I'm new to this site and am just looking for some general advice and guidance. 2 of my children, aged 4 & 6 have recently been diagonsed type1. My husband has type1 since he was a teenager, so we were always aware that our children may get it. Now both of them have at the same time, we are both in total shock and I am concerned about the monitoring of them since they are both so young. Right now I can't see light at the end of the tunnel. I would love to hear from people who are in a similar situation and how you've coped with this.
Children recently diagnosed
- Thread starter leggott
- Start Date
I know a few people who have both their children diabetic. I think most of them survive by taking turns with their husband partner to do the 2am check. Take a look at diabete-ezy.com to take a look at the Renouf family here in Australia. I think Dad (Steve) and kids are all diabetic now. Alyssa Renouf does quite a few talks travelling around Australia and is quite an inspirational woman. Her husband had a career as a football player as well as being diabetic. Her biggest complaint would be that the nights Steve is meant to do the 2am round with the kids is the night he has a hypo.
Anyway, it would be a nice read for you.
All the best, Jen.
Anyway, it would be a nice read for you.
All the best, Jen.
Hi,
I have 2 daughters with Type 1. Feel free to PM me if you have a question I might be able to answer, and I'd be happy to try. I've got a bit tired of posting fairly lengthy posts that never appear to get read!
Best wishes
Sue
I have 2 daughters with Type 1. Feel free to PM me if you have a question I might be able to answer, and I'd be happy to try. I've got a bit tired of posting fairly lengthy posts that never appear to get read!
Best wishes
Sue
Hi i have a 23 yr old son whos been diabetic since he was 7. My sister was diabetic too, she died at 35 from complications due to poor control, my son has poor control too. Its very hard to be a parent of a diabetic, lots of stress and worry. All you can do is do your best, i feel for you with two young children, en wish you all the best! xI have two daughters with type 1, diagnosed within a month of each other - they've always copied each other..............riding bikes, swimming, skating, diabetes :roll:
We have a strong family history of diabetes, with myself, my brothers, My Dad and sundry Aunts and Uncles being diabetic.
In a way, I feel that it's quite lucky (If you can call being diabetic lucky) having a sibling with the same condition, as they've always got someone to talk to who understands what it feels like.
My two were diagnosed about 3 years ago now, and although it's still hard at times, it does get easier once you get into a routine.
We have a strong family history of diabetes, with myself, my brothers, My Dad and sundry Aunts and Uncles being diabetic.
In a way, I feel that it's quite lucky (If you can call being diabetic lucky) having a sibling with the same condition, as they've always got someone to talk to who understands what it feels like.
My two were diagnosed about 3 years ago now, and although it's still hard at times, it does get easier once you get into a routine.
Hey, i got diagnosed when i was 16. It was a shock to me although it ran in the family, but still, i'm sure your children will be sensible about it . I was mainly scared about my friends thinking things, treating me different and people acting as if it was my fault? Almost embarassed? But i went straight to a specialist nurse who gave me all the up-to-date equipment which was good. I see other children on TV with really large testing kits, and i feel that like me, they would benefit from the small one i have, which allows them to test on their arms, palms, and legs so their fingers do not hurt and become hard etc? its Freestyle lite (really small) and it has special freestyle lite testing strips. Also, i take a long lasting Levemir before bed which gives me a base and a novorapid instant? so this actually helped me feel in control as i could gage myself what i needed. I think this, unlike my nan who used to have a large amount and have to catch up with food all of the type and exprience hypos, really helped me come to terms with it all. If you let them know that other kids have it, and there are ways to make it easier it should be fine. Boys probably are a little less worrying about what they eat as they getolder but that's just growing up? theyll be closely monitored with 6monthly health checks anyway i had an amazing family who really helped me. It was annoying at first as they kept checking up on me! but i have led a normal life, going out, drinking, off to uni soon! just don't let it get you down because they are extremely brave, it will make them much stronger people. and remmeber they rely on you they can always talk to me on here if they want to, thats the first thing i wantd to do. I found boys living up my road with it who are 19, 17 who had it since they were babies.
All the best
. I was mainly scared about my friends thinking things, treating me different and people acting as if it was my fault? Almost embarassed? But i went straight to a specialist nurse who gave me all the up-to-date equipment which was good. I see other children on TV with really large testing kits, and i feel that like me, they would benefit from the small one i have, which allows them to test on their arms, palms, and legs so their fingers do not hurt and become hard etc? its Freestyle lite (really small) and it has special freestyle lite testing strips. Also, i take a long lasting Levemir before bed which gives me a base and a novorapid instant? so this actually helped me feel in control as i could gage myself what i needed. I think this, unlike my nan who used to have a large amount and have to catch up with food all of the type and exprience hypos, really helped me come to terms with it all. If you let them know that other kids have it, and there are ways to make it easier it should be fine. Boys probably are a little less worrying about what they eat as they getolder but that's just growing up? theyll be closely monitored with 6monthly health checks anyway i had an amazing family who really helped me. It was annoying at first as they kept checking up on me! but i have led a normal life, going out, drinking, off to uni soon! just don't let it get you down because they are extremely brave, it will make them much stronger people. and remmeber they rely on you they can always talk to me on here if they want to, thats the first thing i wantd to do. I found boys living up my road with it who are 19, 17 who had it since they were babies. All the best
Thank you all so much for your positive replys. It is still early days for me, but things are getting easier. Trying to manage 2 diabetic kids and a baby has been quite stressful at times, but I think I'm getting there. I've been keeping a food diary and do see some patterns emerging, but do get the odd high or low reading (more lows than highs), which I can't work out why. Anyway, thanks again your replys and I'm sure i'll be back here soon asking for advice.
I'm 17 and was diagnosed last November at the age of 16. Guess that kind of makes me a kid, but a more mature and aware one. They'll soon learn when they feel low and high and they'll be able to look after themselves much better when they grasp this concept. To help do this, maybe you and your family could all have a guess at what the bloods will be when you go to test them as this will raise awareness of how the body feels and how important it is to test bloods.
One thing I would say, is when they do get older, let them drink in your presence if they do want alchohol. I have a friend who has atrocious control of his bloods and binge drinks in an attempt to feel normal and forget about his diabetes. If they're allowed to drink freely, they will more than likely get over the novelty much quicker and they'll have a much better understanding of what to do when drinking and which drinks to avoid.
If they go cycling, make sure they have lots of sugar, carbs and fluid. I found that when I went to Thorpe Park, I was constantly low and had three bottle of normal Cola, so keep that in mind if the children go there on a trip or with yourself.
Good luck with everything If they want to chat to me, they can PM me, i'm new to it too - still in the honeymoon phase.
Becca.
One thing I would say, is when they do get older, let them drink in your presence if they do want alchohol. I have a friend who has atrocious control of his bloods and binge drinks in an attempt to feel normal and forget about his diabetes. If they're allowed to drink freely, they will more than likely get over the novelty much quicker and they'll have a much better understanding of what to do when drinking and which drinks to avoid.
If they go cycling, make sure they have lots of sugar, carbs and fluid. I found that when I went to Thorpe Park, I was constantly low and had three bottle of normal Cola, so keep that in mind if the children go there on a trip or with yourself.
Good luck with everything
If they want to chat to me, they can PM me, i'm new to it too - still in the honeymoon phase.Becca.
