Hi everyone,
My son was diagnosed with T1 last week at 5 years of age (he turned 6 on Tuesday) and we are still waiting for it all to sink in really. My son has behavioural issues and has been referred to CAHMS as they believe he is 'somewhere on the spectrum' . I already found day to day life an incredible struggle with things like getting him to school, etc, as he has complete and utter meltdowns and loses control. Due to the length of the waiting list it will be several more months before CAHMS can offer us even an initial appointment. Now he has been diagnosed T1 I feel like I can't cope anymore. He isn't taking very well to the injections and has to be held down to have them. I understand it's completely normal for a child of his age to find all this terrifying, but everyone keeps on saying 'he will get used to it' however my son doesn't get used to things. He has 'ok' days in every aspect of his life, but these are always outweighed by bad days where you just cannot reason with him. He doesn't have what is considered to be 'normal emotional responses' to general everyday situations, so how on earth is he supposed to respond to this. My husband works long hours (gone from 6.45am to 10.45pm every day) so I have to deal with it all alone and I also have an 8 year old boy and 2 year old girl to look after, so I'm currently feeling overwhelmed
We are still trying to get his insulin levels right, adjusting them a little a day at a time. But his BG levels currently spend most of the day in the teens. The diabetes nurse had been phoning daily to check how he was and direct any adjustments and she was supposed to call today to see that we were ok for the weekend but she didn't, and I couldn't get hold of her. My son has been constantly hungry since starting on insulin and I am struggling with what to give him. I am feeding him healthy balanced meals along with a healthy slow-releasing carb snack between each meal to try and keep his blood sugars stable but he wants to eat every second of the day so I am trying to appease him with low carb snacks that wont affect his blood sugars too much the rest of the time to try and keep him more stable. I am struggling with ideas for snacks though as he is already sick of eating cheese, raw vegetable sticks, ham and sugar free jelly and he doesn't like the other items on the list we were given, like olives, seeds, nuts, etc, so if anyone has any other snack ideas it would be much appreciated.
I am also really worried about what will happen when he goes back to school. They are still on holiday till Monday so the school knows nothing about it till then. It will be a real struggle having to drag my toddler up to school at lunch time every day to give my son his injection and I am also feeling a lot of anxiety about the idea of him being out of my care while at school and worry he won't be monitored properly, etc.
Also he has yet to have a hypo and I am feeling really panicked about it happening and worried something severe will happen to him. I feel like I will never have a full nights sleep again. Please tell me this anxiety will subside, I can't go an like this.............. Any advice or experience would be much appreciated.
Thanks,
Jayne
My son was diagnosed with T1 last week at 5 years of age (he turned 6 on Tuesday) and we are still waiting for it all to sink in really. My son has behavioural issues and has been referred to CAHMS as they believe he is 'somewhere on the spectrum' . I already found day to day life an incredible struggle with things like getting him to school, etc, as he has complete and utter meltdowns and loses control. Due to the length of the waiting list it will be several more months before CAHMS can offer us even an initial appointment. Now he has been diagnosed T1 I feel like I can't cope anymore. He isn't taking very well to the injections and has to be held down to have them. I understand it's completely normal for a child of his age to find all this terrifying, but everyone keeps on saying 'he will get used to it' however my son doesn't get used to things. He has 'ok' days in every aspect of his life, but these are always outweighed by bad days where you just cannot reason with him. He doesn't have what is considered to be 'normal emotional responses' to general everyday situations, so how on earth is he supposed to respond to this. My husband works long hours (gone from 6.45am to 10.45pm every day) so I have to deal with it all alone and I also have an 8 year old boy and 2 year old girl to look after, so I'm currently feeling overwhelmed
We are still trying to get his insulin levels right, adjusting them a little a day at a time. But his BG levels currently spend most of the day in the teens. The diabetes nurse had been phoning daily to check how he was and direct any adjustments and she was supposed to call today to see that we were ok for the weekend but she didn't, and I couldn't get hold of her. My son has been constantly hungry since starting on insulin and I am struggling with what to give him. I am feeding him healthy balanced meals along with a healthy slow-releasing carb snack between each meal to try and keep his blood sugars stable but he wants to eat every second of the day so I am trying to appease him with low carb snacks that wont affect his blood sugars too much the rest of the time to try and keep him more stable. I am struggling with ideas for snacks though as he is already sick of eating cheese, raw vegetable sticks, ham and sugar free jelly and he doesn't like the other items on the list we were given, like olives, seeds, nuts, etc, so if anyone has any other snack ideas it would be much appreciated.
I am also really worried about what will happen when he goes back to school. They are still on holiday till Monday so the school knows nothing about it till then. It will be a real struggle having to drag my toddler up to school at lunch time every day to give my son his injection and I am also feeling a lot of anxiety about the idea of him being out of my care while at school and worry he won't be monitored properly, etc.
Also he has yet to have a hypo and I am feeling really panicked about it happening and worried something severe will happen to him. I feel like I will never have a full nights sleep again. Please tell me this anxiety will subside, I can't go an like this.............. Any advice or experience would be much appreciated.
Thanks,
Jayne