- Messages
- 1,405
- Type of diabetes
- Type 1.5
- Treatment type
- Insulin
Hi
I am home about five days from a heart bypass operation, apart from it being awful, I would like to tell my insulin story in the hope someone can avoid a very frustrating situation.
Maybe a month before the op I was contacted by diabetes “expert” at Royal Brompton hospital, when they discovered I self funded libre they asked me to connect to them and monitored me via that. They were very happy with my control and didn’t need to make any changes, they said it was very important to have good control before and post op as it helps recovery. All was well.
Until I arrived in hospital and they told me not to control my own BG as they had me on an infusion, they had me hooked up and injected two units per hour of Actrapid? (This I believe is rapid acting (I use long acting at bedtime, rapid with food)).
I have to repeat that as I can’t actually believe it, 2 units of rapid every hour, night and day regardless of food
For the two days I was there waiting for op I was in a rabbit in the headlights mode over the whole operation thing but still kept saying “can I look after my own insulin please? This will not work”.
well surprise surprise within 24 hours, high 20’s then the op happened, spent the next few days in Lala land, once I hit the ward, my BG was still in 20s,
They actually wanted to keep me in hospital a week later because my BG and the wanted their diabetes team to review my high numbers laughing but not funny, the last full day I was there I was given back control and guess what? Well it’s taken me a good few days to get a 4~6 BG sleep but I’m back on track.
So the reason for my rant, if you are having an op, please get more details about what they intend to do, the nurses are just following a pre determined plan, it’s the diabetes team that need to explain their plans, there are clearly holes? In their knowledge and in my case their general sanity and I wished I had expected it in advance.
Hope this helps someone.
I am home about five days from a heart bypass operation, apart from it being awful, I would like to tell my insulin story in the hope someone can avoid a very frustrating situation.
Maybe a month before the op I was contacted by diabetes “expert” at Royal Brompton hospital, when they discovered I self funded libre they asked me to connect to them and monitored me via that. They were very happy with my control and didn’t need to make any changes, they said it was very important to have good control before and post op as it helps recovery. All was well.
Until I arrived in hospital and they told me not to control my own BG as they had me on an infusion, they had me hooked up and injected two units per hour of Actrapid? (This I believe is rapid acting (I use long acting at bedtime, rapid with food)).
I have to repeat that as I can’t actually believe it, 2 units of rapid every hour, night and day regardless of food
For the two days I was there waiting for op I was in a rabbit in the headlights mode over the whole operation thing but still kept saying “can I look after my own insulin please? This will not work”.
well surprise surprise within 24 hours, high 20’s then the op happened, spent the next few days in Lala land, once I hit the ward, my BG was still in 20s,
They actually wanted to keep me in hospital a week later because my BG and the wanted their diabetes team to review my high numbers laughing but not funny, the last full day I was there I was given back control and guess what? Well it’s taken me a good few days to get a 4~6 BG sleep but I’m back on track.
So the reason for my rant, if you are having an op, please get more details about what they intend to do, the nurses are just following a pre determined plan, it’s the diabetes team that need to explain their plans, there are clearly holes? In their knowledge and in my case their general sanity and I wished I had expected it in advance.
Hope this helps someone.