Not Allowed Meter strips on Prescription

Eva_Dreamer

Newbie
Messages
2
Has anyone else come accross this one?
Am type 2, metformin diabetic. My nurse says I can't get a prescription for my meter strips as according to them 'those on metformin should be well controlled', but I am not and she knows it.
So, surely to help me control it I would need the strips - ?! hardly rocket science is it?
Then, when asked directly, she said that so many people abuse the strips (???!!!!) they don't give them out anymore.
So, my choices - buy strips at £20 + per packet or not.
Eva_D.
 

sugarless sue

Master
Messages
10,098
Dislikes
Rude people! Not being able to do the things I want to do.
If you are in England quote the NICE guidelines at her how Type 2's should be encouraged to manage their diabetes. Show her that you are not going to 'abuse' your test strips ,that you genuinely what to be pro active and how can you see what effect food has on your blood sugar levels if you can't test?!

http://www.nice.org.uk/Guidance/CG66/Pu ... oc/English
 

Fenster

Active Member
Messages
26
Some test strip information.


House of Lords Hansard 23 June 2008


Viscount Falkland asked Her Majesty’s Government:
What was the scientific basis for the National Health Service’s recent announcement that self-testing of blood sugar levels by type 2 diabetes patients is unnecessary.

Baroness Thornton: My Lords, as the noble Viscount may now be aware, the National Health Service has not made an announcement advising people with type 2 diabetes to stop self-monitoring their blood glucose, although media reports were ambiguous. In May 2008, the National Institute for Health and Clinical Excellence—NICE—issued guidance on the management of type 2 diabetes, which includes advice on the self-monitoring of blood glucose. NICE guidelines continue to advise that, as part of an integrated package that includes patient education, the self-monitoring of blood glucose can have benefits for some patients.

Viscount Falkland: My Lords, I thank the noble Baroness for her Answer. Diabetics such as me will be reassured that NICE has come out with the decision that she has announced. NICE is not known for making hasty decisions. The decision is certainly in conflict with what was reported in the press. I am sure she is aware that diabetics have a difficult job combining exercise, diet, medication and monitoring, which is absolutely essential, to see that what they are doing is correct. Are we not seeing here a cost-benefit exercise, where the costs are too well known and the benefits not truly understood?

Baroness Thornton: My Lords, as I said in my Answer, we have not advised people with type 2 diabetes to stop self-monitoring. However, the recent publication of two blood-glucose monitoring trials in the British Medical Journal has given rise to a debate about the

23 Jun 2008 : Column 1227

benefits of self-monitoring. This is a useful addition to the debate, but the key point about self-monitoring is that it should be suggested on a patient-by-patient basis. It should include structured patient education so that the patient understands what to do with the information that they are collecting. I think the noble Viscount will agree that that is absolutely the key point. However, prescribing decisions about blood-testing strips are for local determination. Primary care trusts should not impose a blanket policy on testing strips for people with type 2 diabetes. Healthcare professionals should work with people with diabetes to make joint decisions about the value of self-monitoring blood glucose and prescribe accordingly.

Lord Acton: My Lords, like the noble Viscount, Lord Falkland, I declare an interest in that I have type 2 diabetes, as no doubt do many other noble Lords. Is my noble friend aware that I am terrified of blood and machines? However, when I started testing, I persevered, and like the noble Viscount I now find blood testing an invaluable guide. This morning, my test was high. I realised that I had eaten too many boiled potatoes last night and will not do so again. Will my noble friend do all she can to publicise—I do not think that she stressed this point—the potential benefits of blood testing to type 2 diabetes sufferers?

Baroness Thornton: My Lords, I am very sorry to hear that my noble friend ate too many potatoes.

Lord Acton: Boiled, my Lords.

Baroness Thornton: Boiled or whatever, my Lords, I am glad to hear that my noble friend is aware of that. He makes the point about the programme that he is part of. It was set up by the Department of Health and is called DESMOND—Diabetes Education and Self-Management for Ongoing and Newly Diagnosed—and it is vital for supporting people to manage their condition. It is about people with type 2 diabetes getting the right kind of education to ensure that they can self-monitor in the way that my noble friend referred to. The department recently issued further guidance to PCTs to the effect that they should use this as part of their ongoing programmes to support diabetes sufferers.

Baroness Tonge: Nevertheless, my Lords, there is some confusion here. NICE has said that self-monitoring blood glucose should be available to all on the basis of individual need and not on the ability to pay. Yet PCTs in some areas, as we have just heard, are restricting or denying access to that test for type 2 diabetics. Will the Minister therefore tell us whether the next stage will be to deny NHS treatment for diabetes to people using private means to monitor their own blood glucose?

Baroness Thornton: My Lords, the noble Baroness is stretching the points of various debates but the point is well made about local decision-making, which indeed is the point. Blood-testing strips are costly and make up a significant proportion of the total number of diabetes items prescribed. However, notwithstanding my noble friend’s squeamishness, for some people with

23 Jun 2008 : Column 1228

type 2 diabetes the use of blood-testing strips for self-monitoring will help them to understand how diet, exercise and medication can impact on their glucose levels. Primary care trusts should ensure that where people with type 2 diabetes are self-monitoring they fully understand those results. They do form a part of the free overall care package which includes structured education in this matter.

Baroness Masham of Ilton: My Lords, is the Minister aware that high blood sugar can be exceedingly dangerous and trigger a stroke? Can she say why these testing strips are so expensive? My late husband had diabetes, so I know a lot about it. The condition is extremely complicated.

Baroness Thornton: My Lords, I cannot say why they are so expensive, but I will endeavour to find out. They are very important. They are not only about identifying glucose levels but about the whole health of the person with diabetes and all the related ailments that might go with it. The noble Baroness is perfectly right.

Lord Harrison: My Lords, I declare an interest as having just recently completed my first 40 years as a type 1 diabetic. Does my noble friend take with alarm the report in today’s Timesabout the high incidence of diabetes in children? Does she further recognise the important role of specialist diabetic nurses who advise on the regime that we diabetics observe and who can give advice on monitoring systems? Given the news that diabetic specialist nurses have on average some 300 patients when the ideal number is 70, is she not worried about advice for diabetics on maintaining good, healthy regimes?

Baroness Thornton: My Lords, given my noble friend’s youth, he will know that managing diabetes in children is much more complex than it is for adults. The role of specialist nurses is important. We have urged PCTs to recognise the importance of specialist diabetes teams, including specialist nurses, and the role that they play in reducing hospitalisation and improving outcomes and the support that they can give to young people and their families and carers in enabling them to handle the complex juggling act that is required to manage their condition.

Fenster
 

broads

Well-Known Member
Messages
321
Interesting read. I wonder if Baroness Thornton ever did find out why test strips are so expensive1
 

Aadrgon

Well-Known Member
Messages
670
broads said:
Interesting read. I wonder if Baroness Thornton ever did find out why test strips are so expensive1



probably to counteract the loss of revenue from sales of medication to the NHS :)
 

anne 37

Active Member
Messages
40
read your post and think thats terrible that they won,t supply you with test strips ,l was intially diagnosed with type 2 diabetes and ny diabetes nurse requested a prescription for me for test strips ,and was advised to check my blood sugar before and after meals as my levels were not stable ,l was given to pots of test strips when l needed them ,then 6 weeks later they discovered l was actually type1 and l still recieve the 2 bottles every repeat prescription ,lve been diabetic for over 2 years now,some people don,t have a clue ,its hard enough dealing with the news when your told and it is scarey ,l found being able to check my levels gave me some peace of mind ,cant you explain your concerns to your nurse and ask her to rethink her decision .take care x
 

IanD

Well-Known Member
Messages
2,429
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Dislikes
Carbohydrates
I suggest you get a meter - you can get a free one with 10 strips through this web site.

Then test overnight, before two hours after meals & before the next meal. If any of your readings are over 8, you need better control. Then don't go to the nurse, go to your Dr & ask for strips on prescription.

Do you know what your HbA1c was on diagnosis? Ask Dr for the printout. That will show your average blood sugar for the last 2-3 months, so the next test will show progress. The Drs rely on that test & prescribe accordingly. If you test, you can see what affects your BS & cut out e.g boiled potatoes like the noble lord. [Obviously he needs education in reduced carbs.] If you don't test, you are likely to add to the statistics that show the diabetes is progressing & leads to complications.
 

Shortbread

Active Member
Messages
37
Dislikes
Assumptions, arrogance, bad service
Hi there,

I am recently diagnosed T2 and bought myself a monitor. I rang for a telephone appointment to speak to my doctor as my Diabetic nurse point blank refused to give me a monitor. The doctor replied when I asked for prescription for the strips

" we don't really prescribe strips as it causes severe anxiety and patients will just not eat all day if their BS is too high"

My reply" I simply want to find out the effect different food has on my readings........I dont want to be avoiding food if I don't have to" She then told me the dietician would tell me the different effects of different food has on BS levels. I then alerted her to the fact that I know people who are okay with bananas but when eating one the night before my BS rose to about 8.3. I told her I simply want to learn what is right for me and to be able to keep an eye on my BS and not have to wait 6 months before I know how I'm doing. It took a 15 minute conversation before she prescribed me 50 strips.........and I'm sure she will expect these to last 3 months !!!

Its ridiculous that we have to beg for something that can potentially enhance the ways we are changing how we live!

I would say get to your doctor and let them know how much you have looked into this and that you want to do whats best for you and not be left in the cold when it comes to checking what food works for you! They shouldn't assume that all diabetics will get anxious and freak out when the readings aren't perfect!!!

Caroline x :)


























Caroline x
 

cugila

Master
Messages
10,272
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People who are touchy.......feign indignation at the slightest thing. Hypocrites, bullies and cowards.
Hi Caroline.

It's all about how well informed you are, how assertive you are and if you are prepared to argue your point. Seems like you were all three this time. When you need some more just be the same way again.

Best of luck

Ken :D
 

sugarless sue

Master
Messages
10,098
Dislikes
Rude people! Not being able to do the things I want to do.
Good for you Caroline,It's about time they stopped putting us all in the same box just for their own convenience.
 

Graham1441

Well-Known Member
Messages
189
Dislikes
Stupid people.
Hi all,
Seems to me that our New Labour goverment has found a way of saving millions of pounds by NOT allowing blood testing so people buy there own they can then say you are a not NHS but Private,
so getting you OFF the NHS and making you pay for all your medication and saving all that money.

Remember they are going to turn the lights off on motorways after saying they know full well people will die on dark roads.

Is labour killing off people it does not want to pay for.?

It wont be that long till we have a genral election that gives us time to organise a vote for us, meaning we vote for mp`s who will do something for us and the rest can you know what.
There is enough of us to make a dam differance.
Let you local mp know, i have.

Graham1441.
 

cugila

Master
Messages
10,272
Dislikes
People who are touchy.......feign indignation at the slightest thing. Hypocrites, bullies and cowards.
Graham.

Well said - I write to my MP all the time. He is now quite a nice guy after the initial panic.
i wish more people would get their heads out of the sand and **** well do something - before it's too late. :evil: :evil: :evil: :evil:
Ken
 

Graham1441

Well-Known Member
Messages
189
Dislikes
Stupid people.
How many of us are there, and remember there are husbands wifes children and a lot more who will back us, that could amount to 10 million votes.
I belive Diabetes .co.uk, oh and the other one, lol, should be at the head of this test strip question even to the point of making threats as to how we will vote.
I would put my money on mp`s changing there tune to keep there nose in the trough.
Graham1441
 
C

catherinecherub

Guest
There is a thread on this forum started on Sat.14th March entitled "Letter from G.P. which goes into great detail about the refusal of test strips and links to various papers and suggestions for obtaining them.


Catherine.
 

EricD

Well-Known Member
Messages
132
Dislikes
Bullies and sockpuppets. Not being able to eat I want.
I don't know what you people are complaining about people, the Government is putting the money in to good use like illegal databases instead of wasting it on us useless type 2s. Comeon now, they are only doing for our own good, give them a chance to save us from the "bad guys" will ya. :roll:


Call to scrap 'illegal databases'
USB stick and laptop
The UK spends more than £16bn per year on government databases

A quarter of all government databases are illegal and should be scrapped or redesigned, a report has claimed.

The Joseph Rowntree Reform Trust says storing information leads to vulnerable people, such as young black men, single parents and children, being victimised.

It says the UK's "database state" wastes billions from the public purse and often breaches human rights laws.

But the government says the report contains "no substantive evidence" on which to base its conclusions.

A Ministry of Justice spokesman said the government was "never losing sight" of its obligations under the data protection and human rights acts.

"It takes its responsibilities seriously and will consider any concerns carefully, adapting existing safeguards where necessary," he added.

The government spends £16bn a year on databases and plans to spend a further £105bn on information technology (IT) projects over the next five years, according to the trust.

http://news.bbc.co.uk/1/hi/uk/7955205.stm

They are only spending £16bn a year on illegal databes and want to spend ONLY another £105bn to make sure the databases work properly. I just wished that they didn't keep loosing them all the time. :lol:

%£$%&"% IDIOTS, if they keep on spending bns on useless things there won't be a nation left to defend! :twisted:
 

Elleceedee

Newbie
Messages
1
Hi folks
I'm new to this website and forum so please bear with me if I don't quite get this right first time. I typed into the search facility 'patient education programmes' and found these discussions about testing strips. I sympathise with those of you who don't get these from your GP on perscription, I think you should. My surgery practice nurse gave me a meter and strips as soon as I was diagnosed and my GP has issued testing strips ever since (2007). I think these are crucial to self monitoring and care.
What I'd like you views on is structured education programmes. In 2007 I attended the XPert programme for diabetes in my home town, I found out about it through an article in the local paper, it wasn't promoted by my GP surgery. It was a six week course run by superb experts, a specialist nurse, dietician, with inputs from a GP with diabetic specialism and others. It covered everything I needed to know and more about this awful condition, from the affects of food types to pevention and treatment and complications. I'd love a refresher since its been a while but unfortunately the charity that put this together is no longer running due (I think) to lack of funding and I don't know where else to turn. There are no programmes like this on ofer in my town now. Does anyone know of a similar, good programme in the Greater Manchester area?
Elleceedee :D
 

oojimmyflip

Active Member
Messages
37
Type of diabetes
Treatment type
Insulin
Dislikes
the smell of bacon boiling, sweaty feet, nose pickers and eaters. lol.
in general when I have had a poor service from my GP surgery I go for a econd opinion to my Hospital diabeties clinic, you can walk in without referal from a GP and ask to speak to someone about your diabeties, even if you are type 2 like me, you may have to wait while but I have always found Kettering General Hospital diabeties Clinic very very helpful.

because of the other drugs i take I was automatically given a brand new meter and testing strips for monitoring my type 2. I didnt stick with this one as I found it to complicated to use and ended up buying my own meter which is an acucheck-aviva, much easier to use.

i had some problems with needles at first finding the right ones (i'm thick skinned) so I ended up with unilet-comfort touch needles.
I was told to test myself 12 times a day at the start when my sugars were 25, now I check my B/s
twice a day, I have never had a problem getting test strips on script although I have had GP's telling me type 2 patients don't need to test their B/S levels, I just say the hospital specialist gave me my first meter and it usually shuts them up,

GP's are not as qualified as they like to think they are unfortunately, they know nothing about dressings for wounds, so I guess they probably dont know much about specific illnesses, their qualifications seem to be more a general idea of what actions should be taken for a particular illness and which drug does what, I guess this is why we have referals to specialists at the hospitial and such places.

In fact the surgery nurses seem to have better qualifications in most subjects but they to can get it wrong as they have in the past in my case, always seek a second opinion if your unhappy if not go to the hospitial diabeties clinic for your area and talk to a pro.

Caroline, if you want to test yourself you have the right to and you also have the right to test strips on script, I get them and i'm type 2 and currently on oral pills why shouldn't you?

good luck regards Nigel. :wink:
 

lionrampant

Well-Known Member
Messages
562
EricD said:
I don't know what you people are complaining about people, the Government is putting the money in to good use like illegal databases instead of wasting it on us useless type 2s. Comeon now, they are only doing for our own good, give them a chance to save us from the "bad guys" will ya. :roll:


Call to scrap 'illegal databases'
USB stick and laptop
The UK spends more than £16bn per year on government databases

A quarter of all government databases are illegal and should be scrapped or redesigned, a report has claimed.

The Joseph Rowntree Reform Trust says storing information leads to vulnerable people, such as young black men, single parents and children, being victimised.

It says the UK's "database state" wastes billions from the public purse and often breaches human rights laws.

But the government says the report contains "no substantive evidence" on which to base its conclusions.

A Ministry of Justice spokesman said the government was "never losing sight" of its obligations under the data protection and human rights acts.

"It takes its responsibilities seriously and will consider any concerns carefully, adapting existing safeguards where necessary," he added.

The government spends £16bn a year on databases and plans to spend a further £105bn on information technology (IT) projects over the next five years, according to the trust.

http://news.bbc.co.uk/1/hi/uk/7955205.stm

They are only spending £16bn a year on illegal databes and want to spend ONLY another £105bn to make sure the databases work properly. I just wished that they didn't keep loosing them all the time. :lol:

%£$%&"% IDIOTS, if they keep on spending bns on useless things there won't be a nation left to defend! :twisted:

Maybe we should convince them that diabetes is the result of a terrorist plot to bankrupt the sugar traders of the commodities market? We'd have a cure in months...