- Messages
- 7
I have been a pump user for 6 years now.
I did all the training and learned to carb count properly, I am really good at it now and proud of that.
Before I was put on the insulin pump, my levels were horrendous. I spent 24 years of my life in and out of hospital with DKA and felt like death warmed up 80% of the time. I have about 40% vision left and have almost lost use of my legs from neuropathy.
Thing is, I moved away from the city centre 18 months ago and live in a small village. I can't drive, I can't get out and about alone but live alone. I don't know anybody near by. I suffer from depression and severe anxiety so will not travel with anyone I don't know.
There is a member of my diabetic care team that visits a surgery nearby frequently and after repeatedly explaining that I couldn't get to where the team I used to visit are based, they did let me see her on one of her visits.
Now they will not do this again and demand that I see them in the city centre. After many phone calls and missed appointments they have now told me that they will not allow me to order any more supplies for my pump. No batteries, no infusion sets, nothing.
I still have the pump and a few supplies left but they are also trying to get my GP to switch me to pens instead of the vials.
They are giving me a death sentence because I cannot get to them.
Should they not come to me???
That's what a diabetic nurse told me they should do at the hospital.
I have run out of professional contacts to discuss this with.
My control is now becoming worse.
I was told I'd benefit from CGM before they cut me off but that is not something I can get from my GP is it?
I am so confused.
I worked years paying my taxes and National Insurance and now because I live in a nicer part of the country instead of breathing the polluted city air, I have been left to rot.
I have even written to my local MP several times and been completely ignored.
I will not let my daughter (now 5) watch as I become more and more sick and live my life in a care home and hospitals in agony as my health deteriorates. I'm ashamed to say l will end it well before then but she shouldn't have to remember her daddy that way
I did all the training and learned to carb count properly, I am really good at it now and proud of that.
Before I was put on the insulin pump, my levels were horrendous. I spent 24 years of my life in and out of hospital with DKA and felt like death warmed up 80% of the time. I have about 40% vision left and have almost lost use of my legs from neuropathy.
Thing is, I moved away from the city centre 18 months ago and live in a small village. I can't drive, I can't get out and about alone but live alone. I don't know anybody near by. I suffer from depression and severe anxiety so will not travel with anyone I don't know.
There is a member of my diabetic care team that visits a surgery nearby frequently and after repeatedly explaining that I couldn't get to where the team I used to visit are based, they did let me see her on one of her visits.
Now they will not do this again and demand that I see them in the city centre. After many phone calls and missed appointments they have now told me that they will not allow me to order any more supplies for my pump. No batteries, no infusion sets, nothing.
I still have the pump and a few supplies left but they are also trying to get my GP to switch me to pens instead of the vials.
They are giving me a death sentence because I cannot get to them.
Should they not come to me???
That's what a diabetic nurse told me they should do at the hospital.
I have run out of professional contacts to discuss this with.
My control is now becoming worse.
I was told I'd benefit from CGM before they cut me off but that is not something I can get from my GP is it?
I am so confused.
I worked years paying my taxes and National Insurance and now because I live in a nicer part of the country instead of breathing the polluted city air, I have been left to rot.
I have even written to my local MP several times and been completely ignored.
I will not let my daughter (now 5) watch as I become more and more sick and live my life in a care home and hospitals in agony as my health deteriorates. I'm ashamed to say l will end it well before then but she shouldn't have to remember her daddy that way
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