At the end of my tether

rosscortb

Member
Messages
14
Hello,
I'm not forgetting illness or unforeseen exercise as you shouldn't be doing ratio testing during these spells.
 
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Vanster07

Member
Messages
18
Type of diabetes
Type 1
Treatment type
Pump
Ok if you want to split hairs then how would you know not to be testing during unforeseen circumstances that effect your levels if they're unforeseen or how would you get your basal right during the dawn phenomenon????

I have as I've said just started on a pump and i'm trying to get my basal correct but I do suffer from the dawn effect some days and some times it can be weeks, has anyone else dealt with this????
 

rosscortb

Member
Messages
14
Ok if you want to split hairs then how would you know not to be testing during unforeseen circumstances that effect your levels if they're unforeseen or how would you get your basal right during the dawn phenomenon????

I have as I've said just started on a pump and i'm trying to get my basal correct but I do suffer from the dawn effect some days and some times it can be weeks, has anyone else dealt with this????

My reply was a continuing on the same line Noblehead suggested regarding basal testing. DAFNE suggests to do basal testing during normal day to day activities minus times of exercise or illness. I assume Senga is on a pen which will never combat dawn phenomenon unless you what to get up at a god earthly hour and give a shot of bolus
 

rosscortb

Member
Messages
14
My reply was a continuing on the same line Noblehead suggested regarding basal testing. DAFNE suggests to do basal testing during normal day to day activities minus times of exercise or illness. I assume Senga is on a pen which will never combat dawn phenomenon unless you what to get up at a god earthly hour and give a shot of bolus

P.S you will never be on the same basal rate, each day for the rest of the year, to combat dawn phenomenon. You just have to do testing and adjust accordingly. Last summer, I was using a basal rate of around 1:40 between 4am and 730, today it's around 1.85. That's diabetes.....
 

Senga

Well-Known Member
Messages
69
Good Morning dear friends, long time since I have said that. I am feeling good today, Sorry I have not got back to you sooner but have had a few trying days. I am now getting back on track, not perfect yet but mostly in single figures. My basal change to 10 has made a big difference as I am getting low readings in the morning which sets the day off well. Finally back in my own bed as I was sleeping on couch as I had to test through night as I knew the 19 they told me to take was way too high so gradually cut it back.

I cannot thank you all enough you were the only ones there for me when I asked for help, the rejection I felt from my doctor and nurses was overwhelming. I now have a good diabetic nurses who is willing to take her time with me, with her help and the knowledge you have all given me I will soon be back on track. My appointment is on 28th of this month where I will ask again about the Daphne course. One of the comments you posted was Knowledge is Power and I keep that in mind.

Hope you are all well
I am now not worrying or testing as much
Best Regards x
 
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donnellysdogs

Master
Messages
13,233
Type of diabetes
Type 1
Treatment type
Pump
Dislikes
People that can't listen to other people's opinions.
People that can't say sorry.
Good morning Senga

Are your DN's at a hospital or at your GPs?

Only reason I ask is that t1's are best seen by a hospital team and not GP practice nurses or GPs. Hospital teams would offer you different insulins or a pump etc whilst GP Practices are not allowed to give pumps and they are reticent to swap your insulins that may be better for you.
 
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LucySW

Well-Known Member
Messages
1,945
Type of diabetes
LADA
Treatment type
Insulin
Senga, Really second what DD says above. It's great that this DSN is listening to you and helping you build a plan together, but ask for a hospital team referral as well? As DD says, they can do more, and they are specialists and have more knowledge and experience. You could present it as supporting the guidance you get from this DSN? You could discuss other insulin options with them.

Also, do ask to borrow a CMG, a continuous glucose meter, for a week or two. They do that. That will tell you exactly what's happening at night, and once you know that you'll get the basal issue *really* sussed. And once you get the basal issue sussed, everything will be SOO much easier.

Myself, I low carb, because it means insulin doses can come down. But cutting carbs to 100g/day, which is very mild (I do 30), would be easy and might help. Either way, carb counting is the way to go.

Keep going!!

Lucy
 

Vanster07

Member
Messages
18
Type of diabetes
Type 1
Treatment type
Pump
Hi Senga,
My local hospital ran a dietitian's carb counting course one morning a week for about 8 weeks which sounds very much like the DAFNE course you mentioned! It was ran but one of the hospital's dietitian's and my Diabetic nurse (who is a type one herself!) and guest speakers The course was really good as It showed me how living with diabetes now is so much different to how it was when I was first diagnosed 35 years ago. It was the only way I was going to get a pump as well!!!
But I would highly recommend it to any type one even if your newly diagnosed as a refresher course!!
!
It was really good for getting a tighter control of your bloods as we wrote a diary for each blood score, meal, insulin amount injected and food eaten. Then we would show our results each week and the group of about 15 of us and the medics discussed changes if needed.
It wasn't a DAFN course as it was ran by the NHS. Maybe your local diabetic hospital clinic does something similar.
Saying that I bet you've tried but still I highly recommend it to all type one's.