- Messages
- 31
- Type of diabetes
- Type 1
- Treatment type
- Insulin
Hello all,
Had completely forgotten about this forum so was nice to find it again. I have had T1D for 13 years this year, my main issue is around being allergic to insulin. When I was first diagnosed I was on Novorapid and Lantus for around 4/5 years when I developed an allergy to Novorapid - itching and swelling around injection sites, hard to control BG due to this. My consultant swapped me onto Apidra where I happily sat for around 7 years before the same thing happened again - redness, temp and swelling around injection site and feeling generally rotten. I was then swapped onto Humalog. This time I lasted around 2 weeks before having another reaction - this one was worse, lots of swelling, heat and pain around site, rash all over trunk neck and face, shortness of breath, high heart rate. I ended up in hospital very briefly for monitoring and sent home on Fiasp but the whole experience was scary and not something I want to experience again or in a worse form.
I, understandably, have quite a lot of anxiety surrounding insulin now and if this happens again. I've been on Fiasp for a few months now and i do have small reactions when I take it, mainly just rash and itching around the site. This happened with Humalog before the big reaction as well. I take antihistamines fairly regularly I'm just finding it difficult as I'm scared of having another reaction and also how many other options there are for insulin. I've spoken to my diabetes team about it, and although they say they understand my fears I have this sense of not being fully believed and being made to feel like I'm being dramatic. I also find it quite stressful changing insulin as my blood sugars seem to go a bit hay wire when I get used to it and it takes a while to settle down, no matter how 'similarly acting' professionals tell me the insulin types are. When I had the Humalog reaction my team didn't know about it as I attended another hospital even though I had emailed the details and left phone messages to ask for a call back,
Must add that I swapped from Lantus to levemir due to night hypos a few years ago now and the reactions to seem to directly correlate with the bolus insulin sites etc. I also react to Actrapid when on sliding scale, not as severely but I itch all over and get a bit hot and uncomfortable -presumably this is due to not having an injection site as such.
I'm just curious as to whether anyone else has had anything remotely similar - I tried searching the forum with no joy. Or if anyone could offer any advice. Maybe I just needed to ramble the story out for reassurance that I'm not dramatic or going mad!
Many thanks in advance
Lois x
Had completely forgotten about this forum so was nice to find it again. I have had T1D for 13 years this year, my main issue is around being allergic to insulin. When I was first diagnosed I was on Novorapid and Lantus for around 4/5 years when I developed an allergy to Novorapid - itching and swelling around injection sites, hard to control BG due to this. My consultant swapped me onto Apidra where I happily sat for around 7 years before the same thing happened again - redness, temp and swelling around injection site and feeling generally rotten. I was then swapped onto Humalog. This time I lasted around 2 weeks before having another reaction - this one was worse, lots of swelling, heat and pain around site, rash all over trunk neck and face, shortness of breath, high heart rate. I ended up in hospital very briefly for monitoring and sent home on Fiasp but the whole experience was scary and not something I want to experience again or in a worse form.
I, understandably, have quite a lot of anxiety surrounding insulin now and if this happens again. I've been on Fiasp for a few months now and i do have small reactions when I take it, mainly just rash and itching around the site. This happened with Humalog before the big reaction as well. I take antihistamines fairly regularly I'm just finding it difficult as I'm scared of having another reaction and also how many other options there are for insulin. I've spoken to my diabetes team about it, and although they say they understand my fears I have this sense of not being fully believed and being made to feel like I'm being dramatic. I also find it quite stressful changing insulin as my blood sugars seem to go a bit hay wire when I get used to it and it takes a while to settle down, no matter how 'similarly acting' professionals tell me the insulin types are. When I had the Humalog reaction my team didn't know about it as I attended another hospital even though I had emailed the details and left phone messages to ask for a call back,
Must add that I swapped from Lantus to levemir due to night hypos a few years ago now and the reactions to seem to directly correlate with the bolus insulin sites etc. I also react to Actrapid when on sliding scale, not as severely but I itch all over and get a bit hot and uncomfortable -presumably this is due to not having an injection site as such.
I'm just curious as to whether anyone else has had anything remotely similar - I tried searching the forum with no joy. Or if anyone could offer any advice. Maybe I just needed to ramble the story out for reassurance that I'm not dramatic or going mad!
Many thanks in advance
Lois x