- Messages
- 112
I'm going through a hard time at the moment with my diabetes care. My sugars are up and down all the time. I did a DAFNE course and it was good but my sugars didn't come into balance during the course and I was told repeatedly it would some time after. I used to cook a lot of my own meals so had to stop that as the carb counting was so difficult to do. I switched to a lot of ready meals with vegetables as the carb count was easier to deduce. Then my team changed my ratio, and I got all muddled and confused.
I spoke to my GP, and told them my concerns, and she actually agreed with me. So I switched to a new hospital for my diabetes care. However the new hospital is being problematic. I know Covid 19 has thrown a spanner in the works for everyone, and I am not being unrealistic with what they can do. However the diabetes nurse team are just not helping me. I have gone to them repeatedly with issues about my bloods being up and down, and they keep reassuring me tht I simply need to redo a DAFNE course next year when they are up and running. However, its just not working now and I really dont know what to do. Every suggestion I have made to them, they seem to reluctantly agree with and then don't follow up.
Recently I havent' been feeling 100% and not sure if its a bug or what, but my sugars are more up and down than normal and I telephoned them 3 times last week. They are yet to return my call. I had a telephone appointment with the nurses on Thursday morning (which was organised prior to these issues) and they telephoned in the afternoon (when I was at work).
I feel a bit like I'm fighting a losing battle and don't know whatg is the best thing to do. The hospital isn't giving me any proper help with the care of my diabetes and I'm worried if things remain the way they are I'm going to end up with complications. My GP is friendly and I could raise it with them, but I'm reluctant to as I don't want to end up worse off again, yet if I do nothing I am going to end up worse off. I used to have perfectly controlled diabetes and so the new regime I'm really struggling with and its having an impact on my mental and physical well being that I just don't know what to do or who to turn to. I did telephone Diabetes UK to see if they could offer any advice and support and they weren't able to offer any suggestions at all. My eyesight is going now, and I'm struggling to read and my kidneys are also in trouble. My former diabetes care doctor told me not to worry about my kidneys and that they would go back to normal after balance resumed. However balance doesn't look like its going to happen any time soon.
I just dont knwo what to do and am feeling more and more desperate. I would love any suggestions as all. I suggested one time ot the nurses that I did a food diary and blood sugar diary, as figured that would help them identify where I wss going wrong, and they kind of shrugged it off saying I could do it if I wanted to but it would mean they would have to get a doctor to review it. I am just at a loss and need any help.
I spoke to my GP, and told them my concerns, and she actually agreed with me. So I switched to a new hospital for my diabetes care. However the new hospital is being problematic. I know Covid 19 has thrown a spanner in the works for everyone, and I am not being unrealistic with what they can do. However the diabetes nurse team are just not helping me. I have gone to them repeatedly with issues about my bloods being up and down, and they keep reassuring me tht I simply need to redo a DAFNE course next year when they are up and running. However, its just not working now and I really dont know what to do. Every suggestion I have made to them, they seem to reluctantly agree with and then don't follow up.
Recently I havent' been feeling 100% and not sure if its a bug or what, but my sugars are more up and down than normal and I telephoned them 3 times last week. They are yet to return my call. I had a telephone appointment with the nurses on Thursday morning (which was organised prior to these issues) and they telephoned in the afternoon (when I was at work).
I feel a bit like I'm fighting a losing battle and don't know whatg is the best thing to do. The hospital isn't giving me any proper help with the care of my diabetes and I'm worried if things remain the way they are I'm going to end up with complications. My GP is friendly and I could raise it with them, but I'm reluctant to as I don't want to end up worse off again, yet if I do nothing I am going to end up worse off. I used to have perfectly controlled diabetes and so the new regime I'm really struggling with and its having an impact on my mental and physical well being that I just don't know what to do or who to turn to. I did telephone Diabetes UK to see if they could offer any advice and support and they weren't able to offer any suggestions at all. My eyesight is going now, and I'm struggling to read and my kidneys are also in trouble. My former diabetes care doctor told me not to worry about my kidneys and that they would go back to normal after balance resumed. However balance doesn't look like its going to happen any time soon.
I just dont knwo what to do and am feeling more and more desperate. I would love any suggestions as all. I suggested one time ot the nurses that I did a food diary and blood sugar diary, as figured that would help them identify where I wss going wrong, and they kind of shrugged it off saying I could do it if I wanted to but it would mean they would have to get a doctor to review it. I am just at a loss and need any help.