Type 2 and Prostrate cancer...

[Kyambala]

gents have nothing personal to me to add, except respect for how you are dealing with the various stages.

BUT my dad did have this, so as a worried son i googled and became aware of the psa regime.
sure many of you know, but just in case, a good few or the skandi countries, don't action anything at first
instance..they practice a "watchful waiting"

a quick trawl and i found this 'active' surveillance'
https://www.medscape.com/viewarticle/870654

I can't make suggestions as to what way others must choose, i just leave it here for your perusal
and added information.

Dad was Dx in 2000, doctors could offer no immediate treatment to cure as was terminal
only treatment to assist...dad took estrogen patches, with the side effects of weight gain among others.
he was pretty mobile, always on the case mentally, but declined over the last year,
Lost him 2009. Much missed.

So even at a late stage, without hope, he lasted a good while with it.


@hankjam
best wishes for a successful choice of treatments
and one which bestows great benefits and limits to the side effects.

Good morning "ijraak"
At present I live in Northern Ireland and have found from the Internet that Belfast City Hospital has the highest success rate for Cancer in the UK.

BUT they seem to have a strict "age" priority of treatments. It goes something like this: Below 60 = loads of options; 60 - 70 = negotiable: above 70 - 80 limited to Hormone & Radiotherapy; over 80 = usually limited to watchful waiting.

They don't seem to expect many ment to live beyond 90, so 80 plus 10 years is 90.

Some men have been known to live for 20 years after treatment and I met a man in Kendal, Cumbria who is still alive 30 years after treatment. He is now in his 60.s

 

[lindisfel]

Sorry to hear about your Dad jjraak cancer is a swine. One needs to get to the best specialists.
I was forunate, I paid to see an expert in cancer treatment and travelled 200miles to see him and my doctor got his recommendations within two days and I therefore bypassed the local hospitals appaling treatment or I would be dead now.
best regards
Derek

gents have nothing personal to me to add, except respect for how you are dealing with the various stages.

BUT my dad did have this, so as a worried son i googled and became aware of the psa regime.
sure many of you know, but just in case, a good few or the skandi countries, don't action anything at first
instance..they practice a "watchful waiting"

a quick trawl and i found this 'active' surveillance'
https://www.medscape.com/viewarticle/870654

I can't make suggestions as to what way others must choose, i just leave it here for your perusal
and added information.

Dad was Dx in 2000, doctors could offer no immediate treatment to cure as was terminal
only treatment to assist...dad took estrogen patches, with the side effects of weight gain among others.
he was pretty mobile, always on the case mentally, but declined over the last year,
Lost him 2009. Much missed.

So even at a late stage, without hope, he lasted a good while with it.


@hankjam
best wishes for a successful choice of treatments
and one which bestows great benefits and limits to the side effects.

 

[lindisfel]

Radiotherapy is not too bad, sure you'll feel tired. Its more accurate now they use an gold implant to target the LINAC beam to the tumour.
You feel knacked with hormone therapy but my body hair didn't drop out. The implant in the stomach was a bit uncomfortable when given, I was off hormone therapy after three years and got my hormones back and it stopped the hot flushes that post menopausal women found funny.
As I quoted Mr Spock when my doctor gave me the Zoladex implant. It's life, Jim, but not as we know it!

My cousin wasn't put in remission by an op and then he had subsequent brachytherapy, he is now in nappies and still not in remission.

You cannot compare a low grade tumour with a tumour above a Gleason score of 6. Some cancers can jump from stg 1or 2 to stage 4.
Stage 3 tumours are on the verge of breaking out the capsule. My MRI showed an 8mm and 11mm tumor st3a stg3b.

I went to Newcastle and they were brilliant please don't risk no treatment with a high Gleason grade cancer.
I tried to help a friend locally diagnosed when I was, he was advised just to have hormone therapy and has been dead some years now.
It gave me no satisfaction when he rang me when terminal to say he wished he had listened to what I said.
It saddened me his life was thrown away because some hospitals believe we men are a black hole to throw money into.

Why do they do radiotherapy on women in their eighties with breast cancer when some hospitals don't offer radiotherapy to men?
D.

 

[hankjam]

Been sometime so due a bit of an update.
I decided to go for surgery and all in all it went better than I hoped for.
I was made redundant on 31-Aug-19 and that afternoon I got a call to say I would be going to surgery the following Wednesday, 04-Sep-19. In bright and early, 07:00 and got taken through 14:30... out of surgery at 20:30, longish.... there were some issues getting the catheter in. Don't remember anything about recovery. Sleep was mainly thanks to the pixies.
Sick at breakfast so got a huge shot of something.
Good to go home 18:00.
Nearly burst the urine bag overnight... it was popping large.
Next three weeks were slow, but mostly good. UTI at the end of it once catheter was taken out.
IC and pelvic floors were good and stopped pads around christmas time. Sleeping a whole lot better.
First review at start of November, PSA undetectable. Gleeson 7, c cells on the margin....
Second review at start of February, PSA undetectable.

Blood glucose: all over the shop. Average mid 6.0's which was high for me. Put 8 kgs, so last week reduced intake to lose weight.
Started swimming and putting in the lengths.
Values this week have been the 5's.

Apart from a lacking a job and sex drive I think I am doing a lot better than hoped/expected.

 

[KK123]

Hi @hankjam, good to hear you are on the road to recovery, well done & welcome back. x

 

[Kyambala]

Been sometime so due a bit of an update.
I decided to go for surgery and all in all it went better than I hoped for.
I was made redundant on 31-Aug-19 and that afternoon I got a call to say I would be going to surgery the following Wednesday, 04-Sep-19. In bright and early, 07:00 and got taken through 14:30... out of surgery at 20:30, longish.... there were some issues getting the catheter in. Don't remember anything about recovery. Sleep was mainly thanks to the pixies.
Sick at breakfast so got a huge shot of something.
Good to go home 18:00.
Nearly burst the urine bag overnight... it was popping large.
Next three weeks were slow, but mostly good. UTI at the end of it once catheter was taken out.
IC and pelvic floors were good and stopped pads around christmas time. Sleeping a whole lot better.
First review at start of November, PSA undetectable. Gleeson 7, c cells on the margin....
Second review at start of February, PSA undetectable.

Blood glucose: all over the shop. Average mid 6.0's which was high for me. Put 8 kgs, so last week reduced intake to lose weight.
Started swimming and putting in the lengths.
Values this week have been the 5's.

Apart from a lacking a job and sex drive I think I am doing a lot better than hoped/expected.

Good evening Hankjam,

Congratulations on having made your decision - my PSA is now down to 2.85 2 months ago. Due another PSA test about end of March. Still lacking stamina and strength. Never needed diaper/nappie but still up twice in the night to urinate. I am now 78 so don't really expect to be a "Charles Atlas".

BG back to 5's except when I catch a cold. Had a bad cold & cough since 1st January until recently.

Decided to have a new Bathroom & Kitchen so that if I "pass away" at least my wife will have a nice home.

Hope you make a full recovery soon.

 

[hankjam]

Good evening Hankjam,

Congratulations on having made your decision - my PSA is now down to 2.85 2 months ago. Due another PSA test about end of March. Still lacking stamina and strength. Never needed diaper/nappie but still up twice in the night to urinate. I am now 78 so don't really expect to be a "Charles Atlas".

BG back to 5's except when I catch a cold. Had a bad cold & cough since 1st January until recently.

Decided to have a new Bathroom & Kitchen so that if I "pass away" at least my wife will have a nice home.

Hope you make a full recovery soon.

Good evening @Kyambala
I probably didn't have the most informed discussions about treatments. The surgeon was not a great communicator but the oncologist really did an awful job selling radio HT treatments. At the same time I was batting between Scotland and France as my job was getting transferred. I got the results of my biopsies in the back of French taxi with three work chums..

Glad to hear your PSA is falling though the broken sleep must be hard. Sorry to hear about the cough. This virus is the last thing we need.

A nice home is a good thing.

Best wishes to your wife and you.

Hj