- Messages
- 37
- Type of diabetes
- Type 2
- Treatment type
- Tablets (oral)
- Dislikes
- Peanut Butter!
Hi, this might be long, and will be complicated, I will try to give all the facts and not drip feed, I could do with some advice please!
I am diagnosed with:
asthma
IBS
allergies to :
fish
shellfish
most fruits
latex
perfumes/washing powder/shower gel/printer ink/hair dye/pollen/dust mites/etc.
statins
Ramipril and other blood pressure meds.
I have been Diagnosed with Type 2 Diabetes for three years now, first two years I had good control, but since being swapped from Metformin to Gliclaide (1x 80mg per day), I have lost control. I kept telling Diabetes nurse, GP's, nurse, etc. but no one was very interested! Finally got sent for a blood test, Hb1Ac was 61 last week, emergency appointment with Diabetes specialist GP is on Tuesday.
I have IBS, was put on Metformin, which gave me the usual tummy problems, switched to SR, no better, switched to Gliclazide, blood sugars spiralled out of control, stomach no better.
Next, it was found I had a Vitamin B12 deficiency, I was prescribed a course of injections, (last December) but I was allergic to them, so had to stop. This triggered an allergy to antibiotics.
I kept thinking my stomach would settle down, once off Metformin, but it hasn't.
I went to GP, told him I suspected another food allergy and he said sounds like Coeliacs, (which I Googled and have all the symptoms) I had the blood test which was negative for antibodies, so got referral to gastroenterology and allergy clinic.
I have awful cramping stomach pains, hot and cold sweats, nausea, sometimes vomiting, diarrhoea, going to toilet 3-4 times most days, up to 8 times on a bad day or if I don't take Immodium. I have awful wind, bloating, really fast bowel transit, tender stomach and terrible stomach pain.
I already do low carbs, less than 100 grams a day.
So, I decided to try cutting out gluten, and it has made a huge difference...my stomach pain has gone, no more diarrhoea, no bloating, no wind.....and I feel so much better, I've got more energy and no longer feel sick all the time.
But, the most dramatic change is my blood sugar - it has gone from average 16mmol to normal/low! I am still eating carbs, and same foods as before, rice cakes instead of toast, jacket potato instead of spaghetti, etc., just no grains.... (tried gluten free pasta today, it put my sugars up to 11.4, with a Gliclazide 80mg and two hours after eating. Before eating it was 4.3...won't bother again!)
Also, I've been struggling again with low blood sugars between meals...it seems to drop rapidly so I feel faint, shaky hands, and very 'odd'. Lowest has been 2.6. The doctor has never really listened to me when I have said this in the past.
So, I don't know what to do....I should be eating gluten up until I see the gastroenterologist, but can't face feeling so ill again - the diarrhoea, tiredness, high blood sugar giving me monthly thrush, spots around my nose and feeling generally rubbish. But I don't want low blood sugar either...
The doctor I will see on Tuesday is not very easy to talk to, only interested in diabetes, so difficult to talk about anything else like coeliacs/wheat allergy affecting sugars with him.
The other GP I see will not entertain the possibility of coeliacs because of lack of antibodies in blood test, and won't discuss diabetes as the other GP specialises in it.
And I'm going to get nagged because I haven't had my retinopathy screening this year....I had it last year and was blinded for 24 hours by the eye drops, no-one can tell me if this is 'okay' or an allergy/sensitivity to the drops...I'm too scared to have it done again, in case it damages my eye. (I do have regular optician check ups) and because I can't take statins for my 'high' cholesterol of 5.1!
Has anyone else had any experience of Coeliacs Disease and Type 2 Diabetes that could give me some pointers please?
Thanks for reading!
I am diagnosed with:
asthma
IBS
allergies to :
fish
shellfish
most fruits
latex
perfumes/washing powder/shower gel/printer ink/hair dye/pollen/dust mites/etc.
statins
Ramipril and other blood pressure meds.
I have been Diagnosed with Type 2 Diabetes for three years now, first two years I had good control, but since being swapped from Metformin to Gliclaide (1x 80mg per day), I have lost control. I kept telling Diabetes nurse, GP's, nurse, etc. but no one was very interested! Finally got sent for a blood test, Hb1Ac was 61 last week, emergency appointment with Diabetes specialist GP is on Tuesday.
I have IBS, was put on Metformin, which gave me the usual tummy problems, switched to SR, no better, switched to Gliclazide, blood sugars spiralled out of control, stomach no better.
Next, it was found I had a Vitamin B12 deficiency, I was prescribed a course of injections, (last December) but I was allergic to them, so had to stop. This triggered an allergy to antibiotics.
I kept thinking my stomach would settle down, once off Metformin, but it hasn't.
I went to GP, told him I suspected another food allergy and he said sounds like Coeliacs, (which I Googled and have all the symptoms) I had the blood test which was negative for antibodies, so got referral to gastroenterology and allergy clinic.
I have awful cramping stomach pains, hot and cold sweats, nausea, sometimes vomiting, diarrhoea, going to toilet 3-4 times most days, up to 8 times on a bad day or if I don't take Immodium. I have awful wind, bloating, really fast bowel transit, tender stomach and terrible stomach pain.
I already do low carbs, less than 100 grams a day.
So, I decided to try cutting out gluten, and it has made a huge difference...my stomach pain has gone, no more diarrhoea, no bloating, no wind.....and I feel so much better, I've got more energy and no longer feel sick all the time.
But, the most dramatic change is my blood sugar - it has gone from average 16mmol to normal/low! I am still eating carbs, and same foods as before, rice cakes instead of toast, jacket potato instead of spaghetti, etc., just no grains.... (tried gluten free pasta today, it put my sugars up to 11.4, with a Gliclazide 80mg and two hours after eating. Before eating it was 4.3...won't bother again!)
Also, I've been struggling again with low blood sugars between meals...it seems to drop rapidly so I feel faint, shaky hands, and very 'odd'. Lowest has been 2.6. The doctor has never really listened to me when I have said this in the past.
So, I don't know what to do....I should be eating gluten up until I see the gastroenterologist, but can't face feeling so ill again - the diarrhoea, tiredness, high blood sugar giving me monthly thrush, spots around my nose and feeling generally rubbish. But I don't want low blood sugar either...
The doctor I will see on Tuesday is not very easy to talk to, only interested in diabetes, so difficult to talk about anything else like coeliacs/wheat allergy affecting sugars with him.
The other GP I see will not entertain the possibility of coeliacs because of lack of antibodies in blood test, and won't discuss diabetes as the other GP specialises in it.
And I'm going to get nagged because I haven't had my retinopathy screening this year....I had it last year and was blinded for 24 hours by the eye drops, no-one can tell me if this is 'okay' or an allergy/sensitivity to the drops...I'm too scared to have it done again, in case it damages my eye. (I do have regular optician check ups) and because I can't take statins for my 'high' cholesterol of 5.1!
Has anyone else had any experience of Coeliacs Disease and Type 2 Diabetes that could give me some pointers please?
Thanks for reading!