Hi new here my story

Dean2015

Member
Messages
14
Type of diabetes
Type 1
Treatment type
Insulin
Hi my name is Dean

I was diegnosed with diabetes august 2014 it was a absolute shock, i was going to a new docors surgery for a mot when all of a sudden my new partner was being told i was being rushed into hospital.
The doctor was amazing Dr Evens was his name and he has been a major part of my story and support.
I will go back to Febuary 2014 and the end of my 20 year relationship it lost everything house car money and i fell into a very dark place drinking and didnt see my children for 3 months.
I finally started to get myself together in march and started to see my kids. I was sad but relatively healthy i hadnt seen a doctor for nearly 10 years apart from a vasectomy 3 years before.
I got a flat and started back at work and was getting it sort of together finding my own identity after 20 yrs of what can only be described as manipulation and control.
I started o get a sore tummy and started to bleed from my bottom, i went to the doctors and was sent to have a camera put up there, i had polyps removed and was relieved that it wasnt anything more serious.
I then started to on line date and met the most amazing lady who would become my rock and my absolute everything.
I started to feel strange and one day took my 3 kids to the local for sunday lunch when it seemed id got really drunk, my eldest rang his mum who came to collect them, we had a huge row and i got quite agresive. Caroline came to my rescue and took me home , she thought in was drunk too but i recovered so quickly she couldnt quite understand it. Thats when i ended up in the doctors and was taken to hospital and told i had diabetes. ...

A masive life change at 40 , my bloods were really high. Over 30 how had this happened ? I was told i was type 2 and was given medication for it. I just couldnt control my bloods i tried so hard but my sugars stayed high. Eventally i was refered to the local diabetes team who said i was type 1 and a half ? And was started on an isulin called combi 25 which ment i only took 2 injections a day, how was i going to inject myself as i hated needles and for the rest if my life?

This started to settle my bloods and i had a good few weeks and life started to get better. Then for some reason my bloods went high again always in the 20s i was complaining of back pain tummy pain and joint pain i felt as if i was 70 years old. My doctor looked into my history and found a diagnosis of sarcoid in 1999? I couldn't remember this but i was also suffering from a lot of memory loss which was also affecting my job as a shift manager. Sarcoid is a skin condition that can affect your whole body and it usually goes away mine hadn't, i then ended up going on a wslk about , i went for a walk to the shopscand didnt return. Caroline called the police and i was found in a village 5 miles from home and i was on the floor looking like i was drunk. My phone was dead and i couldn't remember my name or where I lived or even Carolines name. I was taken to hospital and the only thing by then that i could remember was my name they contacted Caroline who came to the hospital but i couldnt recognise her. My bloods were 3 low but very low for a man whos bloods usually sit at 20!
I was sorted out in hospital but at this time i was very difficalt to live with always shouting getting angrynwith everyone and just didn't care about anything.
Caroline was a saint an angel.
I had my medication changed to humalin 2 times a day and novo rapid when i ate, i was sent to a dietitian, but was still stuggling with my memory. Caroline went to all my appointments and there were so many. It must have been like looking after a giant kid.
I was also diagnosed with fibromalagia which is a condition that causes your joints to hurt really bad and i was in a lot of pain, pain killers were my solice. I was in so much pain and couldnt cope i ended up having a break down and the local crisis team came out to me , thats when my life started to change, i got support and the antidepressants i was given were also great pain killers i couldnt sleep before with uncontrollable leg movements i started to sleep again and started to be more positive.
I was also suffering from carpol tunnel in both arms and the loss of feelings in my hands was very frustrating i couldn't even undo the milk. I loved to paint and had to stop.
I went to the specialist in the hospital about having an operation for the carpol tunnel and was told i had frozen shoulder in both and that the biggest problem i faced was my sarcoid, so im waiting for operations on my arms and shoulders now.

Ive had to understand that what ever is thrown at you you do not have an option but to face it one day at a time, you need support so ask for it. dont be afraid to ask for help or amitting your depressed, i have along way to go and i do not know where i will be in the future or how i will feel but we take each day at a time, we enjoy the simple things and we cuddle lots, cuddling really helps you feel human and csred for, tell the people you love, that you love them 50 times a day its ok. Relax listen to music, watch interesting things, i now keep fish, vrry relaxibg, i have 5 tanks.. i still have lots of tests im even going to a nutrologist in December as i have a lot of twitching and shakes, i have terrible nightmares ive even hit Caroline in my sleep, she just holds me and tells me she loves me.

I think i would be dead now if it wasn't for Caroline, and i feel blessed to have her in my life, if you have anyone caring for you just remember its really hard watching from the outside unable to do anything or take the pain away, sometimes they need a cuddle too, and to be told that you love them.

Thanks for reading my story

Dean
 
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Reactions: 4 people

LinsT

Well-Known Member
Messages
494
Type of diabetes
Type 2
Treatment type
Tablets (oral)
Hi Dean. Sounds like you've been having quite a time of it! Here's hoping things will start to settle down. Keep cuddling :):):)
 

Dean2015

Member
Messages
14
Type of diabetes
Type 1
Treatment type
Insulin
Thanks, its been a very tough road and i want people to know that theresca lot of help out there. You get nowhere if you hide your symptoms and pain levels.
 

Lamont D

Oracle
Messages
15,917
Type of diabetes
Reactive hypoglycemia
Treatment type
I do not have diabetes
Hi Dean, I know you said you didn't want sympathy but as someone who has been through the hell you are currently going through I really do empathise and glad you have your rock behind you helping and just being there, it really helps, doesn't it?

I have a blog, the link is below, it is my story of fifteen years to get diagnosed and my fight and battle, there are a few parts of your story that has happened to me, the carpel tunnel, the not knowing where you are,, the memory loss, the symptoms of hyper and hypo!
I don't believe that my trials and tribulations compare with yours as I was misdiagnosed and completely convinced that I was next!!

The dreams, you will bother you less once you have control of whatever you have, I don't think they know themselves and I have had some really vivid and entertaining colourful adventures while sleeping.
There was a point when I didn't know if I was dreaming or awake!

Keep posting, ask questions, learn about the diversity in blood glucose disorders and fight your battles, it really is worth it at the end
I'm convinced you will get there.
Best wishes.