Dupuytren's Contracture...

[Dr Zordas]

Any one else here suffer from Dupuytren's Contracture...?

I keep forgetting to mention it when I'm at the doctors, seems to be getting worse

 

[carty]

I have this condition I havent had it diagnosed yet it isnt causing me any problems at the moment It seems it may be more common in people with diabetes
CAROL

 

[Dougal]

I have been diagnosed with this, but it only seems to affect my pinkies. Not been too much of a problem so far, but I'm pleased about the new enzyme used to treat this. It seems a better option than what has previously been offered.


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[Sugar free Stu]

Hello. I have Dupuytren's Contracture in both hands and quite server on my right hand little finger. It will be operated on in the next few months. It is apparently quite common in diabetics. I have a painful right shoulder that with daily exercise I prevent freezing. The consultant stated that the same thickening substance that forms in the fingers also forms in the shoulder joints. Just for interest and do any of you other posters have or had problems with a frozen shoulder?

 

[Lisbet]

I don't have either of your conditions, but have cheiroarthropathy, which has same cause and stops your fingers opening and closing easily - took 30 mins to open my fist some mornings. Also have had trigger fingers. BUT just wanted to say that I had symptoms completely controlled (it was a miraculous improvement) after cortisone injections, so very pleased to share this 'Ray of hope'!


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[Yorksman]

Any one else here suffer from Dupuytren's Contracture...?

Bloody Vikings!

Instances of DC in the UK have long been associated with the Norse Settlement, The Vikings and Baron Dupuytren's Disease, and recently with particular genes:

Mapping of an autosomal dominant gene for Dupuytren’s contracture to chromosome 16q in a Swedish family

"Dupuytren’s contracture (DC) (OMIM 126900) is the most common connective tissue disease of mankind and has both heritable and sporadic forms. The inherited form is most frequently observed among the xanthochroi peoples of Northern Europe where its most common manifestations are thickening of the palmar fascia and contracture of the fingers."

Many famous people have had it including politicians such as Margaret Thatcher and Ronald Reagan, cricketers such as David Gower and Graham Gooch and even pianist Misha Dichter.

 

[Johnroy]

Hi, been reading about statins and noticed this thread. Been getting a pain in top of shoulder for a while also. Thinking of stopping the statin and seeing what happens. But yes I am keeping shoulder moving so as not freeze any more than it has. I do Pilates once a week which is a help alround

 

[Miklo]

It is an odd one this as I have it in my right hand but the doctors never link it to my diabetes however 2 people I know locally with diabetes both have it on both there hands to there is a statistic. Then my brother who is not diabetic developed it in both hands and it has developed quickly there seems to be a lot of factors drink diabetes etc etc that compound to make it happen. Any intricate moement with the hand,tendons and sheaths and poor control can accelerate this. Keep things moving I flatten the hand with force each day as a matter of stretching which my doctor says is a good idea and have managed to keep the hand and fingers flat since I noticed it develop 15 years ago. Its the same as I have said before how it binds tendon up is strong bur the will of the mind is stronger so keep things moving.

 

[andy williams]

http://www.diabetes.co.uk/forum/threads/dupytrens-contractures.48490/#post-482349

 

[william thomast1]

It is an odd one this as I have it in my right hand but the doctors never link it to my diabetes however 2 people I know locally with diabetes both have it on both there hands to there is a statistic. Then my brother who is not diabetic developed it in both hands and it has developed quickly there seems to be a lot of factors drink diabetes etc etc that compound to make it happen. Any intricate moement with the hand,tendons and sheaths and poor control can accelerate this. Keep things moving I flatten the hand with force each day as a matter of stretching which my doctor says is a good idea and have managed to keep the hand and fingers flat since I noticed it develop 15 years ago. Its the same as I have said before how it binds tendon up is strong bur the will of the mind is stronger so keep things moving.

Yes I have just discovered a very mild DC -a small hard swelling below my second finger left hand. No problems yet [am worried by references to an eventual frozen shoulder though]. Coincidentally, 20 years ago I played in an old boys rugby match [never a good idea] and my left hand was trodden on. My left hand then "clawed" for about ten years but is now almost straight. I have been Type 1 D for 15 years and have a few other mild auto-immune conditions [see my separate fred].

 

[popsy]

My partner had DP in 7 of his fingers so badly that he had both his hands operated on at the same time. His previously clawed fingers are now straight and he no longer pokes himself in the eye! The specialist told him he must have Viking ancestry too. He isn't diabetic.
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[))Denise((]

I've got it mildly in both hands. It developed in the five years when I was undiagnosed. In people with diabetes it is caused by high sugar levels. Mine hasn't progressed since I was diagnosed and got controlled. I've seen the Viking link, but there is nothing in my family to suggest this.

 

[tomvonc]

Any one else here suffer from Dupuytren's Contracture...?

I keep forgetting to mention it when I'm at the doctors, seems to be getting worse

I had/have it on the ring finger of my right hand. Never really caused me any bother (Except when diving, my OK hand sign looked wierd) I left it till it was stuck at 90 degrees before I got treatment. Was a half hour surgery job to get it fixed, out of hospital in a few hours. 6 years later, no signs of it returning.

Tom

 

[Posytoes]

I'm a T1 of 35 years standing and have DC in both hands - all fingers and thumbs - for about five years. My palms are very lumpy but my fingers are still straight. My aunt, father and grandfather all had/have it but my two sisters - both non-diabetic don't. I saw a hand consultant who didn't want to do anything because she said there wasn't enough information about treatment of DC in T1 diabetics.


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[neilwills]

Hello. I have Dupuytren's Contracture in both hands and quite server on my right hand little finger. It will be operated on in the next few months. It is apparently quite common in diabetics. I have a painful right shoulder that with daily exercise I prevent freezing. The consultant stated that the same thickening substance that forms in the fingers also forms in the shoulder joints. Just for interest and do any of you other posters have or had problems with a frozen shoulder?

I have DC but it's not that bad at the moment. However, my shoulders are bad. Very limited movement, can't touch my hands behind my Bach etc. I put it down to years of playing rugby but since reading the posts can see it may be linked to my type 1. Any advice

 

[Indy51]

Someone posted at another forum that taking glucosamine/chondroitin is not a good idea if you have DC as it can encourage growth:

http://www.dupuytrens-society.org/disease_info_dupuytrens.html
http://www.dupuytren-online.info/dupuytren_stages_therapies.html

 

[Sugar free Stu]

I have DC but it's not that bad at the moment. However, my shoulders are bad. Very limited movement, can't touch my hands behind my Bach etc. I put it down to years of playing rugby but since reading the posts can see it may be linked to my type 1. Any advice

All I can suggest is keep streaking the shoulders. I put my arm over the opposite shoulder and gently push the elbow in the direction of the shoulder that the arm is over. Hope that makes sense, maybe we should start yoga?

 

[elvis the cat]

I have both d/c & ledderhose disease . my hands are lumpy & I have a trigger finger . my feet are also lumpy so I feel like I am walking on marbles .
add a frozen shoulder to that 2 . oh well never mind u gotta laugh or in my case crack

 

[BaliRob]

@Indy51

Thank you so much for the two links - they were very helpful.

In my case I thought that the nodules in the palm of my left hand were callouses caused by many years of using the gear lever whilst driving ha ha ha. Obviously not but have had them for many many years. It is only during the past few months that I found my hand to be clenching at night whilst asleep and when awake to be aware of a tight uncomfortable feeling when trying to make a fist. However, only one finger (4th) is at stage 4 but will release at the knuckle joint by itself if mentally encouraged to.

The links heartened me by stating that if one is over 70 then surgery will be unlikely. However, I would be grateful for details of the "new enzyme"
mentioned by a previous poster to this thread.

 

[Dougal]

The new treatment is still under review by NICE.
http://www.nice.org.uk/nicemedia/live/14256/65594/65594.pdf


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