Hi, I keep having hypos and the trouble is that I’m 99% tube fed, so I get into a bit of a cycle.
- hypo
- Try and eat carbs (more often than not I’m sick (hence the tube feeding), which doesn’t help.
- Try and get something down the tube - sugary water, a biscuit dissolved in water or some Fortisip.
- takes ages to get my BS up.
- Once it finally starts going up (after say 45 minutes), it then goes too high.
If I eat orally, I’m either sick or it sits in my stomach for days (Gastroparesis - my stomach doesn’t empty) so doesn’t tend to help much.
It seems to take ages to raise my sugar, I’m probably trying too many things because I’m panicking).
- Eventually I get my levels up, but then they seem to go whoosh quickly and they’re too high, so I’m then using the Novorapid.
If I try say just the sugary water, how long should I be leaving it, to take affect?
I can’t eat things like jelly babies - I can’t swallow them.
I’ve tried the diabetic nurse and the diabetes lead at the practice, but everyone seems to have decided that I’m ‘too complicated’ and so they don’t want to deal with me, because they don’t know what to do.
- but if I’m too complex for the experts, how am I meant to know what to do by myself, when I’m new to all of this?
Thanks in advance!
- hypo
- Try and eat carbs (more often than not I’m sick (hence the tube feeding), which doesn’t help.
- Try and get something down the tube - sugary water, a biscuit dissolved in water or some Fortisip.
- takes ages to get my BS up.
- Once it finally starts going up (after say 45 minutes), it then goes too high.
If I eat orally, I’m either sick or it sits in my stomach for days (Gastroparesis - my stomach doesn’t empty) so doesn’t tend to help much.
It seems to take ages to raise my sugar, I’m probably trying too many things because I’m panicking).
- Eventually I get my levels up, but then they seem to go whoosh quickly and they’re too high, so I’m then using the Novorapid.
If I try say just the sugary water, how long should I be leaving it, to take affect?
I can’t eat things like jelly babies - I can’t swallow them.
I’ve tried the diabetic nurse and the diabetes lead at the practice, but everyone seems to have decided that I’m ‘too complicated’ and so they don’t want to deal with me, because they don’t know what to do.
- but if I’m too complex for the experts, how am I meant to know what to do by myself, when I’m new to all of this?
Thanks in advance!