My T2D is a result of a big problem ? believe or not believe?

Khaled1972

Active Member
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Hello everyone here from Roubaix ( north of France )

I'm writing to you these lines hoping that you'll read them with a lot of interest, also to find someone in Britain who could scientifically listen and analyze (scientist, expert, specialist) because I failed to find this person in my area.

I discovered my T2D in 19-01-2018 after doing a blood test but this is not the case, I've discovered after /2/ months in the next blood test that my Parathyroid hormone level ( PTH ) was pretty high :

135 pg/ml ( normal limits according to lab here are between 15-65 pg/ml )

Also my vitamin D3 level was : 7 ng/ml ( high shortage )

The endocrinologist here considered that this a normal vitamin D shortage and can be corrected by taking daily dose of it, but in spite of rising vitamin D level the PTH level remained high ( it decreased to 90 pg/ml ).

In July 07- 2019 I visited a nephrologist to check a strange pain in my kidneys area and he directed this question to me : Did the endocrinologist give you an order to do a Parathyroid scintigraphy exam ? I said : No, then he gave me a paper to do it.

I did the exam and the radiologist discovered a big adenoma in the right side of my neck, the enlarged gland is madly secreting PTH and doing all this chaos in my body (it's causing to me a difficulty in swallowing now and throat inflammation).

I showed the scintigraphy result to the endocrinologist but he did not tell me what to do ( just continuing your vitamin D dose and keep watching PTH and vitamin D levels through blood test !!!!! ( he did not speak about surgery and getting rid of problematic adenoma )

I deemed that I surely should change this endocrinologist who leave his patients in a miserable situation.

But here are what I have discovered at least in my family :

My late father and my elder brother were both suffering of primary hyperparathyroidism accompanied with blood elevated calcium levels and both of them are T2 diabetics !!!!

I asked myself : Had what happened to me was by accident ?????

The answer is : Big no

Let me explain to you the whole image of problem ( with supported studies) :

The hypercalcemia ( which is resulted by primary hyperparathyroidism ) is absolutely responsible for rising serum calcium level and re-deposition this calcium in a different parts of body, and one of these organs that are exposed to this calcium deposition is : Pancreas ( the accumulated serum calcium inside pancreas block the poor organ from secreting insulin and other necessary enzymes as usual and normally !!!! yes this is the truth and here's the study that prove that taking calcium supplement ( which is totally equivalent to hypercalcemia condition ) could lead to T2D : http://www.diabetesincontrol.com/calcium-concentration-tied-to-diabetes/

Also hypercalcemia lead to pancreatitis and T2D : https://www.acc.org/latest-in-cardi...calcium-in-the-development-of-type-2-diabetes

In brief : The high serum calcium is responsible for blocking Pancreatic capillary tubes inside my pancreas….yes this the tragic painful fact and I'm still suffering from my primary hyperthyroidism and no one is listening to me here in France…please can I find someone who transfer these information to real smart specialist in the UK through this forum ?

Thank you
 
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Diakat

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@Khaled1972
Unfortunately we cannot share your results with a UK-based specialist as this is not how the UK health system works.
 

Khaled1972

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@Khaled1972
Unfortunately we cannot share your results with a UK-based specialist as this is not how the UK health system works.
Please I'm speaking what I've personally experienced of relationship between hyperparathyroidism and T2D specailly in my family have you well read what I want to say ?
 

MeiChanski

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Hello, sorry to heard about your experience, I hope someone with type 2 diabetes and thyroid issues can share their experience. But unfortunately with the medical side of things we cannot comment, I hope you find another specialist to help you.
 

HSSS

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The problem isn’t that we haven’t read your message or don’t sympathise. In the uk we don’t transfer information directly to a specialist as that isn’t how health care works here and we certainly are not able to through the forum. Can you arrange to see a different endocrinologist in France and present your well researched information for a second opinion?
 

Khaled1972

Active Member
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38
The problem isn’t that we haven’t read your message or don’t sympathise. In the uk we don’t transfer information directly to a specialist as that isn’t how health care works here and we certainly are not able to through the forum. Can you arrange to see a different endocrinologist in France and present your well researched information for a second opinion?
Believe me you would laugh if I told you now in France : it's very rare to find a specialist nowadays who listen and analyze in a scientific way believe or not believe ? my message to you people in the UK is : check out your PTH level becuase it's probably someone is suffering from T2D because of hyperparathyroidism and hypercalcemia.
 

Daibell

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Hi. One side issue with regard to kidney problems and Vitamin D. My wife has stage 4 CKD and her nephrologist said that normal Vit D tablets won't work. He has prescribed a specific drug that increases Vit D thru another mechanism. This information may be completely irrelevant for you but just in case.
 

Seacrow

Well-Known Member
Messages
496
Type of diabetes
LADA
Hi, I too have hyperparathyroidism and am insulin resistant. Fortunately for me, the adenoma causing the problem is too small to be seen, and also too small to cause extreme hypercalcaemia. My endocrinologist told me that I had to keep watch on the Vit D and Ca blood levels, since high calcium levels would damage my pancreas. I already have a milk-cyst, or calcium filled cyst in my kidneys.

Certainly my endocrinologist and diabetologist already know the interaction between calcium levels and pancreatic/metabolic function, and they both (and their departments) look for this in their patients. Either the system is very different in France, or you have been assigned a poor/lazy endocrinologist.

Can you go back to your endocrinologist and say this is causing me day-to-day problems and I want it fixing?
 
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Khaled1972

Active Member
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38
Hi, I too have hyperparathyroidism and am insulin resistant. Fortunately for me, the adenoma causing the problem is too small to be seen, and also too small to cause extreme hypercalcaemia. My endocrinologist told me that I had to keep watch on the Vit D and Ca blood levels, since high calcium levels would damage my pancreas. I already have a milk-cyst, or calcium filled cyst in my kidneys.

Certainly my endocrinologist and diabetologist already know the interaction between calcium levels and pancreatic/metabolic function, and they both (and their departments) look for this in their patients. Either the system is very different in France, or you have been assigned a poor/lazy endocrinologist.

Can you go back to your endocrinologist and say this is causing me day-to-day problems and I want it fixing?
Hi to you, what you have told now a big clue supports the catastrophic relationship between hyperparathyroidism and T2D because of accumulated calcium inside pancreas, by the way the problem with enocrinologists that they are neglecting this problem as much as they do saying : This is just a small adenoma and has no effect ! ok listen carefully to this : Do you know that keeping this small parathyroid adenoma madly secreting its hormone like this will lead to kidneys stones formation and general fatigue and will worsen your T2D more and more ? do you know that ? you should read about hyperparathyroidism side effects from the leader surgeon and endocrinologist Prof. James Norman : https://www.parathyroid.com/
Another important point to tell : have you made a scan for pancreas to check out its functionality ? if not then you should do it ( also to check calcium level inside your pancreas), it's very important in case of hyperparathyroidism and hypercalcemia
 
Last edited:

Seacrow

Well-Known Member
Messages
496
Type of diabetes
LADA
Hi to you, what you have told now a big clue supports the catastrophic relationship between hyperparathyroidism and T2D because of accumulated calcium inside pancreas, by the way the problem with enocrinologists that they are neglecting this problem as much as they do saying : This is just a small adenoma and has no effect ! ok listen carefully to this : Do you know that keeping this small parathyroid adenoma madly secreting its hormone like this will lead to kidneys stones formation and general fatigue and will worsen your T2D more and more ? do you know that ? you should read about hyperparathyroidism side effects from the leader surgeon and endocrinologist Prof. James Norman : https://www.parathyroid.com/
Another important point to tell : have you made a scan for pancreas to check out its functionality ? if not then you should do it ( also to check calcium level inside your pancreas), it's very important in case of hyperparathyroidism and hypercalcemia

Yes, I have kidney stones already. I have had many, many scans because my endocrinologist would really like to remove the adenoma. But they can't find it. At this point they are telling me it is less than 0.5 mm or would have been seen. Without knowing where it is, the only way to remove it is to remove the parathyroid, and that would cause worse problems than the adenoma.

Right now I have calcium levels slightly too high (so no dairy food) and Vit D on the low side. Scans of pancreas and kidneys show calcium is no longer building up, although what is there is not going away. Bone density scans show no problems. I'm pretty much 'on hold' until the adenoma is big enough to be seen, or bigger problems occur.

My point is, my endocrinologist is pretty well aware of the problem and my options. I agree with him, that at this time, my best option is to go on monitoring what's happening.

Thank you for your concern though. I must just be lucky that my adenoma is tiny, unlike yours.