Found out I was type 2 in December, Retinopathy in January

julie42

Active Member
Messages
30
I am totally shocked that I have my results back and I have signs already of retinopathy, so soon? I was told 10 to 20 years can be the normal time for signs to show and if I have good control I might avoid all together. Has anyone else had a bad result at the first test? I have an appointment to see an eye specialist at the end of the month as my eye pressure was also high from the routine eye test a few weeks before and I could be starting with glaucoma as well. I am going to ask whilst I am at the hospital about the retinopathy.

In December I was told I had Type 2, it was picked up from a health check and apart from feeling tired I had no signs. My family have a problem so I thought maybe one day in my retirement it might appear but apart from the love of a glass of wine with meals I had no real bad habits. I do not snack, drink sugar drinks and I would never order a dessert in a restaurant so I thought that would all help. Sadly not, at 42 I am the youngest in my family. My fasting blood came back at 8 so I thought that was fairly low and with good control my first A1C a few weeks later came back at 6. I was please and it showed a low carb diet was worth the hassle. I was positive and even coped with Christmas, my blood was under 6 for lunch and I had a roastie, parsnip and a glass of wine plus a tiny bit of Christmas pudding that I bought for diabetics as I was interested how high I might go. Even a pudding with no added sugar was still going to be a bad choice with all the fruit. The family had no idea and ate it, my dad is also diabetic but does not care what he eats, he is now 79 and after 20 years I give up.

My dad has done exactly as he likes and his eyes are fine, it all feels odd. I now wonder how long I have had this for but my levels were not sky high, could that be due to the fact I ate fairly well anyway. I have also read by taking on a strict control it can make it worse in the short term. I am a bit confused and very fed up.
 

FantomPoet

Well-Known Member
Messages
151
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Re: Found out I was type 2 in December, Retinopathy in Janua

Hi Julie42

I too was diagnosed T2 in August last year and within a couple of weeks was told that
I had some retinopathy in fact I got the retinopathy news as I arrived home from holiday
with the news that in four days I was to attend a clinic at the local eye hospital. I am also
42 and was stunned to find I already had some damage. My Hba1C was 9.7 on Diagnosis and
5.6 in November. I was worried that the drop in Hba1C or at least the speed may do more damage.
Yesterday I attended the eye hospital again and was told that it is stable and I am now going to
have six monthly checks as long as I keep my blood sugars stable (Hba1C).

The consultant estimated that I may have had Diabetes for 5 to 10 years prior to the diagnosis
if my eyes are anything to go by.

So at the moment no laser so I am going to keep to my meter as the alternative is not something
I want to have to face.
I understand you being fed up I have been in the same boat for the last four months but at least the
worry of coming down too fast is over as I did not find out about that little nugget until my levels were
already down.
 

julie42

Active Member
Messages
30
Re: Found out I was type 2 in December, Retinopathy in Janua

I went with my husband to collect his glasses and I was shown my photos. I have a very small aneurysm in my left eye, I was told a leak can go away but this will stay so to continue with the good control.
 

tazzle

Active Member
Messages
37
Type of diabetes
Prediabetes
Re: Found out I was type 2 in December, Retinopathy in Janua

my GP who I saw this week remarked that this is quite common ..... I went along to him thinking he would dismiss my numbers I had tested meyself as having ....as not worth taking care of as it was bordeline diabetic / not diabetic. What he said was what I had read all the research about .... that the damage CAN start when bgs at just 8, way below the 11 that is diabetic.

the problem as I understand it is that we can often have quite prolonged periods above 8 yet not have "high enough" at the fasting level or not regular enough to be reliably caught on a GTT when most of us will have "been good" for the planned test.

The IDF and other organisations are pushing for lower numbers to be recognised as "dangerous" I think.

I have certainly taken my numners seriously even before official diagnosis.... having the HBA1c next week...,because as my GP says 9 In whihc I am total agreement) one is not a diabetic one say then a diabetic the next just because a number moves up one notch. We have to be takeing note waaaaaaaaaaaaaay before then. I already have macualr damage and I am taking the risk very seriously !

I wish you luck with your eyes and I hope its been caught in time to be treated effectively.
 

Dark Horse

Well-Known Member
Messages
1,840
Re: Found out I was type 2 in December, Retinopathy in Janua

Type 2 diabetes has a slow onset. A sizable proportion of people diagnosed with Type 2 diabetes have had the disease for several years before diagnosis and around 20% have already developed background retinopathy. Reducing the risk of progression to sight-threatening retinopathy can be achieved by keeping your HbA1c low, your blood pressure down and your your cholesterol low. Diet AND exercise are very important.

Also important is annual eye screening which shows up sight-threatening changes at the point where they don't produce symptoms but will respond well to treatment.

Only a small percentage of people who develop background retinopathy go on to develop sight-loss due to diabetes but it is sensible to reduce the risks as much as possible. Good luck!
 

julie42

Active Member
Messages
30
Re: Found out I was type 2 in December, Retinopathy in Janua

It is so shocking but I am strict with my diet and after the eye test it will be easier to stick to. I had a little moment on opening the result and thought I was on the road to blindness. I sobbed to my hubby that I did not want to go blind, he assures me if I do he will drive me to Europe in our motorhome to get me put to sleep and stuff me in a locker to bring me back. It's a good job I share his dark sense of humour and it made me laugh.
 

tazzle

Active Member
Messages
37
Type of diabetes
Prediabetes
Re: Found out I was type 2 in December, Retinopathy in Janua

:lol: :lol: :lol:


sometimes thats just the repsonse we need.. not too maudlin
 

MissFortune

Member
Messages
20
Re: Found out I was type 2 in December, Retinopathy in Janua

julie42 said:
My dad has done exactly as he likes and his eyes are fine, it all feels odd. I now wonder how long I have had this for but my levels were not sky high, could that be due to the fact I ate fairly well anyway. I have also read by taking on a strict control it can make it worse in the short term. I am a bit confused and very fed up.

Diabetes is a confusing conditions at times.
I hope you feel better soon.
 

Indigo

Member
Messages
21
Re: Found out I was type 2 in December, Retinopathy in Janua

Hi Julie

I am pretty much in the same boat. I went for a routine eye test and the optician noticed some changes which promted me to go to the A&E at Moorfields Eye Hopsital, where I was diagnosed Diabetic and with severe diabetic retinopathy. Devestating as I was not aparently overwieght, youngish (35), and always have been for regualr eye test and contact lens checks. My Dad was diagosed 4 1/2 years ago and does not pay as much attention to himself as he should.

The team at the Eye Hospital have been extremly efficient with regards to my treatment and even though I was only diagnosed in October I have now finished my laser treatments on both eyes and am awaiting my follow-up with the consultant in March.

Whilst it is all a lot to take in and is very emotional, at least there has been action on the eye front and I have taken control of the diabetes (well on the way to it!). So I do feel for you and hope that you manage to sort things out. Be persisstant as you cannot gamble with your sight. Once you talk to someone hopefully it will put it all in to persective and at least you are doing something about it.

Sorry that was a bit long, but I hope that helps a little.