Any type 2 severely insulin resistant people here?

[lcarter]

Just want someone to talk to who may know how i feel x

 

[HSSS]

How do you define severely resistant? It’s hard to know whether someone is in that category without a bit more info. By definition most type 2 are to some extent resistant

 

[ert]

There's a formula that measures insulin resistance. HOMA-IR was calculated according to the formula: fasting insulin (microU/L) x fasting glucose (nmol/L)/22.5. Normal is between 0.5-1.4. Values over 1.9 indicate insulin resistance, and the higher, the more resistant. My last IR by my specialist was 0.5. I'm on really low doses of insulin.

 

[HSSS]

There's a formula that measures insulin resistance. HOMA-IR was calculated according to the formula: fasting insulin (microU/L) x fasting glucose (nmol/L)/22.5. Normal is between 0.5-1.4. Values over 1.9 indicate insulin resistance, and the higher, the more resistant. My last IR by my specialist was 0.5. I'm on really low doses of insulin.

In reality hardly any type 2 in the U.K. will have access to insulin testing and those that do will have had it privately. So most of us just won’t know by that criteria.

 

[BrianTheElder]

Thanks @ert, just calculated mine as 1.96 from your formula, which I would say was about right, ie just over, but not severe.

 

[ert]

Thanks @ert, just calculated mine as 1.96 from your formula, which I would say was about right, ie just over, but not severe.

I had a new specialist the last appointment who didn't care much about HOMA-IR. He said they could see I wasn't IR because of the low doses of insulin I was on. I do like the formula myself as I tried to convince myself I was thin type 2 before seeing the IR calculation. It's just another piece of the puzzle for me.

 

[Hotpepper20000]

I haven’t been tested, but I have PCOS and that comes with insulin resistance.
I lost 60 pounds eating LCHF and still have some to lose. However, I have had A1C in non diabetic range for 3 years.

 

[Member496333]

@lcarter when I first started my journey I couldn't even think about food without spiking. Nothing seemed to work. I became suspicious of everything. Not eating made it worse. Eating made it worse. Everything made it worse. Food became the enemy. I resented weighing morsels and negotiating with meals. I was spiralling into depression and couldn't see a way out. Insulin resistant is an understatement.

After one year of this I then declared war on carbohydrate and adopted a fully-ketogenic, whole foods diet that eliminated grains and seed oils. I won that war. Last year I scored a 0.3 HOMA-IR and I now love everything I eat. Diabetes is pretty much on the back burner these days. I don't have to worry about it. But to ensure things stay that way, I maintain a laser focus on optimal health & nutrition. Point being, even if you think it's all over and you're going downhill fast, there are ways and means to turn the tables in your favour and come out of it smiling.

 

[lcarter]

My levels are between 12 and 28 most days. If I even look at food they soar.

I was diagnosed at type 1 for 11 years, on 100 units of insulin a day and my levels were still 20 plus.

I've been diagnosed as type 2, and tested for cushings and genetics. I have the dark Mark's on my skin that indicate insulin resistance according to my nurse.

I'm on jardiance 25mg and metformin 2mg a day and they are now discussing an insulin plan despite taking me off it in dec.

Does that help?

 

[lcarter]

@lcarter when I first started my journey I couldn't even think about food without spiking. Nothing seemed to work. I became suspicious of everything. Not eating made it worse. Eating made it worse. Everything made it worse. Food became the enemy. I resented weighing morsels and negotiating with meals. I was spiralling into depression and couldn't see a way out. Insulin resistant is an understatement.

After one year of this I then declared war on carbohydrate and adopted a fully-ketogenic, whole foods diet that eliminated grains and seed oils. I won that war. Last year I scored a 0.3 HOMA-IR and I now love everything I eat. Diabetes is pretty much on the back burner these days. I don't have to worry about it. But to ensure things stay that way, I maintain a laser focus on optimal health & nutrition. Point being, even if you think it's all over and you're going downhill fast, there are ways and means to turn the tables in your favour and come out of it smiling.

I tried keto and ended up in a&e as was on jardiance and they thought I had ketoacidosis, which I didn't. I felt terrible though. They have none stopped messed about and I'm at my wits end. Ibe just injected some insulin I've got left over very to see if it helps. I'm just so tired.

 

[Member496333]

I tried keto and ended up in a&e as was on jardiance and they thought I had ketoacidosis, which I didn't. I felt terrible though. They have none stopped messed about and I'm at my wits end. Ibe just injected some insulin I've got left over very to see if it helps. I'm just so tired.

Yeah I remember your thread. I wasn't prescribing a course of action, just trying to give you some hope. Sometimes it seems like all is lost, and then you find what works for you. Best wishes.

 

[lcarter]

Yeah I remember your thread. I wasn't prescribing a course of action, just trying to give you some hope. Sometimes it seems like all is lost, and then you find what works for you. Best wishes.

I know, thank you I appreciate it x

 

[Flora123]

There's a formula that measures insulin resistance. HOMA-IR was calculated according to the formula: fasting insulin (microU/L) x fasting glucose (nmol/L)/22.5. Normal is between 0.5-1.4. Values over 1.9 indicate insulin resistance, and the higher, the more resistant. My last IR by my specialist was 0.5. I'm on really low doses of insulin.

So I must be in a bad way!

This was last year and that works out as 5.1! Is that correct?

 

[Member496333]

This was last year and that works out as 5.1! Is that correct?

No. That's around 0.9 HOMA-IR.

https://www.mdcalc.com/homa-ir-homeostatic-model-assessment-insulin-resistance

 

[bulkbiker]

No. That's around 0.9 HOMA-IR.

https://www.mdcalc.com/homa-ir-homeostatic-model-assessment-insulin-resistance

Isn't the 0.84 the IR number? Looks like medichecks results..

 

[Flora123]

Isn't the 0.84 the IR number? Looks like medichecks results..

It is Medichecks but I was going by the comment above by multiplying fasting insulin by fasting glucose.

 

[Member496333]

Isn't the 0.84 the IR number? Looks like medichecks results..

It is indeed.

 

[bulkbiker]

It is Medichecks but I was going by the comment above by multiplying fasting insulin by fasting glucose.

Then your HOMA IR number is stated on the results as 0.84 isn't it which is great.
You don't multiply the two together to get the number.

 

[Flora123]

It is indeed.

Your link Jim is really helpful. Thank you.

 

[Brunneria]

I class myself as severely insulin resistant.
My last HOMA IR (which was also my first) was 4, I think. Which is in the 'normal' range. Except that there is nothing 'normal' about being only able to achieve that number by eating carnivore with a smidge of 70% choc.

If I ate anything like a moderate to high carbohydrate level, then my insulin levels and insulin resistance would rise hugely.
I cannot imagine eating the amount of carbs you describe @lcarter
I would feel so ill, and my blood glucose would just rise and rise until I was consistently in diabetic levels.
It is only by keeping my carbs minimal that I keep off that upward spiral, complete with the heavy limbs, misery and lack of energy that come with it.

A member who I can recall mentioning that they consider themselves SIRD (severe insulin resistant diabetes) is @AloeSvea