Hi All
I've recently changed consultants (after 11 years). He was shocked that I have been diagnosed type two and said I was classic type 1.
I was dianosed originally as having gestational diabetes and, when it didn't go after my baby was delivered, Type 2. I've been treated over the years with diet originally then an increasing dose of various drugs (metformin, sitagliptin and gliclazide) ending up on insulin. New doctor guessed it was type one diagnosed in pregnancy and sent bloods off for two tests, one was an antibody test and another one was looking for some enzyme marker which is present in type 1s. Negative for the antibodies (which he expected after such a long time) but strong positive for the other one. His secretary says it's conclusive that I'm type one and not type two as diagnosed originally.
My HbA1c has never been awful (but never great either - highest around 9 lowest while pregrant was 6 from memory).
My question is what are the implications of this misdiagnosis? Does it make any difference to me? does the fact I managed as long as I did without insulin that it was a slow onset type 1? Is there such a thing?!
I was a bit upset to be honest and I don't really understand why. Feels more real now.
sorry for rambling - just feeling confused. I was under the impression that these are different diseases which should be approached differently and I'm worried that I should have been doing something for a decade that I havent!!
jayne
I've recently changed consultants (after 11 years). He was shocked that I have been diagnosed type two and said I was classic type 1.
I was dianosed originally as having gestational diabetes and, when it didn't go after my baby was delivered, Type 2. I've been treated over the years with diet originally then an increasing dose of various drugs (metformin, sitagliptin and gliclazide) ending up on insulin. New doctor guessed it was type one diagnosed in pregnancy and sent bloods off for two tests, one was an antibody test and another one was looking for some enzyme marker which is present in type 1s. Negative for the antibodies (which he expected after such a long time) but strong positive for the other one. His secretary says it's conclusive that I'm type one and not type two as diagnosed originally.
My HbA1c has never been awful (but never great either - highest around 9 lowest while pregrant was 6 from memory).
My question is what are the implications of this misdiagnosis? Does it make any difference to me? does the fact I managed as long as I did without insulin that it was a slow onset type 1? Is there such a thing?!
I was a bit upset to be honest and I don't really understand why. Feels more real now.
sorry for rambling - just feeling confused. I was under the impression that these are different diseases which should be approached differently and I'm worried that I should have been doing something for a decade that I havent!!
jayne