- Messages
- 51
- Type of diabetes
- Type 2
- Treatment type
- Insulin
Hi does anyone else on here suffer from diabetic amyotrophy ? Been slowly getting worse over a 2 year period and now is getting me a bit down .
I read all that too ....not much help thoughI had no idea what this condition was, so I googled it. Here is what I found and which I share so others can understand what is being asked.
https://patient.info/diabetes/diabetes-mellitus-leaflet/diabetic-amyotrophy
firstly they talk about recovery and positive outcomes are possible, Seconfly, normal painkillers are mainly ineffective because it is a nerve effect. They mention steroids, but be aware that these will probably increase your blood sugar levels and make control more difficult.
You show that you are T2D and not using insulin so presumably you do not currently use a glucometer to measure sugar levels. May I suggest if this is the case that you make an investment to get access to one because it makes it quite visible how different foods that you eat affect you and you can see immediately which ones are good, and which meals are making things worse. Look on it as taking back control of your own diabetes and hopefully the nerve problem too. And there are no stupid questions, Feel free to ask away. But we are not medical people so will not be so geared up for the solving the nerve problem. T2D we understand.
And it seems good diabetic control / tight control is required. Since it is nerve based, I would also suggest making sure you are getting all the B vitamins from your diet.
If you delve into this forum for info, then you will find that cutting carbohydrate intake is a good way to reduce blood sugar levels. Carbs turn directly into glucose in the blood and I do mean directly. Cut the carbs and then dealing with the remaining sugars and fats becomes easier.
I'm a t2 on insulin plus oral meds and have been for over 20 years also a self funding libre2 userI had no idea what this condition was, so I googled it. Here is what I found and which I share so others can understand what is being asked.
https://patient.info/diabetes/diabetes-mellitus-leaflet/diabetic-amyotrophy
firstly they talk about recovery and positive outcomes are possible, Seconfly, normal painkillers are mainly ineffective because it is a nerve effect. They mention steroids, but be aware that these will probably increase your blood sugar levels and make control more difficult.
You show that you are T2D and not using insulin so presumably you do not currently use a glucometer to measure sugar levels. May I suggest if this is the case that you make an investment to get access to one because it makes it quite visible how different foods that you eat affect you and you can see immediately which ones are good, and which meals are making things worse. Look on it as taking back control of your own diabetes and hopefully the nerve problem too. And there are no stupid questions, Feel free to ask away. But we are not medical people so will not be so geared up for the solving the nerve problem. T2D we understand.
And it seems good diabetic control / tight control is required. Since it is nerve based, I would also suggest making sure you are getting all the B vitamins from your diet.
If you delve into this forum for info, then you will find that cutting carbohydrate intake is a good way to reduce blood sugar levels. Carbs turn directly into glucose in the blood and I do mean directly. Cut the carbs and then dealing with the remaining sugars and fats becomes easier.
There's a few other names for it too .....none of them get mentioned much thoughIt sounds like a spell that Harry Potter used on Lord Voldermore.
So your bases seem covered there. I have nothing to add.Also on b12 every 3 months
Pretty much ....from what I've read on a Facebook group I'm only at the early stage .....got a physio appointment week after next to see what they can do awaiting my mri result on my hips and lower spine as there was a few abnormalities on the emg testSo your bases seem covered there. I have nothing to add.
Probably too rude for most fora I bet, Thankfully this is not in my experience, so I wish you well, and hope you get resolution soon.There's a few other names for it too .....none of them get mentioned much though
It's the blood supply being cut off to the nerves that's the problem .... got the neuro physio appointment early next monthIf its nerves in the lower back and surrounds, stretches like I did that cured my sciatica might well help. A good physio is recommended
It's the blood supply being cut off to the nerves that's the problem .... got the neuro physio appointment early next month
Told last week that I will be getting it prescribed soonOuch, sounds unpleasant. I appreciate that you're already using a libre (might be worth seeing if the NHS will fund it, as the rules recently changed so that some insulin dependent T2s qualify) but is there any scope for you to tighten your bgs? As a fellow insulin user, I appreciate you are probably doing the best you can, but I find my levels tend to fluctuate a bit, and it's easy for them to slip.
I hope you can get some improvement/help for this.