news for Libre users, I think

[Robinredbreast]

No any diabetic on insulin can get it now T1, T2, T3, ect

I wish it was that simple, but it's not. I handed in my 2 week trial Libre today and I loved it, so helpful and beneficial with the trends and I hope I will get one of my own on June 27th.

Everything is down to cost nowadays and in this instance criteria does matter too, what establishments say and actually do, are entirely different matter's. If a person doesn't try to look after their diabetes at all, then why would they be given a Libre CGM ?

 

[MrCuddlyMoses]

Well the Policy may have changed but the bean counters are still in charge and it is still, at the moment, a post code lottery and that's according to my DSN I saw this week. ~sigh~

No you have to demand it as they can not say no as the government has given the money for all of us

 

[becca59]

No you have to demand it as they can not say no as the government has given the money for all of us

Afraid not! There are still criteria to meet. It is the same criteria countrywide but criteria nevertheless.

 

[MrCuddlyMoses]

Afraid not! There are still criteria to meet. It is the same criteria countrywide but criteria nevertheless.

Yes you have to be diabetic and on insulin only

 

[Rokaab]

No you have to demand it as they can not say no as the government has given the money for all of us

As various people have said, no unfortunately not, its not that simple.
From the NHS England web page here: https://www.england.nhs.uk/2019/03/...lucose-monitors-for-type-1-diabetes-patients/ (dated 7th March 2019)
It states:

From April, the NHS will provide the technology for one in five of those with type 1 diabetes in England. Those who qualify include:

• People with type 1 diabetes who need intensive monitoring (more than 8 times every day) as demonstrated in a review over the past 3 months.
• People with diabetes associated with Cystic Fibrosis on insulin.
• Pregnant women with Type 1 Diabetes for 12 months in total.
• People with Type 1 diabetes unable to routinely self-monitor blood glucose due to disability.
• People with Type 1 diabetes for whom the specialist diabetes MDT determines have occupational or psychosocial circumstances that warrant a 6-month trial of Libre with appropriate support.

Noting the bit that I've made bold - ie the bit that suggests only 1 in 5 (or 20%) will qualify.
Unless they have significantly updated this, in which case could you link the article that says so

 

[MrCuddlyMoses]

As various people have said, no unfortunately not, its not that simple.
From the NHS England web page here: https://www.england.nhs.uk/2019/03/...lucose-monitors-for-type-1-diabetes-patients/ (dated 7th March 2019)
It states:

Noting the bit that I've made bold - ie the bit that suggests only 1 in 5 (or 20%) will qualify.
Unless they have significantly updated this, in which case could you link the article that says so

Here is a link to provide what I have been saying

https://diabetestimes.co.uk/nhs-drug-tariff-approval-freestyle-libre-system/

 

[Robinredbreast]

I viewed the link and at the beginning it states ;-
The FreeStyle Libre System will be available on the NHS from November 1 subject to local health economy approval.

I was also interested in the comment's too, especially reading that other's have been on a 2 week trial too.

 

[MrCuddlyMoses]

@MrCuddlyMoses Indeed it would appear you are correct BUT at the top of the page is the following

The FreeStyle Libre System will be available on the NHS from November 1 subject to local health economy approval.

Note the bit underlined at the end.

So it still stands that your health authority has approved it but not all of them and many are still making many T1's jump through hoops to access them, the post code lottery is still around I'm afraid as my DSN can't get one from her health area.

However enjoy your Libre it should be be really good.

The original article that I read showed how much money each ccg was getting this year for freestyle libres to all type 1 and any diabetic will try and find the pdf article

 

[AndyGW]

Hmmm. Interesting. Feel there is still a lot down to how each CCG feels willing to fund and so the interpretation of the criteria. Been self-funding for 3 years and have review brought forward from end of June to 13th May so am hoping to know where I stand but from conversations with consultant and DN over recent weeks I’m feeling confident that I’ll be granted the prescription as there is a lot of support from the doctors in this area to ensure funding provided for more than 20%.

 

[MrCuddlyMoses]

The original article that I read showed how much money each ccg was getting this year for freestyle libres to all type 1 and any diabetic will try and find the pdf article

Here is the part of the document which is about what I have said

Annex A: Criteria for NHS England Flash Glucose Monitoring
Reimbursement
1. People with Type 1 diabetes
OR with any form of diabetes on hemodialysis and on insulin treatment
who, in either of the above, are clinically indicated as requiring intensive
monitoring >8 times daily, as demonstrated on a meter download/review over the
past 3 months

The link to the document is

https://www.england.nhs.uk/publicat...ts-for-funding-of-relevant-diabetes-patients/

 

[Rokaab]

And in that document it states:

4. Within the above context, the criteria set out at annex A have been developed. From 1 April 2019, for patients who satisfy these criteria, NHS England will reimburse CCGs for the ongoing costs of flash glucose sensors. These criteria are estimated to represent up to 20% of England’s type 1 diabetes population.

ie. about 20% of type 1's
Point 1 (that you quoted) requires the diabetic to test at least 8 times a day to qualify - which probably cuts out a lot of people

 

[AndyGW]

NHS will ‘fund’ CCGs for 20% of their type 1 population but there’s nothing preventing CCGs from agreeing to pay for more for their area other than how your local CCG prioritises this alongside their other budget constraints.

 

[Deleted Account]

Here is the part of the document which is about what I have said

Annex A: Criteria for NHS England Flash Glucose Monitoring
Reimbursement
1. People with Type 1 diabetes
OR with any form of diabetes on hemodialysis and on insulin treatment
who, in either of the above, are clinically indicated as requiring intensive
monitoring >8 times daily, as demonstrated on a meter download/review over the
past 3 months

The link to the document is

https://www.england.nhs.uk/publicat...ts-for-funding-of-relevant-diabetes-patients/

I notice the document you reference is described as “a guidance document” it is not policy.
As others have said, it is brillain’t that your CCG have chosen to implement it as policy but, alas, that is not the case in any other English CCG I have read about.
In addition, Appendix A of the document clearly states the criteria which has previously been discussed in this thread.

Please take care when starting “facts” when others have responded with their experience. It may lead to waste of time and expectations which cannot be met.

 

[AndyGW]

https://www.england.nhs.uk/wp-conte...toring-national-arrangements-funding-v1.1.pdf

 

[AndyGW]

Note point 8. CCGs may wish to agree to make Flash Glucose Monitoring available to additional groups of patients who are not covered within the national criteria

 

[MrCuddlyMoses]

The original article that I read showed how much money each ccg was getting this year for freestyle libres to all type 1 and any diabetic will try and find the pdf article

At the end of the day I am just telling type 2 on insulin to go to there Doctor and ask to get one, they might or might not, but if you don't ask you will never know will you

 

[Rokaab]

At the end of the day I am just telling type 2 on insulin to go to there Doctor and ask to get one, they might or might not, but if you don't ask you will never know will you

That is true, but just don't be surprised if you get a big fat no.

 

[MrCuddlyMoses]

That is true, but just don't be surprised if you get a big fat no.

I was lucky to get mine in Somerset

 

[Gemma2]

Self-funded for 3 years and now have prescription on NHS BUT only allowed one Sensor each script. GP said they were too expensive to write up more! Gobsmacked.

 

[evilclive]

Self-funded for 3 years and now have prescription on NHS BUT only allowed one Sensor each script. GP said they were too expensive to write up more! Gobsmacked.

Means you get to keep bothering them