Help needed with diabetic problems !!

[ryan1990]

I'm 25 and hVe had type 1 for 7 years my hba1c is 4.5 I have in the last two years become less and less able to withstand walking , working and just generally doing normal things my blood sugar control waxes and wains as I imagine everyone's does I am slim and not overweight my current symptoms are seizures relating to I don't know what , stiffness in back hips knees and feet , weKness which leaves me unable to move correctly and now recently episodic foot drop in both feet I have no pins and needles but do hVe a annoying almost cramping sensation in all my muscles all the time my gp has tested my nerves via Emg and says there isn't anything damaged but I was just wondering if any of you diabetics have suffered with either a motor neuropathy or a neuropathy that caused foot drop due to bad sugar control or whether it was just idiopathic in nature please respond I am desperate

 

[Shar67]

I think if you are having seizures you need to be referred to a specialist. sorry I couldn't be more helpful.

 

[noblehead]

Agree with @Shar67, you have a lot of symptoms going on there Ryan and you should be referred to a specialist if your Dr can't find the cause.

 

[donnellysdogs]

With an hba1c for a type 1 of 4.5 that is extremely low. Are your "seizures" related to hypos?

I know you have posted about your symptoms previously.

Are you eating full nutritional meals with a full balance of minerals, vitamins and fats etc? I think you said previously that you don't drink or eat products that are labelled "diet?"

Are you with a diabetic consultant at a hospital- it may be to approach them rather than your GP?

 

[ryan1990]

The problem is that say if it is a neuropathy smacking my a1c isn't going to help me is it ? As highs make nerves worse and I'm already at a point where my body is falling apart I have cramps in every muscle if my blood sugar even goes over 8 :/ so I'm kinda stuck I think the sezuires are related to a neurological problem as at the time after a sezuire my blood sugar is around 7 so couldn't be hypo related :/

 

[ryan1990]

I should mention as well that I no longer have any kind of hypo awareness I can be walking about and check my sugar and it be 2.1 and I don't feel any different :/

 

[CarbsRok]

It sounds to me as if you need an urgent neurology apt + MRI scans.
Not everything is related to diabetes.

 

[tim2000s]

Also, are you taking statins?

 

[ryan1990]

I'm already under a neurologist who is head if neurology at salford hospital well think he's the regional head of neurology and even he is stumbled by it I'm not taking statins my Chlestoral level is perfect would be abit young for them I think unless I just ate rubbish but I don't even do that :/ just feel down and helpless all the time and not getting anywhere each time I have a high reading the pains are worse the weakness is worse and the foot drop develops so I'm at a loss with it can foot drop be episodic ?

 

[Gravity-Carb]

I'm so sorry your going through this, it sounds very scary.
What does your neurologist say?

 

[ButtterflyLady]

Good to hear you are under a neurologist. He should be consulting his colleagues in other places, and asking for help from a pain management specialist and whatever other types of specialist could be helpful, such as a rheumatologist. A physiotherapist might be a good idea too. There might be a multidisplinary team that can help you. Often pain clinics will be set up that way.

 

[Anaelena]

I'm 25 and hVe had type 1 for 7 years my hba1c is 4.5 I have in the last two years become less and less able to withstand walking , working and just generally doing normal things my blood sugar control waxes and wains as I imagine everyone's does I am slim and not overweight my current symptoms are seizures relating to I don't know what , stiffness in back hips knees and feet , weKness which leaves me unable to move correctly and now recently episodic foot drop in both feet I have no pins and needles but do hVe a annoying almost cramping sensation in all my muscles all the time my gp has tested my nerves via Emg and says there isn't anything damaged but I was just wondering if any of you diabetics have suffered with either a motor neuropathy or a neuropathy that caused foot drop due to bad sugar control or whether it was just idiopathic in nature please respond I am desperate

There is Orthostatic Hypotension from diabetes that often times can have symptoms that resemble seizures. I am sure your physician has alright thought of that but it is a complication of diabetes . Most people think neuropathy just affects the extremities but it is much more complicated than that . Foot drop can also be-caused by neuropathy . Of course it could be an entirely different problem and not related .