I think it's important that everyone knows this is an entitlement and also that if you are in receipt of Working Tax Credit this also adds a Disabled Child Element to your payments too, so another £2540 per year although on your allowance.
However, I'd be really interested to hear of anyones experiences of anyone receiving DLA when their child reaches 16. As far as I am concerned the additional costs and support doesn't disappear overnight on 16th birthday like the payments do and with my son, a recent school trip has made me realise just how much adult support and intervention he still needs over and above that of his peers.
This date for us, is approaching and although I've heard of one parent having success in her application for her son, as her Clinical Nurse Specialist completed the DLA paperwork, I think it would be valuable to share experiences.
I was lucky enough to receive DLA at the first time of asking when my son was diagnosed and I'd be happy to offer help to others with the onerous task of filling those endless forms in.