- Messages
- 42
- Type of diabetes
- Type 1
- Treatment type
- Pump
- Dislikes
- religion, politics, DIABETES....
Hi don't want to bother everyone by going into my past history, so I will do my best to tell you the short version(not likely ha ha sorry).
I am type 1 brittle diebetic aged 48 with very bad control I have tried everything the doctors have suggested but nothing has worked, eventually it always ends the same with the doctors giving up trying and pass me onto other doctors this has gone on for nearly twenty years.
I live in France with my two teenage daughters who are my world, I also have two children who are grown up married and living back in England it's because of them I haven't given up and keep fighting, the constant battle of infections such as pneumonia which I have had five times and has left me with COPD due to going into respiratory arrest the list of problems is sadly very long.
I have no medical support here no check up clinic's or nurses to help with daily problems only my hospital check ups which are completely useless, my Last appointment was horrible my consultant a professor, told me he was very sorry to say that he can not understand my complex diabetes, and the possible pancreatic graft would not be happening (thankfully he is wrong about this as I have received a letter from the transplant team asking me to go into hospital for extensive testing so fingers crossed),
I got very upset with tears running down my face when he said what is wrong with you it's not my fault I did not inject you with diabetes! Then announced he was sending me back to the local hospital, where I have already been for a number of years who could not help and sent me to the larger hospital and to the professor who I had been seeing for four years or so.
I have a list of complications and I take lots of medicine, I also have a diabetic pump, I see a nurse for this once a year,
Sorry I have gone on so much it just feels so good to write down and tell people who understand.
My question is I have suffered this week two very very EXTREMELY PAINFUL episode's of head pain that came on suddenly, the first one happened six days ago I felt my usual self may be a little moody due to my normal body pain,
I was making a cup of tea when I suddenly felt sick and had to run to the loo, were I vomited, seconds after I was struck with the most horrendous pain in my head that made me scream thankfully it only lasted a few seconds may be twenty although at the time it felt longer it was like I had been shot in the head, ( I am not normally the type of person who would scream very weird for me) it was all over my head not just in any particular place the pain made me grab my head, it's very hard to describe just how bad it was, the pain stopped as suddlenly as it started although I was very shaken up and had to lay down were I fell asleep for about an hour. I felt very odd and confused and very aggressive afterwards, then the next day I was ok ish!
I did think at the time to go to hospital but have had so my bad experiences I didn't go.
Then last night after having a bad day with my normal health problems and also waking in the morning very angry for no reason, about 8pm I felt the sudden need to be sick, but although I was wretching nothing came up.
Then the explosive pain came but this time it felt stronger even than before which I would never of thought possible, it lasted longer than the first may be 45seconds which doesn't sound long but when the pain is so severe it really is,
I was screaming again shouting for help and thinking that I was about to die! I can not explain how terrifying it was, I know I should of phoned a ambulance but I was also lone and crawled into bed and fell asleep.
When I awoke I felt like I was a bit drunk and very worried about what had happened again but otherwise seemed quite normal, so felt worried about going to hospital and them thinking what a time waster, I know I am being stupid but the local hospital is not very good but there nowhere else.
I have made an appointment to go to the doctor tomorrow, I spoke to him before and was hoping deep down that he would send me to hospital,but he said to go an see him tomorrow.
Concerned that I will not be able to get a cross to him just how bad it was,the language barriers don't help although he speaks a little English and I speak a little French.
Has anyone ever experienced anything like this and what do think it could be, I have read about headaches called thundercap and it sounds the same but that means they could well be a bleed and it could be very serious.
I am hoping someone has a better possible cause as I am now terrified it will happen again and I don't want to think what could happen.
So so sorry for going on and on but it feels better after writing this experience down THANK YOU
This has turned into a long long book SORRY
I am type 1 brittle diebetic aged 48 with very bad control I have tried everything the doctors have suggested but nothing has worked, eventually it always ends the same with the doctors giving up trying and pass me onto other doctors this has gone on for nearly twenty years.
I live in France with my two teenage daughters who are my world, I also have two children who are grown up married and living back in England it's because of them I haven't given up and keep fighting, the constant battle of infections such as pneumonia which I have had five times and has left me with COPD due to going into respiratory arrest the list of problems is sadly very long.
I have no medical support here no check up clinic's or nurses to help with daily problems only my hospital check ups which are completely useless, my Last appointment was horrible my consultant a professor, told me he was very sorry to say that he can not understand my complex diabetes, and the possible pancreatic graft would not be happening (thankfully he is wrong about this as I have received a letter from the transplant team asking me to go into hospital for extensive testing so fingers crossed),
I got very upset with tears running down my face when he said what is wrong with you it's not my fault I did not inject you with diabetes! Then announced he was sending me back to the local hospital, where I have already been for a number of years who could not help and sent me to the larger hospital and to the professor who I had been seeing for four years or so.
I have a list of complications and I take lots of medicine, I also have a diabetic pump, I see a nurse for this once a year,
Sorry I have gone on so much it just feels so good to write down and tell people who understand.
My question is I have suffered this week two very very EXTREMELY PAINFUL episode's of head pain that came on suddenly, the first one happened six days ago I felt my usual self may be a little moody due to my normal body pain,
I was making a cup of tea when I suddenly felt sick and had to run to the loo, were I vomited, seconds after I was struck with the most horrendous pain in my head that made me scream thankfully it only lasted a few seconds may be twenty although at the time it felt longer it was like I had been shot in the head, ( I am not normally the type of person who would scream very weird for me) it was all over my head not just in any particular place the pain made me grab my head, it's very hard to describe just how bad it was, the pain stopped as suddlenly as it started although I was very shaken up and had to lay down were I fell asleep for about an hour. I felt very odd and confused and very aggressive afterwards, then the next day I was ok ish!
I did think at the time to go to hospital but have had so my bad experiences I didn't go.
Then last night after having a bad day with my normal health problems and also waking in the morning very angry for no reason, about 8pm I felt the sudden need to be sick, but although I was wretching nothing came up.
Then the explosive pain came but this time it felt stronger even than before which I would never of thought possible, it lasted longer than the first may be 45seconds which doesn't sound long but when the pain is so severe it really is,
I was screaming again shouting for help and thinking that I was about to die! I can not explain how terrifying it was, I know I should of phoned a ambulance but I was also lone and crawled into bed and fell asleep.
When I awoke I felt like I was a bit drunk and very worried about what had happened again but otherwise seemed quite normal, so felt worried about going to hospital and them thinking what a time waster, I know I am being stupid but the local hospital is not very good but there nowhere else.
I have made an appointment to go to the doctor tomorrow, I spoke to him before and was hoping deep down that he would send me to hospital,but he said to go an see him tomorrow.
Concerned that I will not be able to get a cross to him just how bad it was,the language barriers don't help although he speaks a little English and I speak a little French.
Has anyone ever experienced anything like this and what do think it could be, I have read about headaches called thundercap and it sounds the same but that means they could well be a bleed and it could be very serious.
I am hoping someone has a better possible cause as I am now terrified it will happen again and I don't want to think what could happen.
So so sorry for going on and on but it feels better after writing this experience down THANK YOU
This has turned into a long long book SORRY