@Bluetit1802 thanks for the tag.
@xfieldok I'm sorry to see that you have had your diagnosis confirmed I was hoping it wouldn't be I have had MG for about 17 years now. Was put on prednisolone at a lowish dose at first and mestinon but it's the preds that drive up weight I fear after a few years on ever increasing dose my weight eventually ballooned to about 18.5 stones I became a drug induced diabetic.
All sounds very depressing MG is bad enough to cope with without all that. And already having to cope with T2 big hugs for that.
But do not despair even though I still am taking prednisolone my weight is now about 11 stone and was lower a few months ago.
and my blood sugars are in the normal range, so it is possible to gain control but it is not easy I went on LCHF diet but I found I also had to limit my calories as well.
Over time that worked but you have to find a balance that suits you as an individual. So that you can limit your weight gain also remember that MG may reduce your muscularity and if on an extreme diet that can cause a loss of muscle mass as well you need to consult with your doctor and neurologist in this matter.
Preds will/can cause blood sugar to rise quite substantially and the only way I personally have been able to cope with that is by reducing carbohydrates I don't know what dosage you are on but I am now only taking 15 mg per day I have found taking them early in the day is best taking them later for me seems to make things worse and I never take them at night as not only can you wake with high fbg but preds can also cause insomnia if taken at night.
I was put on Azathioprine they can take between 6 months to a year to kick in but after 3 years taking them I have been taken off them as leukocytes went down to zero while on them there are however other meds they can prescribe but it seems I am stuck with preds Azathioprine is meant as a prednisolone sparing med for me that didn't work out.
Don't forget either that MG can be a very variable condition and with many people it can be controlled quite well and they can lead a normal or near normal life.
I wish you the very best of luck and hope your MG and Diabetes treat you kindly.
Hope this has been of some little help maybe when my brain starts working a bit better I may be of more help but MG gets worse as the day progresses and I have neglected to take my afternoon nap always recommended for MG as it helps conserve your acetylcholine.
