Thank you @Shar67! @eddie1968 , type 3c never occurs in isolation it is always part of a wider group of pancreatic problems that effect both the exocrine and endocrine systems due to the extensive damage (or death to the pancreas). In type 1, the beta cells are damaged/destroyed but in type 3c it is both the beta cells and the alpha cells (liver) that are involved meaning there is no 'safety net' hence the sudden rises and falls in blood sugars for no apparent reason. This is quite a good linkhttp://www.pancreapedia.org/reviews/pancreatogenic-type-3c-diabetes
You are quite correct-That's what I have myselfEmma, as far as I know Type 1.5 is officially an unofficial (?) term for A type of lada, which is latent autoimmune disease in adults, so a bit like type 1 occurring later in life - I'm sure a real type 1.5 on here can correct me!
I'm type 3c because my pancreas has atrophied and I have cirrhosis so my liver isn't in good shape either, they are treating it as type1 but I just have to inject one large dose every morning.As type 3c is a rare form of diabetes, and as we now have our own sub-forum, I'm curious to know how many of us are accessing the forum! So are you a member of the 3c club?? Sue xx
I must admit I think I should write a 'what is type 3c intro to this sub forum, I will try and get around to it in the next few days! Apologies!
(Unless you fancy having a go @Shar67 ??!)
Sue xxx
As type 3c is a rare form of diabetes, and as we now have our own sub-forum, I'm curious to know how many of us are accessing the forum! So are you a member of the 3c club?? Sue xx
The early days are the worst 'hang in' there Stephen it does get better. 10 years ago I had a total pancreatectomy, still find things hard at times but overall once you understand your body and its responses to the regime you will begin to cope better.Hello everyone,
I’m a newly enrolled member of the Type 3c Diabetes community having had my Pancreas, Gall Bladder and Spleen removed in February 2019. I had earlier had no inkling that I had a problem with my pancreas !!
After 17 days in hospital I have now been home for five weeks. The surgery went well and my Consultant is very pleased with my progress. I am struggling with getting my BG consistently under control and find it frustrating that so few of the medical community seem to understand that Type 3c is not exactly the same as Type 1. I am already being encouraged to change my insulin for the third time in five weeks and each time my readings go haywire.
I look forward to comparing notes with others in a similar condition.
Stephen
I’m a rare visitor to this forum (sorry), so hadn’t seen the T3 sub-forum before. I’ve struggled for years to properly describe my form of diabetes to medics/nurses, with so many not properly understanding the fundamental differences between T1 and T2, let alone anything else. If I start talking to them about T3, the eyes will really glaze over.
My “journey” into diabetes started with misdiagnosis/mistreatment of a gallstone. Two visits to A&E with severe abdominal pains resulted in discharge and “not heart attack; something gastric; see your GP” advice. The third time (blue lights, sirens etc.) was taken a little more seriously, but too late. I was in hospital for seven months, in intensive care for weeks and “technically” died a number of times from multiple organ failure. Major surgery to remove my gall bladder and various bits of necrotic tissue followed a while later.
In the midst of all the drama, leaking enzymes “digested” various internal structures including 96% of my pancreas and beta-cells. On hospital documentation, I’m identified as having “severe acute pancreatitis”. I no longer produce insulin or digestive enzymes, so I require injections (Novorapid and Lantus) and Creon tablets to keep things ticking over.
I’m not sure whether or not that qualifies me as a member of the T3c club.
Similar position to you in taking Creon as well as insulin. I feel your journey
With respect to Creon I'm finding if I sometimes forget to take it out I can get away with eating say a baguette filled sandwich without too many problems but on the other hand have heard some people can't eat anything at all without taking Creon.
How is it with you?
Similar position to you in taking Creon as well as insulin. I feel your journey
With respect to Creon I'm finding if I sometimes forget to take it out I can get away with eating say a baguette filled sandwich without too many problems but on the other hand have heard some people can't eat anything at all without taking Creon.
How is it with you?