School issues

[Rob2112]

Hello I'm new here but my 7 year old daughter was diagnosed t1 in the 6 week school holidays and school have not been very helpful it's taken a full term to get 1 teaching assistant(who finishes work at 2pm and my daughter is there until 3:15pm) to take over giving insulin injections they can just about manage hypos with guidance from my wife over the phone( she hasn't had a serious one there yet) but my wife has still had to monitor her while she does pe
The headmistress is useless she just seems to be leaving the staff to sort it among themselves has anyone else had this much trouble with school?

 

[ert]

I'm sorry you're having a tough time. What insulin is your daughter taking? We have a nurse at school, but the eight T1DM students (the youngest is 5) need to manage the insulin and blood sugar testing themselves. To return to school she needs to be giving herself her own injections and using a Libre or finger pricking, or she should be eligible for a pump straight away if that helps.
I'm surprised the teaching assistant is allowed to give insulin injections when our nurse won't because of health and safety. (There is no way a staff member should be giving insulin injections, as they would be legally responsible if anything happened, and with insulin - things happen).

 

[In Response]

Hello I'm new here but my 7 year old daughter was diagnosed t1 in the 6 week school holidays and school have not been very helpful it's taken a full term to get 1 teaching assistant(who finishes work at 2pm and my daughter is there until 3:15pm) to take over giving insulin injections they can just about manage hypos with guidance from my wife over the phone( she hasn't had a serious one there yet) but my wife has still had to monitor her while she does pe
The headmistress is useless she just seems to be leaving the staff to sort it among themselves has anyone else had this much trouble with school?

I think you need Diabetes UK rather than a forum focused around a low carb diet.
They have great resources which can help such as this pack https://www.diabetes.org.uk/guide-t...iabetes/schools/diabetes-in-schools-resources, advocacy services and a helpline.
They can tell you what support you and your daughter should get rather than what experience some people may or may not have had in the past.

 

[Heyrehair]

We are on our second school following a nightmare with our first. This was only possible for us by obtaining an EHC via the LA. The new school is a totally different experience with a great Senco and TA.
I would suggest you research your rights in relation to educational provision and associated healthcare needs.

We don't have an issue with insulin delivery as we are on pump as opposed to MDI, so that might be something you want to consider too.

Hope this helps.

 

[Gleary85]

Hi -
Our children’s hospital went into school and gave training to 4 staff members in school. My son is 10 but can’t inject himself. He has the dexcom and that is a huge help x

He will eventually get a pump

The hospital provided the school with a ihcp.
I’m not sure what part of the country you are in but maybe speak to the diabetes team?

Hope you get sorted

 

[MrMatty]

I'm sorry you're having a tough time. What insulin is your daughter taking? We have a nurse at school, but the eight T1DM students (the youngest is 5) need to manage the insulin and blood sugar testing themselves. To return to school she needs to be giving herself her own injections and using a Libre or finger pricking, or she should be eligible for a pump straight away if that helps.
I'm surprised the teaching assistant is allowed to give insulin injections when our nurse won't because of health and safety. (There is no way a staff member should be giving insulin injections, as they would be legally responsible if anything happened, and with insulin - things happen).

Rubbish, a 7 year old should not be expected to give themselves their own injections. The teaching assistants should be trained by the hospital to do it.

 

[ert]

Rubbish, a 7-year-old should not be expected to give themselves their own injections. The teaching assistants should be trained by the hospital to do it.

I disagree wholeheartedly. They need to learn to be responsible for their own treatment to be at school. The GP's don't even want to manage type 1's and refer them to a specialist team. My GP knows very little about how to manage insulin as my body isn't producing any. So how could a teacher possibly do this role? There is no protection, in terms of health and safety, for the teaching staff if anything goes wrong. It's the variability which makes it impossible just to have some training at the hospital. As a type 1, you eat the same meal, inject the same amount of insulin and have a different outcome every time. The student needs to learn to monitor their own blood sugars and react to them.

 

[MrMatty]

If you think

I disagree wholeheartedly. They need to learn to be responsible for their own treatment to be at school. The GP's don't even want to manage type 1's and refer them to a specialist team. My GP knows very little about how to manage insulin as my body isn't producing any. So how could a teacher possibly do this role? There is no protection, in terms of health and safety, for the teaching staff if anything goes wrong. It's the variability which makes it impossible just to have some training at the hospital. As a type 1, you eat the same meal, inject the same amount of insulin and have a different outcome every time. The student needs to learn to monitor their own blood sugars and react to them.

If you think a 5,6,7 year old is capable of doing that you must be living on another planet. Your original post made me so angry, you think my 6 year old son should be more responsible for his condition at school.... get real!

 

[ert]

If you think

If you think a 5,6,7 year old is capable of doing that you must be living on another planet. Your original post made me so angry, you think my 6 year old son should be more responsible for his condition at school.... get real!

I'm sorry if you're having a difficult time as a type 1 parent. The younger students at my school are on pumps and have Libres which allow this. The youngest is 5. I hope you get the support that you need from your diabetes team.

 

[Robinredbreast]

Hi to @MrMatty and @ert, this is a good diabetes guide. What I will say is all children are very different, some aged 6/7 can do it with relative ease and another child maybe 10 years old, will still find it difficult..
I believe all children, my granddaughter was diagnosed at 2 1/2 years old, should have the knowledge of what they are doing, ie testing, what they eat, how different foods affect them, which site area to choose, to gain confidence in their management.
I asked my daughter if she can remember the age my granddaughter first did her own injection and she can't remember.
file:///home/chronos/u-e0b6bfc92867603db1d4b9878ea08afbf5ab7f28/MyFiles/Downloads/insulin-administration-skills-of-children-with-type-1-diabetes.pdf

Unfortunately the article wont show on here. It's called Insulin administration skills of children with Type 1 diabetes. Ayfer Ekim, Hatrice Pek

 

[ert]

Hi to @MrMatty and @ert, this is a good diabetes guide. What I will say is all children are very different, some aged 6/7 can do it with relative ease and another child maybe 10 years old, will still find it difficult..
I believe all children, my granddaughter was diagnosed at 2 1/2 years old, should have the knowledge of what they are doing, ie testing, what they eat, how different foods affect them, which site area to choose, to gain confidence in their management.
I asked my daughter if she can remember the age my granddaughter first did her own injection and she can't remember.
file:///home/chronos/u-e0b6bfc92867603db1d4b9878ea08afbf5ab7f28/MyFiles/Downloads/insulin-administration-skills-of-children-with-type-1-diabetes.pdf

Unfortunately the article wont show on here. It's called Insulin administration skills of children with Type 1 diabetes. Ayfer Ekim, Hatrice Pek

Great article. Technology has been a game-changer. I know some parents if they are worried, pre-programme the pumps to deliver insulin automatically, and monitor the Libre remotely, supported by their diabetes consultants.