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iamhingo

Member
Messages
6
Hello all.

I have a question if I may. I have been diabetic for 15 years now, poorly controlled, my Hba1c was often 11! I have begun to get a prickly sensation above my knee and reduced feeling. I am terrified I will loose my leg so much so I no longer sleep much. For the last year, my diabetes control has been excellent in comparison to those early years and my Hba1c's are now at 7 and dropping every time. I have stopped drinking, stopped smoking and am now a dedicated climber and cyclist. A member of Diabetes UK spoke to me in town and asked if I get any pins and needles sensation anywhere, I said yes to which he replied 'then you are going to loose that leg'.

My question is - Is the numbness and prickly feeling related to my poor control and will tight control reverse this feeling or is that it? Is my leg destined to be removed?

Thanks for reading
Martin
 

Garthion

Member
Messages
22
Hi Martin,

Like you I had poor glycaemc control for a long time, (My worst HbA1C was 15.1% :eek: ) but I drastically improved my control over the last year or so, so that my HbA1C is now 7.6% and going down. I have pains in my legs almost continually but having spoken to my GP and diabetes team, I am not worried, it would appear that the reason my (and your) legs hurt is that there was damage to the nerves but with time and good control the effects can be lessened, if not completely reversed.
The DUK person should have known better than to tell you that you will lose your leg, it is not certain, in fact you could easily live the rest of your life with out any further complications, and, as I have said, you could even get the pain reducing over time. The best thing to do though, if you are really worried, is to ask your GP or Diabetes team, they should be able to put your mind at rest and might even be able to help with it.


Hope this is some reassurance to you.
 

izzzi

Well-Known Member
Messages
4,207
Type of diabetes
Treatment type
Diet only
Hi Martin, :)

Could be a touch of arthritis or something simple like a varicose vein behind the knee.

Your climbing and cycling would indicate this kind of treatable problem.

Your GP should sort this out for you.
The sooner you know what the cause is you will feel a lot better without that worry and stress that you are having.

Good Luck

Roy. :)
 

hanadr

Expert
Messages
8,157
Dislikes
soaps on telly and people talking about the characters as if they were real.
There was a superb story in one of the Scottish papers a while back about the diabetic who was scheduled for amputation, when his GP [a lady known to some of us] put him on a low carb diet and his control improved so much, the operation never took place
Hana
 

Superchip

Well-Known Member
Messages
512
Dislikes
GP's, Diabetes Nurses.Crazy NHS guidelines on diet for Diabetics, they are seeing off millions.
Cheap Whisky !
iamhingo, welcome and greetings !

You poor sod, that DUK person has scared you and is right ' OUT OF ORDER ' and should be shot on sight ! I expect that he was an INEXPERIENCED chugger !

There can be lots of reasons that you have this reaction.

Hopefully Daisy or some other kind person will be along shortly to guide you.

Hang on to your legs ! and Feet !

Stay here, many more experienced people will be here to help.

Superchip
 

pumppimp

Well-Known Member
Messages
246
Type of diabetes
Type 1
Treatment type
Pump
Hi,
I completely agree with what everyone else has said. Make sure you get a full exam and tests done by your doctor just so you know exactly what you are dealing with then you can put your mind at ease. If there is any permanent damage it's likely that your body will be able to compensate or heal itself as long as you keep up the good control. Before I got my pump there was lots of conversations about putting me on the transplant list and getting laser surgery for my eyes. Now I'm completely fine my liver has healed itself fully as have my eyes and my kidneys are compensating. I'm sure if DUK heard about what was said they wouldn't be very happy as this was a very unprofessional comment. There's lots of help on here to keep up the hard work you've already acheived with your control and until you hear it from a specialist that you have to chop it then don't spend anymore energy on it as it's very likely just some scaremongering from an ill informed person!
 

daisy1

Legend
Messages
26,457
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Cruelty towards animals.
Hi Martin and welcome to the forum :)

The best thing you can do to help yourself is to control your levels as best you can. You are already getting your levels down well with your decreasing HbA1c. Do not listen to people who don't know what they are talking about. That member of DUK was probably not a doctor and certainly didn't examine you. You have received some good advice on here already and you only need to ask and people will come to help.

This is the information that we give to new members which should guide you along the right lines.


BASIC INFORMATION FOR NEW MEMBERS

Diabetes is the general term to describe people who have blood that is sweeter than normal. A number of different types of diabetes exist.

A diagnosis of diabetes tends to be a big shock for most of us. It’s far from the end of the world though and on this forum you’ll find well over 30,000 people who are demonstrating this.

On the forum we have found that with the number of new people being diagnosed with diabetes each day, sometimes the NHS is not being able to give all the advice it would perhaps like to deliver - particularly with regards to people with type 2 diabetes.

The role of carbohydrate

Carbohydrates are a factor in diabetes because they ultimately break down into sugar (glucose) within our blood. We then need enough insulin to either convert the blood sugar into energy for our body, or to store the blood sugar as body fat.

If the amount of carbohydrate we take in is more than our body’s own (or injected) insulin can cope with, then our blood sugar will rise.

The bad news

Research indicates that raised blood sugar levels over a period of years can lead to organ damage, commonly referred to as diabetic complications.

The good news

People on the forum here have shown that there is plenty of opportunity to keep blood sugar levels from going too high. It’s a daily task but it’s within our reach and it’s well worth the effort.

Controlling your carbs

The info below is primarily aimed at people with type 2 diabetes, however, it may also be of benefit for other types of diabetes as well.
There are two approaches to controlling your carbs:

  • Reduce your carbohydrate intake
  • Choose ‘better’ carbohydrates
Reduce your carbohydrates

A large number of people on this forum have chosen to reduce the amount of carbohydrates they eat as they have found this to be an effective way of improving (lowering) their blood sugar levels.

The carbohydrates which tend to have the most pronounced effect on blood sugar levels tend to be starchy carbohydrates such as rice, pasta, bread, potatoes and similar root vegetables, flour based products (pastry, cakes, biscuits, battered food etc) and certain fruits.

Choosing better carbohydrates

Another option is to replace ‘white carbohydrates’ (such as white bread, white rice, white flour etc) with whole grain varieties. The idea behind having whole grain varieties is that the carbohydrates get broken down slower than the white varieties –and these are said to have a lower glycaemic index.
http://www.diabetes.co.uk/food/diabetes ... rains.html

The low glycaemic index diet is often favoured by healthcare professionals but some people with diabetes find that low GI does not help their blood sugar enough and may wish to cut out these foods altogether.

Read more on carbohydrates and diabetes

Eating what works for you

Different people respond differently to different types of food. What works for one person may not work so well for another. The best way to see which foods are working for you is to test your blood sugar with a glucose meter.

To be able to see what effect a particular type of food or meal has on your blood sugar is to do a test before the meal and then test after the meal. A test 2 hours after the meal gives a good idea of how your body has reacted to the meal.

The blood sugar ranges recommended by NICE are as follows:

Blood glucose ranges for type 2 diabetes
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 8.5 mmol/l
Blood glucose ranges for type 1 diabetes (adults)
  • Before meals: 4 to 7 mmol/l
  • 2 hours after meals: under 9 mmol/l
Blood glucose ranges for type 1 diabetes (children)
  • Before meals: 4 to 8 mmol/l
  • 2 hours after meals: under 10 mmol/l
However, those that are able to, may wish to keep blood sugar levels below the NICE after meal targets.

Access to blood glucose test strips
The NICE guidelines suggest that people newly diagnosed with type 2 diabetes should be offered:

  • structured education to every person and/or their carer at and around the time of diagnosis, with annual reinforcement and review
  • self-monitoring of plasma glucose to a person newly diagnosed with type 2 diabetes only as an integral part of his or her self-management education

Therefore both structured education and self-monitoring of blood glucose should be offered to people with type 2 diabetes. Read more on getting access to blood glucose testing supplies.

You may also be interested to read questions to ask at a diabetic clinic

Note: This post has been edited from Sue/Ken's post to include up to date information.
 

noblehead

Guru
Retired Moderator
Messages
23,618
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
Disrespectful people
iamhingo said:
My question is - Is the numbness and prickly feeling related to my poor control and will tight control reverse this feeling or is that it?



Martin, you need to get your leg examined by your gp to determine what is causing the problem, it could be diabetes related then again it may not, without a proper diagnosis no one can say if your condition can be reversed or not.

One things for sure your doing the right thing getting your diabetes under control and exercising regularly, if I were you I'd pop-along to see the Dr and get a full examination of the leg as I can see it's causing you a great deal of concern.

Good luck!
 

iamhingo

Member
Messages
6
Hi everyone

I took the advice and had it checked by a GP. They don't seem concerned and believe it to be very early signs of neuropathy which, they said if I keep up the good work won't get any worse and may even improve. I must say though it was the replies on here that are helping my state of mind and I thank you all from the bottom of my heart. I hope you all have a great christmas and I look forward to helping to returning the great advice you have given where I can.

Martin
 

noblehead

Guru
Retired Moderator
Messages
23,618
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
Disrespectful people
iamhingo said:
Hi everyone

I took the advice and had it checked by a GP. They don't seem concerned and believe it to be very early signs of neuropathy which, they said if I keep up the good work won't get any worse and may even improve. I must say though it was the replies on here that are helping my state of mind and I thank you all from the bottom of my heart. I hope you all have a great christmas and I look forward to helping to returning the great advice you have given where I can.

Martin


:thumbup: ....well done Martin for getting your leg examined and hope you have a great Christmas too!
 

bennyg70

Well-Known Member
Messages
72
Dislikes
CHEESE!!!
Isnt it a great feeling when you get such positive encouragment from people on here in the same sort of situations as yourself, and things turn out to be not half as bad as you first thought.... Just being able to talk helps so much
 

MYY

Active Member
Messages
28
iamhingo said:
Hello all.

I have a question if I may. I have been diabetic for 15 years now, poorly controlled, my Hba1c was often 11! I have begun to get a prickly sensation above my knee and reduced feeling. I am terrified I will loose my leg so much so I no longer sleep much. For the last year, my diabetes control has been excellent in comparison to those early years and my Hba1c's are now at 7 and dropping every time. I have stopped drinking, stopped smoking and am now a dedicated climber and cyclist. A member of Diabetes UK spoke to me in town and asked if I get any pins and needles sensation anywhere, I said yes to which he replied 'then you are going to loose that leg'.

My question is - Is the numbness and prickly feeling related to my poor control and will tight control reverse this feeling or is that it? Is my leg destined to be removed?

Thanks for reading
Martin

A friend of mine had his big toe of his foot amputated recently.

Not sure why but will ask him and pass on the info to you.
 

JohnJ

Well-Known Member
Messages
78
Type of diabetes
Type 1
Treatment type
Insulin
bennyg70 said:
Isnt it a great feeling when you get such positive encouragment from people on here in the same sort of situations as yourself, and things turn out to be not half as bad as you first thought.... Just being able to talk helps so much

I totally agree, this site and it's members have supported and informed me more than they will probably ever know.