Type 1 Diabetes is killing me

[gemgem85]

I'm exactly the same but I'm a bit older I'm 30 and have type 1 since I was 12

 

[beckyhodgkins_]

This has made me feel so sad my heart is breaking for you.
I was diagnosed at eleven and have controlled my diabetes well which has allowed me to travel the world, train as a nurse and have my beautiful son this year. You deserve a happy healthy life and if you get your diabetes under control you can live just like a normal person I genuinely believe that.
Please let me know if I can be of any help or you just need to talk to someone I would love to be some help.
Xxx

 

[RJK]

I have just signed up because of this thread.

No woolly language. No 'oh you're doing so well'.

TAKE YOUR INSULIN OR YOU WILL DIE.

you need to take your short acting, if your blood sugar is high, NOW. Do not wait, do not say you don't like taking it, you NEED to take it.

if you don't you will die, or end up with serious damage. I have seen it. I have seen someone in intensive care in full blown ketoacidosis. It is horrific. If you are vomiting now, you are in the early stages. Take your short acting NOW, and get to hospital.

 

[Gemma2411]

Hi

So I have been diabetic for almost 10 years (I'm now 21). I have never accepted it and still really struggle to come to terms with it all. My blood sugars are almost always 30+ or reading "HI" on my machine, I always have ketones, horrendous kidney pain, and all the symptoms of hyperglycaemia. I've now being diagnosed with depression and I am using my diabetes to make myself really unwell and I feel completely alone in this because I don't know another diabetic so people really don't understand.

Hi Emily

I am 27 and was diagnosed when I was 11. I struggled throughout my teens but when I was 21 I went on the DAFNE course. It changed my life and really made a difference. I know you say you feel like counting carbs is too much effort and I did think that too but after a while you remember what amounts to inject for certain foods and it becomes easier. There is also a book you can get and just look at the photo of the portion size which is really helpful. It really is so important that you get these sugar levels under control and as soon as you do, you will notice the difference with how you feel...

 

[Gemma2411]

I

I have just signed up because of this thread.

No woolly language. No 'oh you're doing so well'.

TAKE YOUR INSULIN OR YOU WILL DIE.

you need to take your short acting, if your blood sugar is high, NOW. Do not wait, do not say you don't like taking it, you NEED to take it.

if you don't you will die, or end up with serious damage. I have seen it. I have seen someone in intensive care in full blown ketoacidosis. It is horrific. If you are vomiting now, you are in the early stages. Take your short acting NOW, and get to hospital.

I do agree to be honest, I too have just signed up because I read this article!

 

[JazChamberlain]

Hey, I can honestly relate to you so much as I am in the exact same position and it's only been the last two weeks where I have started to realise what I have been doing to myself and my health. Both mentally and physically, though I have not been diagnosed with depression, I do suffer from it. I also suffer anxiety so I find it hard to talk about my problems to anybody. It's nice to see that I'm not alone and neither are you. If you ever wanted to chat to someone going through a similar problem, know that I will be here

 

[pippa1903]

I'm sorry for being so ignorant but I'm in self destruct mode my ketones are 6.2 and I'm not taking an novo to bring it down, I've just hit rock bottom

Just wanted to say I was exactly the same when I was diagnosed 9 yrs ago at 22 yrsold it's only the last 2yrs I've taken control I was constantly in hospital my body started to shut down and I nearly died it was a wake up call but I was so lucky to have 2 children at the time I was diagnosed who really needed me to sort my self out I then fell pregnant with my son and that is when I took control. At the time not even my kids gave me that push it was the last hospital admission I seen my family's face and it clicked I had to do it for my self to b there for them I now have nerve damage in my legs the hurt all the time when I'm sitting walking sleeping it's awful the reason I don't fall back into that old routine is because I feel happier I'm proud of how far I've come and I cam remember the feeling of being g trapped helpless and angry with everyone I hope u find that.push to start it's never to late to start xx

 

[Ambersilva]

I'm sorry for being so ignorant but I'm in self destruct mode my ketones are 6.2 and I'm not taking an novo to bring it down, I've just hit rock bottom

@indiaemily If you were my daughter and with the knowledge I now have about T1 Diabetes, you would not have much choice. I would have been injecting you with the insulin you need long before you got to the stage you are now. If you (as my daughter) were to continue to resist treating yourself, I would take you to hospital for the urgent treatment you need. Regardless of your age, I would interfere because, I as a mother, have to do just that to ensure your well being.

 

[Humma]

We`ve nearly all got type 1 myself for 47 years,if your to weak to try and beat it then it will take your life from you make no mistake,myself i fight it every day theres no way its going to beat me and most days i win,so starting tomorrow get a grip of your life while you have still got one and take it to the cleaners xxx

 

[Diamental]

I don't know if it's been said above because there's a lot of writing I was a lot like you, I guess I kinda still am but a couple of years ago I was given the opportunity to use an insulin pump. My levels have been much higher, like you I don't really like to test but I'd imagine it could be brought to a normaller level as such... As for depression and that road it's hard man, it wasn't till a few months ago I started feeling better about my self and seeing life in a brighter light and I will tell you it was mostly thanks to the Prince's Trust. I went on a 12 week 'Team' course which I feel really helped so maybe have a look into that ? best of luck to you! I'm sure we're all here if you need us

 

[courtney_177]

.

 

[MrsH1981]

I'm sorry for being so ignorant but I'm in self destruct mode my ketones are 6.2 and I'm not taking an novo to bring it down, I've just hit rock bottom

Don't apologise - please, just take it. I'm certain you don't actually want to be poorly xxx

 

[OscarsMammy]

Take your insulin now or you will die. Where are you from?? Take it.. Or tell us where you live and we will call an ambulance.

 

[sammi4688]

Hi @indiaemily I'm 27 and was diagnosed with diabetes nearly 8 years ago. It was diagnosed as gestational diabetes whilst pregnant and told it will most probably go. I had a test done after and it said it had gone but for a little bit after I felt very poorly and still felt diabetic. I went to the chemist for a free diabetes blood sugar check and my sugars were high. The chemist advised me to go back to the doctors and show them the results. There was then some confusion as to which type i was until about 2/3 years ago where it was confirmed it was type 1. I struggled massively with being diabetic, I hated the fact I was the only one in my family, in my friends who was diabetic. I wanted to eat what I wanted, drink what I wanted and didn't do my insulin properly. My nurse would tell me if I carried on I would die and my son would have no mum ( clearly to scare me, but eventual truth none the less) I tried to take it seriously but I think I was that ignorant to it before I was too forgetful and ate the wrong food and forgot to take insulin meaning I permanently ran high. My hba1c at one point was 101. I then learnt about a new insulin pump called an omnipod, at first i was dead against it as I didn't want to feel or have people think like I was different to anyone else because of the wires. But then I learnt the omnipod was wireless, I gave it a trial and have never looked back! My hba1c is now 8 (64mmol) which is still higher than it should be but going in the right direction to trying for another baby. Yes I still have my slip ups where I genuinely forget or enjoy a drink too many at weekend but what I'm trying to explain is that it is hard to accept but you can do it. Maybe try an insulin pump but just don't give up because this is what makes us unique, we were born naturally sweet and stronger than most! Hope your ok and my post didn't bore you too much, if you would like someone to talk to I'm here hun, I'm not gonna be annoying just someone to vent at if you feel p****d off lol.

 

[cocochannel]

Hi ((hugs)) i was diagnosed when I was 7 and iv had this ****** disease for 41 years one thing I have learnt is tiny steps and every day at a time. Forget the depression for a minute with blood sugars that high you will feel as you do put depression on top and well you know how that feels!
Firstly you have done the right thing and reached out for help, so well done! asking for help can be hard. Going back to those tiny steps first thing you need is a diary they are a pain and it takes commitment but if you don't start making one change things will not improve. You can do this! Tomorrow do your blood sugar at breatfast dinner and tea it's three times you can do that. Write it down also write down what you eat and what insulin you take. When you have done it tomorrow try and do the next day and so on. If you have a hiccup brush yourself down and try it again. Unless you do this you will not be able to take control. With out your info you don't learn about your diabetes, remember information is power! Next post on this thread your results we can be your buddies! Use your health team. I even email mine because sometimes life gets in the way and we all have to go back to basics sometimes. Lastly further up you said you wanted to know what well felt like, well taking control and being well is having energy to enjoy the things you enjoy, not feeling like your walking in mud. I know this is hard but starting is the hard bit so please try tomorrow. Don't expect to much be kind to yourself oh another thing I did was I kept a notepad by my bed and every night I wrote one thing on it that I achieved ref managing my diabetes even the smallest thing like I worked out the cabs in a slice of toast today! As you go through the week the list will get longer, re read every morning before getting up. Good luck take care and can't wait to hear about the positive step tomorrow xxxxx

 

[Emma1980]

I love this forum, the people are just amazing and you are so in the right place for support from friends, new and newer

I agree with all you are saying, though not type 1 I have had the 30+ sugars and I felt quite honestly, like poop. Day in, day out feeling grotty. It leads to depression when nothing you do helps, then it feels no one supports you and then loneliness kicks in and makes it all worse and seem like there's no point trying and you want to give up or do. That made me scoff sugar like someone was taking it away from me in an hour.... all day - making me sicker and so it went on...

Don't give up, I mean, easy for people outside the circle to say, but honestly, I do my insulin on the lowest point of my belly as I find its less sensation there as I constantly hit nerves and bruise but it beats feeling awful daily I promise. Find a spot that doesnt turn your stomach as much as the other bit or get someone to stab you in the bum or somewhere.

A diabetes buddy is such a good idea if you can get one But first step, you are here and well, I doubt anyone will be leaving you alone, we are always here - feel free to message if you just want to chat or need support xx

 

[OscarsMammy]

My little boy is 5 he was diagnosed at 2.. If he can do it so can you. Please take your insulin. Lives for living. Diabetes just comes along for the ride. Don't through your life away and break your parents heart.

 

[alicephoebe]

[QUOTE"indiaemily, post: 940979, member: 206576"]I'm sorry for being so ignorant but I'm in self destruct mode my ketones are 6.2 and I'm not taking an novo to bring it down, I've just hit rock bottom [/QUOTE]

Hey, we've all been there. Just as long as you know you're not alone. My levels are out of control like yours and trying to get them back is also making me miserable. I've suffered from depression since before I was diagnosed (at 13), I found when I feel particularly bad it's because of diabetes not being in control. It completely messes with your head and no one else seems to understand it. Taking insulin to get it to a safe level doesn't always help, sure it's better than being 20+ but then I'm still left feeling like sh*t so it doesn't seem worth it. I completely get what you're going through x

 

[Foxyshaz62]

So I have been diabetic for almost 10 years (I'm now 21). I have never accepted it and still really struggle to come to terms with it all. My blood sugars are almost always 30+ or reading "HI" on my machine, I always have ketones, horrendous kidney pain, and all the symptoms of hyperglycaemia. I've now being diagnosed with depression and I am using my diabetes to make myself really unwell and I feel completely alone in this because I don't know another diabetic so people really don't understand.

Hello. U sound just like. My 17 year old daughter.

Have u thought about professional counselling? The gp or hospital should be able to help but u have to insist on more than 6weeks as this is not a short term solution but long term plan. Be firm on this, if not raise it higher.

Sorry to preach but look at the young minds website for young people perhaps.

u are not alone and I can only go by what I see with my daughter. Does the hospital have a support group or could u set one up with help of the specialist nurse?

Or perhaps even take up a hobby that u like/want to do. Would that help?

U are definitely not alone..... There are many like u...

 

[coldcutuk]

Took me 20 years to get in a groove!
Now i'm there, i feel good.
Diabetes will, if you ignore it, bite you in the bum.