diabetic hcp s

[donnellysdogs]

I doubt very much whether type 2 either... And personally think the gp saying type 2 because of being overweight.....

The only other way is to ask to see a diabetic consultant and pay privately and tell gp this. They cannot refuse someone for a paid consultant referral.
The consultant will see you and arrange any further tests to be done on nhs. You can have the choice of consultant too, just a case of finding one.. This can be done over the net.. Gmc records are checkable for their qualifications and knowledge etc..


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[iHs]

Thx for replies, my practice manager is a complete joke, I've tried to make a complaint in the past by ringing her....not in the office..EVER according to receptionist, so I wrote to her... never receive d the letter I personally handed to receptionist, so I emailed her....also never receive d even tho I remailed it THREE yes three times, eventually I went up there and told them I wouldn't leave until I saw her, magically she appeared straight away and promised to address the complaint straight away and write to me....still waiting 6 months later....

Yes I know I have alot of weight to lose, I actually eat practically nothing, last 4 months only a small evening meal of whatever I can grab as feel so unwell. Stopped taking the gliclazide as I still managed to put on a stone and a half in 2 months despite this and it was making me go hypo every afternoon which was horrible.

Tonite for example I ate a piece of plain white fish and some cauliflower, nothing else, hadn't eaten for 24 hours, been asleep til 4pm from last night. 4pm bs was 10.6, ate at 8.30pm, 11pm bs was 11.7. Tested again at 1am and it was 12.5. That's low for lately, usually in the 16's around that time. Really I don't see what else I can do except not eat at all. It's not exactly easy to exercise when you can't even open your eyes for 12-18 hours of the day and when you do you can barely sit up or go to the toilet because you feel so weak and dizzy :/
I'm in constant pain with my bladder, stomach cramps and gallstones, my legs hurt from knees to ankles and my feet are bright red and feel like they're on fire. My vision has got so bad from needing my reading glasses all the time to now I can't see properly even with them on. Tonight I've just cried from when I woke up to about an hour ago. So Fed up, I give up with my doctors I really do I haven't even got the strength to bug them about it all anymore.
I've got no family in this country anymore, haven't seen my kids in weeks coz I'm so I'll and my partner is an abusive unhelpful piece of shot.....sorry just REALLY had enough today, I'm only 33 but if this is all life has to offer and I can't see any way it's going to improve, I don't really want to be here anymore

With yr medical problems, you should be seeing a specialist at hospital. Since when is a practice manager at a GP surgery educated to be able to be a DSN?
If I was you, I would be seeking to change surgery

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[sunday1980]

Hi just an update, I finally got to speak to the practice nurse today, she said my feeling I'll couldn't be attributed to diabetes as my last hba 1c was 7.3, that I needed to speak to the doctor about why I am unwell. She was not interested in my day to day bs results. I explained the gliclazide made me pile on alot of weight and gave me frequent hypo s in afternoon. She told me to eat more to counteract the hypo s, there is no "alternative" drug only "add-on" drugs and I don't meet the criteria for anything until I am taking max dose metformin and gliclazide and hba 1c is still raised. I understand very much that fat cells increase insulin resistance, so feel like I am going round in circles.
I have started taking the evening gliclazide, just omitting the morning one, and I do try to have something in the afternoon over last few days, still can't face anything in morning, mainly eating salads at the moment as is so hot here in UK.
Interestingly I did manage to get my serum vitamin b12 result, it was 280, now by standard lab results (0-200) that is normal HOWEVER this is being pushed to be revised as is thought to be far too low threshold, articles in the British medical journal and research by vitamin b12 charity advise treatment for levels under 350, that present with typical symptoms such as tiredness, dizziness, shortness of breath etc, I pretty much ticked 99% of symptoms it was quite uncanny even down to things I wouldn't have attributed such as a fairly recent change to my periods which became ridiculously heavy and painful but on scan no abnormalities detected. Seeing as I have had pretty much every test going over the past year I certainly think treatment would be worth a try, now just to convince my doc.
I was diagnosed diabetic in hospital by endo consultant, I think type 2 diagnosis was based on my history of gestational diabetes, high bmi (I am 5"3 so in the morbidly obese category :*** and absence of ketones in blood.
Am going tomorrow to have eyes looked at, the drop test thingy, as vision has worsened significantly and quickly, bit nervous, don't like anything to do with eyes, makes me wanna puke
My surgery is a large medical centre, to be honest they have far too many patients to staff, changing to the nearest other surgery would mean an expensive taxi ride there and back as my vision prevents me driving at the moment and there is no bus route. Going private isn't possible, I wish it was, as I had to give up work last year when I became ill and finances are on the ill side themselves lol
Will keep this updated just for reference, I don't know it may help someone else in the future, as so many posts here have helped me

 

[sunday1980]

By April 2015 your most recent and future medical records should be available to Patients online.

Its things like this that your PPG's should be chasing up your GP's for as apparently 79% of GP Practices have the capabilitys to do this now.... But only 2.3% have done so.

You are entitled to a copy of your bloodtest results. Other full medical history can be hard to get unless officially requested and paid for.

Our PPG is asking our GP Practice at our next meeting when our Patients will have access to our Summary Care Records.

All Patients now that are over 75 should have their own allocated GP. GP Practices have until then end of June 2014 to notify these Patients who the GP Is that has baan allocated to their care. Our GP's have done the allocation, but if the Patients don't like the choice of GP that they have been given, they can't change it. It is GP choice, not Patient's!!


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That's great that your surgery has a ppg, I know mine has just started one recently, sort of thing I'd love to be involved with if I felt better, though I know they work closely with the practice manager, not sure I could handle that LOL

Finally worked out how to add my picture, forced a smile so you don't all think I'm a permanently miserable, moaning old cow lol

 

[Indy51]

If you plan on taking a B12 supplement, make sure it is the "methyl" variety - many people have problems with methylation which lowers their absorption of vitamins - metformin also adds to the issues. If you use methylcobalamin, you've more chance that it will be absorbed. Even better if you can convince them to give you B12 injections.

 

[sunday1980]

If you plan on taking a B12 supplement, make sure it is the "methyl" variety - many people have problems with methylation which lowers their absorption of vitamins - metformin also adds to the issues. If you use methylcobalamin, you've more chance that it will be absorbed. Even better if you can convince them to give you B12 injections.

Had awful morning, couldn't even sit up was so dizzy and arms and legs hurt like hell, felt so ill when I went to toilet really thought I'd had my lot :/ spoke to Dr coz I thought I've just had enough of this, after nurse said it couldn't be my diabetes, but that she only deals with diabetes so I needed to discuss with Dr. Well I managed to get hold of one of the senior partners so I was quite hopeful! I explained how ill I feel and all my symptoms, she said its all down to the diabetes.......and I need to speak to the nurse..... /cry de ja vu setting in I asked about the vitamin b12 and she did llisten while I explained the bmj articles and latest protocol for diagnosis, I offered to email her it so she could check out the credibility herself, but she just said no and quite abruptly hung up on me I wasn't rude at all far from it. I've ordered some supplements recommended by the vitamin b12 charity organization, yes they are the methyl type lozenges in a quite safe dose and seemed to be well used by people. I know some people do inject themselves and it is a far more effective way to treat it but I don't feel happy buying that sort of stuff on the internet, I was wary enough about the lozenges, but did check out the seller and reviews will see what I think to the quality when they come. Really shame my surgery wouldn't treat it as its very cheap treatment and completely safe, the cost of damage done by deficiency is massive :/
I'll give the supplements a trial of a few months, if it doesn't make any difference then at least I will have ruled that one out I guess
And if they do bonus, I will shove it in her face lol

 

[sanguine]

Sorry that you're going through all this Sunday, it must be infuriating having the GP and nurse playing ping pong with your health like this.

Hope things get better for you.

 

[sunday1980]

Sorry that you're going through all this Sunday, it must be infuriating having the GP and nurse playing ping pong with your health like this.

Hope things get better for you.

Thx sanguine, it actually really helps to type it all down here, sort of 'offloads' it a bit if that makes sense. I do try to keep my sense of humour about life if I can, prevents the stress all building up, though I must say they are seriously starting to try my patience now :/ I always have got a bit irritated at people who don't do their job properly, especially 'professionals' why do such a job if you aren't really into it?

 

[donnellysdogs]

Ok, so if this happened during the night would you consider going to A&E? Or would you consider getting someone to drive you there when feeling so rough?

If your GP does not listen, then you have no choice... You don't have to say you were at home... You could say you were out witha friend and felt so bad you went straight to A&E...

I don't like to suggest A&E normally, but at some point enough is enough. I so clearly remember being sat on loo thinking I was going to die!! My hubby offered to drive me to A&E but decided to call paramedics... Who immediately gave me morphine and straight in to A&E...


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[sunday1980]

Ok, so if this happened during the night would you consider going to A&E? Or would you consider getting someone to drive you there when feeling so rough?

If your GP does not listen, then you have no choice... You don't have to say you were at home... You could say you were out witha friend and felt so bad you went straight to A&E...

I don't like to suggest A&E normally, but at some point enough is enough. I so clearly remember being sat on loo thinking I was going to die!! My hubby offered to drive me to A&E but decided to call paramedics... Who immediately gave me morphine and straight in to A&E...


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That was basically what happened to me in Feb when I was diagnosed, I woke up in the night feeling like I was gonna die, terrific stomach pains, on toilet, didn't know whether to poo or puke, couldn't breathe, felt like I was gonna pass out, partner called ambulance, it was them that pricked my finger, showing v. High bs, initially they thought I had infection, but after tests was diagnosed with diabetes, had asked last year to be tested as I had gestational diabetes 10years ago and recognized the tiredness, drinking and weeing every 5 minutes, they only dipped my urine, didn't check blood, and said no I didn't have it.
Anyways I expect similar will happen again, I'll eventually end up in hospital before I MIGHT get a chance of getting all this sorted, on the other hand they might just say it's my diabetes and send me home under care of the gp. :/

 

[donnellysdogs]

What bg's are you currently running at?


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[donnellysdogs]

Ur hospital doesn't sound much better than GP!

If bloods are within normal range then you would stand a chance of them forgetting the diabetes....and looking a bit more in depth.

Mine sent me out with a note to take to gp to get my stomach reffered to a gastro chappie, but they did xrays whilst I was there. To jump the waiting list, I then paid to see the consultant that had the most qualifications and skills. Wise move...but appreciate that not everyone can do this.

If ur bg's in normal range and without any ketones they should investigate further...


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[sunday1980]

Currently running 10-12 have reintroduced the gliclazide to see if it makes any difference, been a week I think now, or 6 days something like that, my bgs just don't seem to follow any sort of pattern, especially with regard to how I feel. I've kept a detailed diary for last couple of weeks with what I've eaten, bgs and how I'm feeling, physically and mentally, sometimes I actually can feel really ill when they are 9ish but at 16 I can feel reasonably ok, other times it's opposite or no different, food eaten really makes no difference either at all, luckily I bought plenty of test strips so can test all I like but it's not really showing me much, to add insult to injury I weighed myself and I've actually gained a couple of pounds over the last week, which atm I'm not so bothered as feel too ill to give a **** but seriously with what I eat!? Only thing I can put it down to again is the starting up of the gliclazide :/

I tried a final ditch attempt at the doc today, he wants moooore bloods done, starting to get a little Fed up as even when they come back abnormal they just say they'll take them again in a few months, meanwhile my health is going downhill drastically. I'm really thinking about what you said about going to a and e. Bloody hell if they can treat the teenage drunks at the weekend they can damnwell take a look at me.

Thank you sincerely for your help and support with all this, would have gone dotty without it xxx

 

[donnellysdogs]

If you eat too little your body goes in to starvation mode and you can put weight on...

I don't eat a lot, I'm actually eating more fat to try to ensure that my nutrients are balanced. Eating more fat has definitely helped my stomach and bowel. Today I've had a sweet potato with heaps of philadelphia cheese and streaky bacon cut up over it and salad..and a pointy red pepper and philly again...I am active, so this is not really a lot of food...so later I will have walnuts and some fruit. Oh yes and a alpro milk n yogurt smoothie with blackberries n blue berries.

I'm on insulin, so I can cope with spikes from fruit. What I can't cope with was feeling so desperately ill 4 years ago that ai had full DLA....(diagnosed as fibromyalgia, and other probs).

Thats why it is so important to eat balanced foods for nutrients...you will not feel better unless you give your stomach a chance to work and the energy it needs to live.




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[madperson]

Hi, I've had a similarprob with the hospital DN so I went to my GP- the softie in the practice & said I'd like to change hospitals, she was great & now I go to another hos near by with great staff. My GPs are really good SO FAR -13 months from diagnosis. So well done MYs

 

[sunday1980]

I 'think' I'm finally gaining some ground, my gp refused to even read the article about vitamin b12 in the bmj so me being me went and got my own supplements, took a few days, but last two days I've actually been OUT OF BED!!! The mental fogginess has gone and I don't feel dizzy at all. Might be tempting fate by hoping....but will see how I go over next week, May just be a coincidence, or placebo effect, I don't know, and I don't care! Enjoying my garden thank you kindly for all your support xxx

 

[Indy51]

Excellent news @sunday1980