I went to my outpatients appointment yesterday, to get the results of my CT and I hoped discuss my future management. I had read the NICE guidelines,
https://www.nice.org.uk/guidance/ng104/chapter/recommendations#pseudocysts-2
so I have some idea what should be done. It was quite obvious that as far as they were concerned, they have treated the pancreatitis, so job done, once they take my gall bladder out and the doctor I spoke to had no idea about the futher problems I could have. This is a big teaching hospital.
Its says in the guidelines how 3c should be treated so if the GP says your Type 2, print it off.
https://www.nice.org.uk/guidance/ng104/chapter/recommendations#type-3c-diabetes-2
What has shocked me the most, is I have been given no advice on diet what so ever, and that is asking a dietician what I should eat, several times,' just eat what I want'. No leaflets, no support groups, the hpb specialist nurses never saw me on the ward, apparently they concentrate on cancer patients, so people with pancreatitis are not seen unless its caused by tumours, and I was in five weeks. The doctor said to me yesterday, 'you have to put your self in our hands', to which I laughed and said not likely, and that I want to know as much as possible. Scary because it was a youngish doctor and usually it the older ones that have that sort of attitude, that's surgeons for you.
So he is going to refer me to the diabetic specialist nurse for my area and hopefully referal to an endocrinologist. I think the thing I am most worried about is my bloods not being monitered, and the reluctance of GP's to start insulin if its needed