8 months into diagnosis

[emsg]

I got diagnosed with T1 back in june 2013. Since then I haven't managed to controll it, times I just eat food without even injecting which then of course leaves me with high levels. I've had so many time where I just want to slap myself for not controlling it and half the time just have breakdowns thinking of the worst things I could be causing to my body.
I have no one I can sit talk and relate too because they don't understand deep down how I feel.
Has anyone else had trouble and how long did/does it take to be able to get into that routine of controlling it?

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[femme2711]

Hi I've been diagnosed for 10yrs the 29th of December this year.... And I still do what you do. It's really hard and if people don't understand they can be a bit patronising and not realise how much it affects you. I know I don't have people who really understand and they think it's so easy 'just to inject', but it's much more than that. Even now I have to have an alarm on my phone or I forget to take my night time needle. I suppose it's such an individual thing, I kinda went through the stages of grief and am still battling with it- but it's much better. Sometimes I just get caught up in life but then other times I'm a rebel without a cause. I haven't found it easier- I've just found I'm more accepting of it, so feel better but I always relapse- I'm a human after all. It will take some getting used too, it's not an easy thing. Don't be so hard on yourself you've a life time to try and control it the best you can. Best advice I can give is to celebrate the smallest of successes and take one day at a time- that's what you have control over. If you manage a day that's one good day towards your future! ( I really should take some of this advice!) I may have just rambled on abit there but it's something we all go through and battle with. Good luck


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[lucybots]

I have had quite a struggle myself most part of it was because of the denial.i mean one day I was fine and the next I was told m gonna have to live with injections for the rest of my life.whats worse for me is that soon after diagnosis I went into remission and actually thought doctors were wrong.its a long journey jus be patient and you will fall into the rhythm of things

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[kkkk]

I got diagnosed with T1 back in june 2013. Since then I haven't managed to controll it, times I just eat food without even injecting which then of course leaves me with high levels. I've had so many time where I just want to slap myself for not controlling it and half the time just have breakdowns thinking of the worst things I could be causing to my body.
I have no one I can sit talk and relate too because they don't understand deep down how I feel.
Has anyone else had trouble and how long did/does it take to be able to get into that routine of controlling it?

Sent from the Diabetes Forum App

It is hard, and it is a constant battle of balancing (I know not something you want to hear) but you can do it, you do need to be careful but it isn't impossible and the more control that you have over diabetes the more freedom you can have - if that makes sense, I know you might not feel free with testing, injecting, checking carbs considering what you are doing next but if you do all things and can control your sugar then you will feel better in yourself (as too low or too high makes you feel a bit rubbish) and you can enjoy life more even with a little more routine in it. It also means you don't need to worry so much about the future with it….so just go for it do your best it will get easier the better you get to know your body and how it responds to exercise and foods etc. it is a big learning process.

Maybe look into pumps and things like that so you can have more control over what you eat and when and although not on one yet it might help with the flexibility that you would like

 

[EwanBarr]

Hi

I got diagnosed in May 2013, so just before you. Total shock. I got told I was type 2, then it went into remission, but was then told it is type1. I started injecting in September and I kept on forgetting to inject, I've now got into the habit but I've gone back into remission. Very frustrating.

What I would say is don't be hard on yourself, this sites pretty good as everyone's in the same boat so it can be a good reference point.

 

[emsg]

Hi I've been diagnosed for 10yrs the 29th of December this year.... And I still do what you do. It's really hard and if people don't understand they can be a bit patronising and not realise how much it affects you. I know I don't have people who really understand and they think it's so easy 'just to inject', but it's much more than that. Even now I have to have an alarm on my phone or I forget to take my night time needle. I suppose it's such an individual thing, I kinda went through the stages of grief and am still battling with it- but it's much better. Sometimes I just get caught up in life but then other times I'm a rebel without a cause. I haven't found it easier- I've just found I'm more accepting of it, so feel better but I always relapse- I'm a human after all. It will take some getting used too, it's not an easy thing. Don't be so hard on yourself you've a life time to try and control it the best you can. Best advice I can give is to celebrate the smallest of successes and take one day at a time- that's what you have control over. If you manage a day that's one good day towards your future! ( I really should take some of this advice!) I may have just rambled on abit there but it's something we all go through and battle with. Good luck

Ahh it seems a relief when you hear the same from others going through what I am.
I just find it so stressful and time taking when I just want to eat instead of having to check my levels and then inject. I'm absolutely useless at carb counting I don't even bother with that part which is possibly not a good thing. People say "it will get easier when it's controlled" my opinion .. I don't think it will ever get easier it'll just become more accepting. I'll defo keep your advice in mind though. Thank you

 

[emsg]

Yeah I had been in complete denial for the first couple months then it became too much that I actually became depressed so on top of my insulin taking im also on anti depressants. I was very overwhelmed when I got diagnosed my levels were so high and wouldn't come down I had to stay in the hospital for the night luckily got sent home the next evening. I just hope to get into routine with it soon!

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[ConradJ]

Hi there EMSG,

It took me 36 years, vast amounts of laser surgery and a vitrectomy to my right eye to make me realise that only I can manage my diabetes. My control had been total c£@? for so long that I couldn't accept what and where I was going wrong.

It is hard - even at the best of times, but doing your injections,blood tests, etc., and getting good control are worth it. I now have two wonderful daughters (2yrs 9mths, and 2 months) and I dread every day that I have left it too long to really save my sight - to see them grow up, etc.

Diabetes is 90% self management, and 9% support - from your family, friends, diabetes specialists and forums like this one... I've only been a member for around a year, but one thing I've noticed is that no-one tires of being there for someone whose struggling (or cheering on someone who's succeeding).

Don't give up - there are far too many beautiful things in this world to miss; and don't go down my road - if you're struggling, talk / ask questions and seek help from your diabetes specialists - you'll be suprised at just how many of them want to help. (There's always a few rotten apples...)

The image, below, illustrates what I could see with my right eye prior to the vitrectomy:

Best wishes - and good luck (that's the 1%)

 

[emsg]

Hi

I got diagnosed in May 2013, so just before you. Total shock. I got told I was type 2, then it went into remission, but was then told it is type1. I started injecting in September and I kept on forgetting to inject, I've now got into the habit but I've gone back into remission. Very frustrating.

What I would say is don't be hard on yourself, this sites pretty good as everyone's in the same boat so it can be a good reference point.

Glad I'm not on my own! It seemed to feel like I was the only one suffering possibly more because I had no one to relate with but seeing peoples storys and struggles on here has helped.
I just seem to become lazy when I need to inject the fact it stings at times on my stomach and my legs just keep bruising. I always think so negatively about the dangers T1 can cause and then I end up thinking "why me?" .. I suppose it'll come in time though ahy!

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[femme2711]

I was the same... Don't take needle or check bloods unless I was so thirsty I couldn't take it anymore or was hypo. I would even have food with my needle in reach and still not take it. I went on a carb counting course and instead of counting carbs I would wait for a few hours and just correct after. Again it's wrong but I wasn't bothered- only just started to try recently to be proactive and it time consuming and a pain and I don't always do it right. I went from testing my blood about 3 times a week and am testing about 5 times a day now. Fingers kill and I bruise... But I'm jumping through hoops to try and get the pump, so feel like there's light at the end of the tunnel! It's just a bloody long tunnel!


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[Georgiepeas]

I was diagnosed in April last year and I often forget my injections because I still can't get used to it! I've started to think of it more as a challenge now and have been trying to be more enthusiastic about getting on top of it. It's hard when you don't know anyone else with it because no one else really understands even though they try to! You're definitely not on your own

 

[lucybots]

Why me question I guess to be expected but it is also a setback as you will never get the answer.imagine would u rather it be mom or dad or daughter...iv accepted that diabetes chose me to show how strong and brave I can be.it awoke me from a pit of ignorance and thoughtlessness so dont view it as a sickness but rather a mountain that yoh have to be on top of no matter what.what you doing now is taking warm ups to go up the mountain

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[donnellysdogs]

Why me? Same question I asked myself every night for 6 weeks when I cried myself to sleep.

Its natural to think that. Its a shock and you are young. It is in the targets that gp's are set nowadays to check people with diabetes for depression... So thats proof that you aren't alone.

There's nothing wrong with having anti depressants if you need them, but you really ought to be considered for counselling.

It is tough on diagnosis. Ask your DSN or doctor if they can support you more by having a counsellor to talk to.


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[emsg]

I was the same... Don't take needle or check bloods unless I was so thirsty I couldn't take it anymore or was hypo. I would even have food with my needle in reach and still not take it. I went on a carb counting course and instead of counting carbs I would wait for a few hours and just correct after. Again it's wrong but I wasn't bothered- only just started to try recently to be proactive and it time consuming and a pain and I don't always do it right. I went from testing my blood about 3 times a week and am testing about 5 times a day now. Fingers kill and I bruise... But I'm jumping through hoops to try and get the pump, so feel like there's light at the end of the tunnel! It's just a bloody long tunnel!


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This sounds exactly like me, even with my needles in reach I just dont inject. It just seems as if I haven't managed to get the right frame of mind on me. I always sit there and think "I must have haf T1 months before I got diagnosed and nothing bad had happened so why should it matter now" I suppose I just haven't got that positive attitude and being able to accept that I'll be injecting for the rest of my life.
And obviously the big problem is when you just can't relate to anyone properly. They try to understand you but deep down they don't know what you're really going through!

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[emsg]

I was diagnosed in April last year and I often forget my injections because I still can't get used to it! I've started to think of it more as a challenge now and have been trying to be more enthusiastic about getting on top of it. It's hard when you don't know anyone else with it because no one else really understands even though they try to! You're definitely not on your own

Yeah this is relatable. I've found it very challenging since I started working in September. Part of me feels that I jumped into working too quickly before coming to terms about being T1 but now I don't want to pull out of work because of diabetes. &of course not having anyone to understand fully how you're feeling is hard.

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[emsg]

Why me question I guess to be expected but it is also a setback as you will never get the answer.imagine would u rather it be mom or dad or daughter...iv accepted that diabetes chose me to show how strong and brave I can be.it awoke me from a pit of ignorance and thoughtlessness so dont view it as a sickness but rather a mountain that yoh have to be on top of no matter what.what you doing now is taking warm ups to go up the mountain

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Great advice. I have also sat there and said to my mum that there has to be a reason to why I was the one to have T1 when there's been no past relatives to have it.
As I was told by the diabetic doctor I'm still in the 'honeymoon period'

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[emsg]

Why me? Same question I asked myself every night for 6 weeks when I cried myself to sleep.

Its natural to think that. Its a shock and you are young. It is in the targets that gp's are set nowadays to check people with diabetes for depression... So thats proof that you aren't alone.

There's nothing wrong with having anti depressants if you need them, but you really ought to be considered for counselling.

It is tough on diagnosis. Ask your DSN or doctor if they can support you more by having a counsellor to talk to.


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It is a constant question I have on the back of my mind. But then there's never an answer to it (as of yet)
I was recently under counselling but I didn't find it helped. It was more of my own attitude then what help they offered tbh.
I think it's just more of needing to get that positive mind on and start believing that I can control it and make it part of my life then have it take control of my life!

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[kkkk]

It is a constant question I have on the back of my mind. But then there's never an answer to it (as of yet)
I was recently under counselling but I didn't find it helped. It was more of my own attitude then what help they offered tbh.
I think it's just more of needing to get that positive mind on and start believing that I can control it and make it part of my life then have it take control of my life!

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Yep - you can control it. There was no one else in my family with it, came out of the blue for us, but it's on my plate and I need to deal with it, as much as I would LOVE even just one day off! Start by setting yourself realistic targets - where you want your sugars to be - take achievable steps, and then tighten up - don't beat yourself up when it isn't perfect, diabetes always throughs in an unexpected curve ball every now and again, just to keep us on our toes but you can take control of it rather than the other way around as you said.

There are loads of us here who are more than happy to share our experiences with you and encourage you along the way

 

[emsg]

Yep - you can control it. There was no one else in my family with it, came out of the blue for us, but it's on my plate and I need to deal with it, as much as I would LOVE even just one day off! Start by setting yourself realistic targets - where you want your sugars to be - take achievable steps, and then tighten up - don't beat yourself up when it isn't perfect, diabetes always throughs in an unexpected curve ball every now and again, just to keep us on our toes but you can take control of it rather than the other way around as you said.

There are loads of us here who are more than happy to share our experiences with you and encourage you along the way

Yeah mine just came out the blue aswell.
Ah that sounds good, I might have to take that advice and try it

Thanks, feels better when you hear from other who are in the same situation or similar.

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[itconor]

I got diagnosed with T1 back in june 2013. Since then I haven't managed to controll it, times I just eat food without even injecting which then of course leaves me with high levels. I've had so many time where I just want to slap myself for not controlling it and half the time just have breakdowns thinking of the worst things I could be causing to my body.
I have no one I can sit talk and relate too because they don't understand deep down how I feel.
Has anyone else had trouble and how long did/does it take to be able to get into that routine of controlling it?

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Im 11 Years in Now Started Well Controlled but when i was 18 had a year or so gap of not really caring thankfully as far as i can tell i caused myself no lasting damage.

Routine and Carb Counting is key. you may like me start out thinking that its a lot of effort but trust me. weighing and counting everything reduces the the amount of effort you have to put into treating highs and lows. once you get the routine thing down i like to start playing a game of guessing what my blood sugar will be while my machine is testing youll find it gets pretty predictable (most of the time).