- Messages
- 8
- Type of diabetes
- Type 1
- Treatment type
- Pump
Hi all.
I’ve had T1 for 20 years, I’m currently 46.
I’ve had problems with my stomach since I was a baby and after repeated visits to A&E with my parents they stopped as the doctor always said it was down to Colic.
At about 15 years of age I went on PPI (Omeprazole) and now on 80mg a day and still experiencing problems with sleep apnea and stomach contents emptying due to weak and dis-functioning muscles.
My Consultant wants to do op but I also have cardio myopathy and several breathing disorders and worried this is just the next step forward with no thought of anything else that could be affecting my ailments because ultimately Doctors are only concerned with what affects them and switch off to anything else.
When I was diagnosed with Gastroparesis 20 years ago it was 6 months after being diagnosed T1.
Gastroparesis takes a long time to do the damage it had, so was there a pre-existing condition that had been doing damage since childhood?
Problem is, it won’t get better and op is very risky. If only someone would sit down and actually listen to me and my history it might trigger a response to a new diagnosis and avoid op with new medication.
All my consultants (Rheumatology, Neurology, Gastrointestinal, sleep Neurologists) have no idea why I’m having all these problems and without mentioning them, there’s a lot and there serious. I suppose my point is that doctors need to get to know the patient personally and for people to talk. I was moved to one Hospital so all consultants can interact after mishaps here and there but after all that, I can usually mention my current consultant and they have no idea who they are and I have to prompt the doctors to look up results to guide him. As I’ve always said, you have to be well and alert when going into Hospital!
All my health team are caring and very nice people but please...just listen. People now have a lot of information at hand and if you have the time and your source is reputable you can sometimes guide and help the Doctors.
Thanks for reading and hopefully you agree.
I’ve had T1 for 20 years, I’m currently 46.
I’ve had problems with my stomach since I was a baby and after repeated visits to A&E with my parents they stopped as the doctor always said it was down to Colic.
At about 15 years of age I went on PPI (Omeprazole) and now on 80mg a day and still experiencing problems with sleep apnea and stomach contents emptying due to weak and dis-functioning muscles.
My Consultant wants to do op but I also have cardio myopathy and several breathing disorders and worried this is just the next step forward with no thought of anything else that could be affecting my ailments because ultimately Doctors are only concerned with what affects them and switch off to anything else.
When I was diagnosed with Gastroparesis 20 years ago it was 6 months after being diagnosed T1.
Gastroparesis takes a long time to do the damage it had, so was there a pre-existing condition that had been doing damage since childhood?
Problem is, it won’t get better and op is very risky. If only someone would sit down and actually listen to me and my history it might trigger a response to a new diagnosis and avoid op with new medication.
All my consultants (Rheumatology, Neurology, Gastrointestinal, sleep Neurologists) have no idea why I’m having all these problems and without mentioning them, there’s a lot and there serious. I suppose my point is that doctors need to get to know the patient personally and for people to talk. I was moved to one Hospital so all consultants can interact after mishaps here and there but after all that, I can usually mention my current consultant and they have no idea who they are and I have to prompt the doctors to look up results to guide him. As I’ve always said, you have to be well and alert when going into Hospital!
All my health team are caring and very nice people but please...just listen. People now have a lot of information at hand and if you have the time and your source is reputable you can sometimes guide and help the Doctors.
Thanks for reading and hopefully you agree.