Frustrated and upset

Shell1

Well-Known Member
Messages
388
Type of diabetes
Parent
Treatment type
Pump
Going to bed my daughters blood 19 and she will not have a correction.she only 9 and she just point blank refuses shes been screaming the house down and will not listen to anything I said .im so upset apart from sitting on her and doing it I have no idea how to handle this anymore .im so down


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Andy12345

Expert
Messages
6,342
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Doctors
wow, thats terrible, im so sorry, i have nothing to help but to say, i feel for you this must be so awful, i hope someone comes along with something useful, best wishes
 

jeves

Well-Known Member
Messages
60
Feel for this mum my mum had 2 diabetic daughters in 1982 within 6 months my sister was diagnosed in Feb and myself in Oct horrible times but mum kept it together now my sister and myself have 2 children each but my sister's youngest in now type 1!

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mentat

Well-Known Member
Messages
419
Type of diabetes
Type 1
Treatment type
Pump
You poor things, both of you! Diabetes is a suffering that cannot be understood by those who don't see it day to day. It can completely change your child.

Is she afraid of the pain? Or just had enough of diabetes? Or just being rebellious?

Does she understand why good sugars are important? Does she agree that good sugars are important?

Nobody's perfect. We're emotional creatures. Even those of us without diabetes have days where we just don't want to deal with the world. But if we have diabetes, we have to deal with diabetes. And that can make things even worse. We feel even more trapped. Eventually we snap and completely give up on diabetes.

I think an important lesson to learn is that it's OK to ignore a high sugar sometimes. Better to say "I can't handle it anymore", get a good night's sleep, and then pick it up again next day, than to force yourself to deal with diabetes endlessly, spend another week on the very edge and then give up injecting until you wake up in hospital.

Many type 1s, particularly in their teenage years, go months or years trying to ignore diabetes. That's a lot worse for their health than the odd night of high sugars. I think that you're doing the right thing by not pinning her down and injecting. I think you should back off further, and not have it even come to screaming. She needs one injection a day or else she'll die, but beyond that "no means no". You don't want her to associate diabetes with trauma and pain and a lack of freedom.

If necessary find an insulin that means she only needs 1 or 2 injections a day, and accept that the control won't be as good. Try to keep foods around the house that will result in smaller spikes. If she refuses to inject before eating, try to give her a low-carb meal that she's happy with. Strawberries even sprinkled with a bit of sugar or lemon juice are surprisingly low in carbs. A handful of strawberries and half a teaspoon of sugar is around 5g of carbs.

I suspect that if you reduce the pressure that diabetes puts on her she will start to be more open to it, more willing to talk and understand and accept it and take responsibility. And obviously once that starts happening control will improve again.

Best wishes for you both.
 

hale710

Well-Known Member
Messages
2,903
Type of diabetes
Type 1
Treatment type
Insulin
Oh dear :( it probably just got too much for her last night. I'm assuming you checked her through the night and all will be fine. You can give the correction this morning with breakfast
 

Shell1

Well-Known Member
Messages
388
Type of diabetes
Parent
Treatment type
Pump
She eventually came into my room about a hour later,woke me up and asked for the correction .before hand I cuddled her told her how unhappy I was she wasn't going to have it as being high in the night means her sugars are going round her body causing damage and if she wants to be a healthy adult she needs to look after her body just like she looks after her teeth before bed to look after them .she said she didn't care and was never doing it again.so I left her with my concern and a kiss and she eventually came Round herself .she scared off the pain and she's just sick if it,me too its so hard...everyday
Thanks all for support


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hale710

Well-Known Member
Messages
2,903
Type of diabetes
Type 1
Treatment type
Insulin
I'm glad she came around in the end of her own accord. Shows she does understand why you ask her to do these things, she is obviously just having a hard time with it at the moment
 

AndyS

Well-Known Member
Messages
784
Type of diabetes
Type 1
Treatment type
Insulin
Have any of the Dr's or DSN's discussed the possibility of a pump for your daughter?

I know that they introduce their own set of issues but they can take away the extra needle sticks and make corrections less of a pain, literally in this case.

Maybe you should contact DSN / Consultants and actually use this as an example.

Glad she did come round in the end and sorry that you had to go through that in the first place, I can't even begin to imagine how hard it could be for a parent when the child is at that breaking point with this condition.

Best of luck

/A
 

mentat

Well-Known Member
Messages
419
Type of diabetes
Type 1
Treatment type
Pump
Oh, wow! It was really moving and inspiring to hear that she pulled herself together to face another struggle. Your daughter is clearly a great kid, and sometimes this is just too much for her.

I'll give my experience with regard to needle pain, in case it helps:

Through experimentation I've found a lot of areas on me that usually don't hurt, and some that are likely to REALLY hurt.

The MAIN thing is, when I'm really stressed, when I've just had an argument with my girlfriend, or had a bad hypo recently, etc., almost anywhere hurts, and it hurts a lot! I will try 4 or 5 sites until I find one that doesn't make me jump or cry. A suggestion: sit her down have her take 20 deep breaths and let her arms and legs relax before trying again. Also, if you find an area that is usually painless, save that area for the most stressful moments.

I always stand up to inject, it seems to hurt more sitting down. I guess standing up stretches the skin more.

If she hasn't yet learned to inject herself, maybe she would prefer this, as it's easier to avoid pain if you're doing it yourself.

All the best!

EDIT: Oh God, I noticed hypo symptoms just after writing this, and I was at 2.6 mmol/L! Treated immediately but now I feel vertigo and anxiety and like my veins are full of metallic sludge. Curse this disease.
 

iHs

Well-Known Member
Messages
4,595
When I read threads like this, it makes me get a bit upset and annoyed that so many young kids new to diabetes are being started off on the bolus/basal regime without any real thought shown by consultants or dsn's as to how children will cope with repeated injections every day. Their way of looking at things is more or less..... they have no option but do the injections, otherwise face complications as they get older and that bolus/basal handles pizza and other tasty carp ok but does it??? If bolus/basal regime was so easy to comply with and get good control, then why is it that insulin pumps have flourished and why is it that books on the regime are available?

Your daughter is not old enough yet to realise the danger of having high bg levels but usually the human body tells us where we are going wrong as when blood glucose levels rise too high, we all start to feel thirsty and constantly on the loo, feel tired, go down with infections and then we all start to realise that we have to tow the line regardless and we do get used to doing the injections and device our own way of doing them discretely etc.

Do have a good chat to your daughter about the injections as diabetes is not going to pack its bags and walk out the front door (Yet). I think that twice daily injections being done by pen with a 4mm needle will be ok for her to accept as long as a compromise is made over the quantities of carb eaten which is not a bad thing really.
 

hanadr

Expert
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8,157
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Children ARE frustrating and sometimes simply will not co-operate. You will have to be gentle but firm. Difficult I know. High Bg will not help her frame of mind. You may need to threaten or even take her to A&E
You will get through this and I'll bet it won't be the only time.
Once this episode has blown over, which it WILL try sitting her down in a calm mood and making it clear what her responsibilities and yours are in the control of her diabetes. It may be worth you each writing down how you see things and both signing each other's. Children in the pre-teens often respond to being treated like adults.
Good luck to both of you
Hana
 

Morganator

Well-Known Member
Messages
304
Have you tried letting her inject himself under supervision? I ask because I sometimes need intra-muscular injections which I find painfull if the nurse or Doc does them yet not as bad if I do it myself.
It may just be mind over matter but personally I feel more in control and therefore feel less pain.

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Shell1

Well-Known Member
Messages
388
Type of diabetes
Parent
Treatment type
Pump
Hi , yes she injects herself her preference being arms but now has to avoid one as has lumps ....
Andys... We're being given pump in jan on the condition she will have it in her belly which is causing majour upset as she hates it there so will have to see how That goes.i no the pump would help lots as her bloods are all over the place at the moment where she is having numerous corrections a day so I can understand her anger and upset.
Mentat ......Deep breaths such a good idea I will try that as most times she so worried about it hurting i think it makes it hurt 10x worse!
IHs..... Not sure 2 injections a day would work for Chloe I have spoken to the nurse but because Chloe is so active and does gymnastic as a sport she said she needs carbs for this and to eat frequently .
Hansard ... When she's calmer writing stuff down seems a fantastic idea she did this for her nurse on pros on cons about her worry regarding the pump .
All in all its so hard for her and everyone with diabetes.she does understand to some extent the dangerous of high bloods I've told her it can damage her eyes and she coul need glasses and it can damage her feet,I haven't gone into full detail as I'd scare her to death but she knows she needs to be responsible but putting it in to practice is getting on her nerves now and I don't blame her but your right its not going away and we need to learn to deal with it
Thanks everyone



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iHs

Well-Known Member
Messages
4,595
Diabetics who use twice daily insulin can do loads of exercise if they wish. They just eat some carb before doing it to counteract the drop in bg levels just like your daugnter does now...... it wont be that different

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mentat

Well-Known Member
Messages
419
Type of diabetes
Type 1
Treatment type
Pump
Something important to know about exercise:

Glucagon is the opposite of insulin; it raises blood sugar by releasing stored glucose from the liver. When exercising, the pancreas produces glucagon (even in a type 1) to help supply the energy you need. HOWEVER, high levels of insulin prevent glucagon from being released.

This means that when exercising, if she's recently had a meal or correction bolus, her body won't be able to supply sugar from the liver and instead she needs to eat something. However, if it's been a few hours since having a bolus, she probably doesn't need to eat (or can eat much less) as her liver will supply the sugar she needs.

This also means that if she has a snack before exercising it's probably better not to bolus for it as the bolus insulin will make it hard for her body to prevent a hypo.

Of course "your mileage may vary"; observe how she reacts to things, but maybe this will help you make more sense of how her sugars behave.
 
D

Deleted member 45091

Guest
Hate to see kids struggling, I cant tell you all the stuff you should do but when I was diagnosed at 10 years old I was on 2 injections a day well still am now to be honest but when I was younger 2 injections aday was fine I ate at similar times had snacks etc it taught me a routine to eat regular etc, iam still gobsmacked they try to introduce the nova rapid or levimir glagine etc too young kids its too much too handle I still cant handle it at 33 years old lol. I had my 2 injections a day and any exercise I would have a chocy bar etc. I would like to say iam not a medical specialist but.. if you can handle roughly set meals at the same times everyday then I suggest ya do 2 injections a day
 

Shell1

Well-Known Member
Messages
388
Type of diabetes
Parent
Treatment type
Pump
How is your control and your hbac1? If you don't mind me asking?Two injections would make her life easier and I would be happy to talk over with the nurse if I knew it wouldn't effect her having good control. Thanks


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D

Deleted member 45091

Guest
Hi at the moment my control is rubbish but I also drink and smoke and do the things I shouldn't do really when I was diagnosed at 10 I had 2 injections a day ate at set times and was very much in routine which isn't very flexible but suited me. I never took my meter once with me at school as I knew what my body was doing. I was fit with running football etc swimming and just ate a chocolate bar etc before any excersise. I was very fit and active and always had a HBA1C of 6/7 percent. I was introduced to the Nova rapid glagine and then levimir a few years back. Lost a load of weight through high sugars and just couldn't get on with it was having ketones all the time. Eventually after a couple years of it demanded to go back to my 2 injections a day. but iam on half the dose I was and gradually working it back up. but what ive decided to do is stick to my 2 injections a day and if I really need to I can have some nova rapid if my sugars get too high. People choose different regimes but 2 injections a day while I was growing up suited me fine.