What if I'm not a Type 1 Diabetic???

DCUKMod

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Thanks everybody! Reading all of your comments has been really interesting. In my mind, I am not a diabetic and I have always felt that way!

Do you think I have a case if I was to sue the hospital for their negligence considering I was only a child at the time?

I was diagnosed in 1996 and chances are they did no checks at that time to see whether there was a possibility of me being Type 2. I see a reflexologist and she asked me, do you know your pancreas is working and still producing insulin?' How amazing is that after being diabetic for 24 years of my life?!

I genuinely believe every person out there should be offered the tests to see what type they are...

Also, I have only lost half a stone and am shocked that I can go from 22 units of Lantus to not being able to cope with 6 or 7 units! It makes me question everything.

Also wondering if any pregnant women have been on Tresiba or a different background insulin.

I would suggest you have zero chance of suing whomever you feel was neglectful of your care. As I understand it, negligence cases mustn't have begun, at the latest, by 3 years after the negligent act, or 3 years after you became aware of the negligence.

By started that means started court proceedings, so you're a bit beyond that.
 

Jaylee

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Thanks everybody! Reading all of your comments has been really interesting. In my mind, I am not a diabetic and I have always felt that way!

Do you think I have a case if I was to sue the hospital for their negligence considering I was only a child at the time?

I was diagnosed in 1996 and chances are they did no checks at that time to see whether there was a possibility of me being Type 2. I see a reflexologist and she asked me, do you know your pancreas is working and still producing insulin?' How amazing is that after being diabetic for 24 years of my life?!

I genuinely believe every person out there should be offered the tests to see what type they are...

Also, I have only lost half a stone and am shocked that I can go from 22 units of Lantus to not being able to cope with 6 or 7 units! It makes me question everything.

Also wondering if any pregnant women have been on Tresiba or a different background insulin.

Hi,

Though reflexology as an alternative, complimentary treatment can help with emotional wellbeing.
I would be wary of the bold claim made by your reflexology practitioner..
There is no known hard scientific evidence to back up the effectiveness of this form of treatment.

Glucophage is a metformin. It works by increasing insulin sensitivity & retarding liver dumps of glucose into the blood.

Consult your doctor. Or find one you are more confident with..

Best wishes.
 
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Shannon27

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Not having a dig. If it works for you then amazing, we are all so very different, which is a good thing in my eyes
I'm a skeptic with reflexology too, but then i've never tried it so who knows? Without being crude, we all know that stimulation of certain areas of the body can trigger hormone release. At the end of the day, insulin is a hormone. Something to think about :)
But again, no reflexologist is qualified to say whether your pancreas is producing any/enough insulin unless they are also a diabetes specialist and can perform tests to back it up. So i wouldn't put too much faith in that answer!
 

slayer

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Not having a dig. If it works for you then amazing, we are all so very different, which is a good thing in my eyes
She said she can help balance my hormones and prevent a miscarriage as I have suffered recurrent losses. If I have a successful pregnancy with her, she can have my liver, kidneys, heart and half working pancreas - not just my feet!
 
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slayer

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I would suggest you have zero chance of suing whomever you feel was neglectful of your care. As I understand it, negligence cases mustn't have begun, at the latest, by 3 years after the negligent act, or 3 years after you became aware of the negligence.

By started that means started court proceedings, so you're a bit beyond that.
I was a child so would not have been able to sue...
 

slayer

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I'm a skeptic with reflexology too, but then i've never tried it so who knows? Without being crude, we all know that stimulation of certain areas of the body can trigger hormone release. At the end of the day, insulin is a hormone. Something to think about :)
But again, no reflexologist is qualified to say whether your pancreas is producing any/enough insulin unless they are also a diabetes specialist and can perform tests to back it up. So i wouldn't put too much faith in that answer!
Doesn't explain why with no basal rate my blood sugar is still 5 or 6???
 

Shannon27

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Doesn't explain why with no basal rate my blood sugar is still 5 or 6???
Isn't 5 or 6 the ideal? And you said in your main post you were on 7units of basal? No one here will be able or qualified to explain it accurately for you until you get some proper tests done, like a lot of people have suggested :)
 

porl69

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@slayer I think you should be asking your GP and or Endo to be doing a c-peptide test ASAP for you

I do hope you have a trouble free pregnancy
 

Jaylee

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Doesn't explain why with no basal rate my blood sugar is still 5 or 6???

IOB from the apidra? Just like my Novorapid it says it can work up to 4 hours. However I've noticed a little kick in the tail nearly 5 hours later..?
& of course I'm not prescribed metformin.
 

Jaylee

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She said she can help balance my hormones and prevent a miscarriage as I have suffered recurrent losses. If I have a successful pregnancy with her, she can have my liver, kidneys, heart and half working pancreas - not just my feet!

I'm so sorry for your losses.
But again. Your reflexologist seems to have made some bold unsubstantiated claims.

You're going to have to forgive me for feeling & expressing a concern that your alternative therapy practitioner could be taking advantage of certain vulnerabilities with clients..
 
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Guys, this question has been troubling me all week. Let me give you some context: I was diagnosed with Type 1 Diabetes at the age of 12. My diabetes was caused by a steroid I was given by the children's hospital - Ive always felt my parents should have sued.

I am now in my late 30s and have been on an insulin pump. I made the decision to come off it last week as I am gaining too much weight. I have been taking apidra as my bolus insulin and have gone low carb so my sugars have been okay. However, my basal insulin is Lantus and I used to take 22 units of it a day. I have now been taking 7 units in the evening and my blood sugars are dropping at night! I also take two glucophage mainly for PCOS.

Now my concern is I have heard it is dangerous to stop basal insulin but if I am dropping what choice do I have? Also, what if they got it wrong in 1996 and I am actually a Type 2 diabetic as I feel my pancreas is making insulin and my aunt injected herself for 17 years and then the doctors said oh sorry, we made a mistake, you are actually Type 2.

Please give me some advice as my healthcare provider is useless and I am self medicating.

Hi Slayer, sorry to read of your worries and anxiety. As you were diagnosed in 1996, age just 12, I would say type 1 is the the more likely diagnosis.
Our bodies can change over the years and management and medication can change too. Sometimes adults are misdiagnosed, I don't what age your aunt was at diagnosis, if an adult, it could of been Lada.
You really could do with help and support, so keep on at them to listen to you and re- test you, because of your concerns..
I wish you good luck and I hope you will find an answer.
Take care.
 

hh1

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@slayer, ho wlong have you been taking glucophage? Does that coincide with the dropin basal? You also say you're taking apidra, so just checking that you still take that to deal with whatever carbs you do take on, and possibly protein?
 
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slayer

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Type 1
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Insulin
@slayer, ho wlong have you been taking glucophage? Does that coincide with the dropin basal? You also say you're taking apidra, so just checking that you still take that to deal with whatever carbs you do take on, and possibly protein?
Yes, I take the apidra with carb counting. I started the glucopage a few weeks ago.
 

hh1

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Yes, I take the apidra with carb counting. I started the glucopage a few weeks ago.
Okay, I'm no expert on T2 but I do know that some T2s at some point need insulin; it's just much more common for T1s to need it. And I wonder then if it's the glucophage which has reduced your Lantus requirement? Worth checking with a DNS or diabetes consultant. I think you said you're not happy with your GP - worth looking at this on this site: https://www.diabetes.co.uk/nhs/diabetes-and-your-doctor.html especially with regard to seeing a consultant if you want to. Good luck!
 

Marie 2

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Sometimes people that get diabetes from steroids recover or their pancreas periodically decides to still try off and on. The only way to know is get a c-peptide test to know how much insulin you are making at the moment.

Adding Glucophage, going low carb, upping your exercise, these are all things that can drop your insulin requirements.
 
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