To all the tired people out there, I had a big review last week, 7 months after diagnosis, and explained I'm always tired and can't do anything cos it knackers me out for ages, got short term memory issues, have to have a siesta at weekends, talk gobbledegook when tired etc which is all very unlike the real me. I had been getting very down lately and had blamed it all on being T1, I wondered if I was on the wrong insulin maybe. The doctor said he doesn't believe it's the diabetes at all, he pointed out that before I was diagnosed I had severe flu and he postulated post-viral fatigue syndrome, advising me to look it up on the net and see what I think. He's bang on. He told me the answer, which is backed up by the sites dedicated to it, is graded exercise in sunlight combined with cognitive behavioural therapy. I'm being referred for the cbt, it helps you break out of the cycle of but I can't... but I'm too tired... but I caaaaan't....
PVFS seems to go on and on unless treated, sometimes getting better then coming back again, and can lead to chronic fatigue syndrome and eventually full blown ME so I'm so thrilled I have an on-the-case diabetes team and GP who are willing to help me get past this.
I hope this might give some of you food for thought as I'm pretty sure lots of T1s get it from a virus.... and I'm thinking of getting a sun-simulation light for the winter months to help me get over this. We've got an autoimmune disease, and sunlight will certainly help in many ways so I'm going down that track. Them's my thoughts!
PVFS seems to go on and on unless treated, sometimes getting better then coming back again, and can lead to chronic fatigue syndrome and eventually full blown ME so I'm so thrilled I have an on-the-case diabetes team and GP who are willing to help me get past this.
I hope this might give some of you food for thought as I'm pretty sure lots of T1s get it from a virus.... and I'm thinking of getting a sun-simulation light for the winter months to help me get over this. We've got an autoimmune disease, and sunlight will certainly help in many ways so I'm going down that track. Them's my thoughts!