Hello, my name is karen,
On the 14 june this year I received a phone call saying my son had died, i was horrified, the outcome of the inquest, although it isn't until the end of the month, the coroner has confirmed natural causes due to his diabetes. Dead in bed syndrome, i didnt even know what it was,I am trying hard to get signatures, the petition is at change.org "stop 'dead in bed syndrome' for Ashley, because he mattered". I also have a fund going on fundrzr.com, Ashley's headstone fund. I have had a response from baroness young at diabetes uk and I am still working on getting a device to help this, maybe something that can administer glucagon. I have had a lot of people say, "it's rare", but all you parents, can you imagine if it was one of yours? It doesn't matter how rare it is then, I've already lost my angel, I don't have to do anything, it's not going to benefit me or my family anymore is it?, but I wouldn't want any parent ever to get a phone call saying, "I'm so sorry, I don't know what's gone wrong, Ashley's died!". Words that will haunt me forever. He only turned 19 in march and died in June. I had my local paper, the lynn news publish a beautiful article about Ash, this syndrome and my causes. When Ash was diagnosed, 2 months before he was 13, we didn't have the Internet, we were told very little and basically get on with it, please, everybody, anybody, sign, re post, do what you can, not for me but for a beautiful 19 yr old kid that loved life and was a bundle of fun and smiles and for any parent off a diabetic young person. Thank you xxx
http://www.lynnnews.co.uk/news/local/la ... -1-5461574