So upset

cugila

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People who are touchy.......feign indignation at the slightest thing. Hypocrites, bullies and cowards.
Hi Jan.
First step you need to take is to get yourself a new more sympathetic GP and Nurse at another Practice in the area if you can. . I would also make a formal complaint about the GP you have at present as it appears that he has totally missed your diagnosis in the past ?

The next step is to get a referral to an Endocrinologist who is an expert in all the areas you need to have looked at. Why are they denying you the chance to see a Neurologist ?

The problems you have are not insurmountable and you have made a good start by asking for advice here. Your present GP is no use to you at all. Get rid of him.

You will get all the support and advice you need here. Stick with us Jan.

Ken.
 

diabetesmum

Well-Known Member
Messages
515
Type of diabetes
Type 2
I think your treatment has been appalling. As for having had the equivalent of a heart attack because your BG was 17 ish for a while, my daughters must have had umpteen then, sounds like a load of drivel to me. Also , I'm not sure but I hink you are entitled to be funded for your strips according to NICE guidelines, so long as you are using the results to improve yr control. Another Type 2 should be able to clarify?
Sue
 

hanadr

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This "Testing causes anxiety " thing is causing distress and is a load of rubbish. There was a very poorly designed study which found that some diabetics got anxious when testing, almost certainly because they didn't know what to do with the results.
Your care team sounds anything but.
 

ChocFish

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Messages
963
((((((JanShelley))))) big hugs to you, I really do feel for you and I agree completely with Ken's advice, as for the rubbish that this GP has told you, I dont want to go on and on here, but please read my story in the Success Stories thread, I think you will find that you and I have a few things in common and you probably will find it reassuring to read my journey through this confusing maze that a diabetes diagnosis presents you with.
I am so annoyed with your GP for not taking an interest in your readings when you did all the right things there, writing them down, etc, geeeze testing, combined with keeping a food diary is the only way to find out which foods you can tolerate and which you should cut down or cut out (though you may be able to reintroduce them again later on, though maybe at reduced quantity), just never say never.

Dont lose hope, things will get better, stay with the forum, we will all support you best as we can to help you along so that you learn more about this condition and achieve good control over your diabetes.

Its early days yet, but you have every chance to make it better and feel healthy once more, we are with you.

Lots and lots of love

Karen x
 

ChocFish

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Messages
963
If your GP was worth his salt he would never ever add to your fears and worries because he would know that stress and upset raise blood glucose! Your daughter is right, you have a pulse in your feet, they are warm...

I hope you can find a more sympathetic, listening, caring GP

And you can recover from neuropathy, I did, and I was in a wheelchair at one time, unable to walk due to severe neuropathy, now I am cycling, running, skiing, and lots more (as I write in my success story).

Karen x
 

sugarless sue

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Rude people! Not being able to do the things I want to do.
Jan the induction phase of Atkins,if I recall is no carbs.In low carb we tend to get most of our carbs from veg and fruit ,cut out bread ,potatoes ,pasta and rice and all flour based products and above all test and record how the food affects us.I use a Collins gem carb counter book to work out the amount of carbs in the foods I like which helps me stick to a low carb diet.
 

lionrampant

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Messages
562
And this ladies and gentlemen is why we need a stronger Diabetes UK / BDA.

Get out of that practice, as fast as you can.
 

Spiral

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856
Jan, what everyone else said.

Also, have you considered using PALS (Patient Advice and Liaison Service) they can help you get things sorted out, but it is a good idea to be armed with what you want to happen so they have something to work with. I think the advice already given is a good place to start.

Also, a neurologist not seeing someone until the have an HbA1c of 5 is not something I have heard of. Some of the people I know with neurological illnesses have issues around weight becasue they can't exercise bwecause of the neurological problem.

You need a referral to the specialist diabetic clinic, which is where my GP told me I would be investigated to see if I needed a neurological assessment. I'm not exactly sylph like :roll:

Good luck.
 
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You poor thing :shock:

Can you get referred to a diabetes specialist unit in a hospital for your diabetes care? I'm type 1 so I'm not sure whether type 2s also qualify but I have had the best care from my hospital by nurses who know exactly what they're talking about (and are very quick to agree that GPs/practice nurses often don't know what they should about diabetes). I would trust them there with anything and I really enjoy going (very sad I know :oops: )!

Although I find my GP very good in most respects, telling me over the phone I was diabetic was probably not the best move...as was telling me to come in and see the DN who would put me on some tablets as I was type 2. To be honest, looking back, at age 27 with a BMI of 19.5 and fasting BG of 19/post breakfast BS of 28 even I can see that type 2 was not that likely...as two weeks on the maximum dose of gliclazide with no effect at all on my BS confirmed!!! But since I've been with the hospital I've had no complaints at all.

Good luck!
 

Doczoc

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424
With what you are eating there is something definitely a miss here. I think you need to see an endocrinologist, with that food intake your BG levels shouldn't be high at all.

Maybe you are eating too little, hence the liver dumps? I eat a lot of cheese and they have no impact on my blood glucose levels at all, are you eating fruity cheese? As for the crispbread at breakfast, most diabetics find their insulin resistance is at it's worst in the mornings, but one cripsbread shouldn't have a huge impact. Maybe some more knowledgeable peeps will come along to give you some advice, but it seems to me that you are doing things right, although maybe you need to eat a little more?
 

Doczoc

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424
Two weeks is more than enough time for you to start seeing the benefits of low carb IMHO, others more knowledgeable might disagree. It would appear that the protein in cheese is spiking you far more than it would normally, I think this definitely needs further investigation by an endocrinologist.

Is there anything at all that may contain hidden carbs?

On another note...

Do you eat a little fat before bed to help prevent Dawn Phenomenon?
 

hanadr

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Jan
your diet sounds fine. In fact Atkins isn't bad, if you add some green veggies.Don't worry about your fats. In general, fats are nowhere near as bad for anyone as the Healthy food Myths suggest. #In fact some fat is essential. Fat is the low carb diabetic's friend. Gives you calories and doesn't put your blood glucose up.
Your doctor is ignorant( in the dictionary sense of the word Ie Doesn't know anything about diabetes)
 

Doczoc

Well-Known Member
Messages
424
Remember low carb is a high fat diet, not a high protein diet. If you take the leap of faith you will reap the benefits!
 

AliB

Well-Known Member
Messages
334
Type of diabetes
Type 2
Treatment type
Insulin
Jan, you have to realise that ALL drugs are toxic to the body and will add toxic load. Sometimes they are a necessary evil but the less of them we can manage with the better. Toxins can contribute to weight gain too, because the liver hives toxins off into the fat cells to be dealt with 'at a later date' - which of course never comes because we are constantly adding to the toxin store every day.

I had a run in with my Hospital based Diabetic Specialist. He put me on to Byetta which mucked up my digestion big-time (some seem to cope ok with it). I did lose weight on it but the sacrifice wasn't worth it because I was in so much pain.

As they could find nothing apparently wrong with me (not that they looked very hard!), it was down to my own efforts that I found a link to gluten-intolerance and dropped all gluten foods (and dairy as I knew I was intolerant of that anyway). Within a few hours the pain had gone and the diarrohea had stopped.

It has taken me the last 18 months to claw my digestion back - it's still not right but heaps better than it was, but when I saw him again last October (a year after he had taken me off the Byetta) I had barely got in the door when he was pushing me to take Statins.

I told him I wouldn't take them. He asked why. I told him I thought they were rubbish. He said that I should take them because I am Diabetic. I asked him what my Cholesterol level was to which he said '3.8'. 3.8?!!!!! If it was any lower I'd be on the flippin' floor! For goodness sake.

You know that apparently Doctors get a bonus for every Statin prescription they issue??

Knowledge is power. The more you learn about it all the more you will have the strength to stand up to them. Research gives you a lot of understanding. Don't believe everything you read though - if you absorb a lot of information you are then able to draw out of it what makes the most sense. The Medical Profession nowhere near has all the answers - sometimes they can come from least expected sources. Most mainstream Medical people are dragging their heels in knowledge. They get sent at least 10,000 pieces of information a year - do you think they actually read much of it???

Opinions change from one minute to the next. Most of the time Medical 'knowledge' is purely one opinion pitted against another. It is up to you to decide which one (if indeed any of them) is right for you. We load way too much responsibility for our own health on to the shoulders of other people and wash our own hands of it all. I have learned to my cost that that is the worst thing you can do.

Try to learn and understand how YOUR body reacts to different foods - not just the blood sugars and diabetes, but also other health issues and symptoms, because our food as well as all the chemical loading we get from it and our environment is the key to many of our health problems.

EVERYBODY eats way too much carbs and processed foods. Actually we all eat way too much food - period. The more nutritious your food is, the less your body actually needs. It will only really demand food if it is not getting what it needs nutritionally, either from our food itself, or because of the damage the food has caused us. The high-carb, high-sugar Western diet forces the body into a very unnatural way of eating and it can take a little while to adjust. We were never designed to eat this way. Those cultures in this World who are still relatively healthy eat pure natural foods and do not follow the Western Diet. Those that change to the Western Diet get sick. That's proof enough for me.

Try not to eat anything processed or adulterated. Try and stick to god wholesome foods and eat Organic where you can - I know it is more expensive (which is criminal) but it has to be better for us all - and the more that demand it the more the food producers will be forced to change their practices. See if you feel better off of dairy products for a while too - it's worth experimenting. Most dairy is devoid of the life-giving enzymes that are destroyed in the pasteurisation, and homogenisation of cows milk also is an unknown damage entity (they just can't leave anything alone - can they!). You can get plenty of calcium from fruit and veg - there is as much calcium in a portion of broccoli as in a glass of milk.

I feel your pain. I have been well on the way to where you are now but fortunately I never did believe all the guff that the Diabetic 'Specialists' told me so have managed to keep my body going relatively well and by finally realising that more damage has been done to me by the Medical Profession than anything I have ever done to myself!

I'm not saying don't touch drugs, as I recognise that in certain cases they may be necessary, well, at least until a certain amount of healing has taken place (I was able to drop my blood pressure tablets within a few weeks of going gluten free), I am still taking 2 Metformin (which I would hope to be able to drop eventually) and Insulin although I have now been able to cut that down to one injection a day (12 - 14 units), but the less we need to take of these imposed toxic burdens the better.
 

red

Well-Known Member
Messages
110
hi Janshelley,
I think it is so appalling that you got laughed at regarding your notes/note book at the GP's, this recently happened to me when I saw the nurse at my last appointment, I didnt mention it on this forum as I think it really affected me, but hearing someone else saying it I realize just how out of order this is.At the time to be honest I just lost all my confidence and slipped out asap, but I can tell you I wont be doing that next time, I wont be laughed at next time, and I wont be slipping out of the appiontment quietly either, its really not on when people are trying to empower theirselves and take care of their health.
I really hope you feel better soon.
 

Handyníall

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Organic where you can - I know it is more expensive (which is criminal) but it has to be better for us all

There are no proven benefits for eating organic food... Except it gives you a lovely warm feeling inside :D

Anyway, my doctors have never tried to push anything. They tried to push me and my brother onto insulin because 'there was no way we could be T2 diabetic'. Well, I have to disagree. Plus, I didn't really want to be jabbing needles into myself.

Jan have you been checked up for any other metabolic problems. Since you should be losing weight and controlling your blood sugar levels with that diet. Your cells may be releasing glycogen into the blood which is being converted into glucose.

On the topic of walking, a nice brisk 15 minute walk a day to begin with would do wonders for you, especially if you don't do much exercise beforehand.

Also, don't be so timid with your doctor... Next time kick his ass...
 

Handyníall

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Anything that'll wake us up before noon on a weekend...
Well there a few that result in weight gain, which could be countered by the fact that you should be losing weight. Hypothyroidism would be the most common of the causes.

Also, your GP would be a fool to kick you off the books, because you could just kick up an even bigger fuss. Good luck!
 

sugarless sue

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Rude people! Not being able to do the things I want to do.
Jan,one of the drugs you are on ,Pregabalin has the side effect of weight gain! Maybe this is slowing you down in losing weight.If and when you get a new doctor I would discuss it with him/her.
 

Doczoc

Well-Known Member
Messages
424
Jan, as Nial said, you should be losing weight and gaining good BG control with that diet. You are doing everything to help yourself. The bad news is that it isn't working as well as it should. I suspect there is something else going on here, I think you need more help.

If you are worried about getting kicked off the books for making a fuss I think that tells you all you need to know about your doctor!

Hope someone else can post something more hopeful for you!