Hi everybody,
The last have been full of fear and dread for us. The latest diabetes check up showed high levels of albumines and proteins in the urine. My son was diagnosed in 2017 and we have managed quite well, his HbA1c tests were in 5-5,9% range, only the last one from September is 6,4%. He is 13 and lately his growth hormones have been messing with the numbers. The slight increase of proteins in the urine was first noticed 6 months ago and doctors said we should just monitor, but now they have become quite high. They have referred us to the nephrologist, and we are currently waiting for the appointment and additional tests. His endocrinologist shared the urine test results with the nephrologist on the Whatsapp, who said that it is not to worry about, but I guess she said that to calm us parents down a bit, until all the tests are done. They don't see it as urgent and I don't understand it. My husband is a doctor, a pediatrician himself and is quite worried as well. My husband also suggested thatwe should check his blood pressure and we are doing that for a few days now. Last nigh it was 130/85... so another thing.
Needles to say that we are going crazy with thoughts of kidney damage at such young age and the grim perspective and seriousness of the illness. We have just settled down a little with the diabetes and now this... Maybe just to say that the quantity of urine he gave for testing was very small, and that precisely those few weeks his sugars were running wild.
I don't know exactly what I am looking for, maybe some of your experiences with similar matter, maybe a bit of reassurance and courage, any feedback would be appreciated....We are going crazy waiting for that appointment and dreading of the outcome. It is hard to stay positive and keep smiling face in front of our son.
Thank you for reading. Any advise, a though or an idea would mean a lot to us right now.
Natt
The last have been full of fear and dread for us. The latest diabetes check up showed high levels of albumines and proteins in the urine. My son was diagnosed in 2017 and we have managed quite well, his HbA1c tests were in 5-5,9% range, only the last one from September is 6,4%. He is 13 and lately his growth hormones have been messing with the numbers. The slight increase of proteins in the urine was first noticed 6 months ago and doctors said we should just monitor, but now they have become quite high. They have referred us to the nephrologist, and we are currently waiting for the appointment and additional tests. His endocrinologist shared the urine test results with the nephrologist on the Whatsapp, who said that it is not to worry about, but I guess she said that to calm us parents down a bit, until all the tests are done. They don't see it as urgent and I don't understand it. My husband is a doctor, a pediatrician himself and is quite worried as well. My husband also suggested thatwe should check his blood pressure and we are doing that for a few days now. Last nigh it was 130/85... so another thing.
Needles to say that we are going crazy with thoughts of kidney damage at such young age and the grim perspective and seriousness of the illness. We have just settled down a little with the diabetes and now this... Maybe just to say that the quantity of urine he gave for testing was very small, and that precisely those few weeks his sugars were running wild.
I don't know exactly what I am looking for, maybe some of your experiences with similar matter, maybe a bit of reassurance and courage, any feedback would be appreciated....We are going crazy waiting for that appointment and dreading of the outcome. It is hard to stay positive and keep smiling face in front of our son.
Thank you for reading. Any advise, a though or an idea would mean a lot to us right now.
Natt