Search Results

Thanks Ali for your message. Hopefully things will improve now someone has finally listened and we have a revised diagnosis. Feel very nervous about insulin.....it almost feels like jumping from the frying pan in to the fire.....although I know he needs it! Just feel nervous about hypos etc...

Hi Smidge, Many thanks for taking the time to reply. I am just so relieved that finally someone has listened to us! I think the consultant was somewhat shocked at the whole debarcle. It was reassuring to finally not have someone dismiss us without a second thought and treat us like we were...

Update: We have been waiting for the hospital appointment which seems to have taken forever to arrive. Following an appointment today with the hospital, fortunately the Dr we were supposed to see was called away and so we saw the consultant. Told him what a restricted low carb diet OH was...

Hi viviennem, Many thanks for that idea; that is what I shall be planning to do on my day off this week. I shall also chase up the lack of letter following the test results some weeks ago. Is it normal for NHS endo clinics to take 6 weeks or so to send a letter to a GP?

Hi Ali, Many thanks for the info. We have still had no copy of the letter to the GP following the GAD antibody test and the coeliac test. results

Hi Ali, He is fully aware of the implications of high blood sugars.......he will have a seemingly useful appointment with someone and think 'yes, this is it, I am finally getting somewhere' and then only to find when he gets a letter, he is no further forward. I think we need to write a letter...

Excellent news Ali, I hope you get what you want from the appointment. Being incredibly nosey......how much does the initial consultation cost? Just so I may be able to persuade my other half into going private.

Hi Ali, We can empathise with the 'does anybody get anything right?' It is sooooooo frustrating that no-one seems to give accurate information. Good luck with a new private referral; can the GP not suggest someone; rather than you having to 'find' another?

Hi mep73, yes unfortunately this is the NHS - seemingly just as worrying as the GP :-( depending on who you get to see! I have tried persuading other half to consider a private appointment. We don't have private medical insurance so would have to fund this ourselves - this is not something he...

Hi mep73, He is being seen by endocrinology - but hasn't been seen by a consultant. He was seen at the end of January and saw a registrar who assumed the B12 deficiency was due to metformin and suggested coming off it for 6 months and see what happened. This was obviously reviewed by someone...

Hi Ambersilva, Many thanks for your response and for taking the time to read 'our journey' to date. I am fully appreciative of how type 2 diagnosis is seemingly based on age at time of presentation of symptoms and know that this is often incorrectly assumed - you are another example of my...

Hi mep73, Sorry to hear you are experiencing difficulties with diagnosis for your stomach/oesophagus problems - at least your GP sounds as though they are sympathetic and may be persuaded to seek an opnion elsewhere?? Our latest **** up was instead of sending us a copy of the latest...

Hi All and thanks so much for taking the time to read and respond. Smidge......I am actually finding this rather alarming that so many people seem to be/have been in the same position as we are. When my husbands GP hadn't even heard about LADA and had to ask me what is was and then had to...

Hi daisy3174, thank you for taking the trouble to read and respond. I am starting to find it rather alarming that seemingly so many people are finding themselves in similar positions to ourselves; albeit not as lengthy. You certainly sound like you have gone through the mill :-( I think my...

Many thanks droberts for responding. I have had the hunch that he is LADA for nearly 4 years and have done loads of research which only goes towards confirming this is a likely diagnosis; its just a case of getting those who have the facilities to perform the test to take my thought processes...

Hi Sanober, Many thanks for taking the time to respond to our 5 year history! It is reassuring to hear that I am not seemingly making a fuss about nothing and we will push for c-peptide testing to confirm or refute type 1.5. We are waiting to receive a copy of the letter from the hospital just...

Hi Paul, Sounds like you have an endocrinologist who is on to the case :D fancy swapping? My husband has had the same problems trying to come to terms with the type 2 diagnosis; especially when he works soooo hard to control his blood sugars. We know other people who are stereotypical of type...

Hi Smidge, Thanks again for your reply - you're way of thinking is exactly like mine and I am convinced that he is LADA. It was only the specialist that mentioned type 1 but obviously we would have had a major crisis way before now. I suppose they use the term type 1 because most ley people...

Hi Jopar, Many thanks for your reply. My resoning behind thinking he is not type 2 is because things will work for a short period of time and then stop working, he is not atypical of type 2; he is thin, active, no family history etc etc. We are also fully aware of hidden carbs and portion...

Hi Ali, Thanks for taking the time to reply again. I have had a look at the health cover but it looks like we would have to wait 6 months before using it for a referral (only had a quick glance and will take a bit longer to look when I have more time) - having said that, they way we are going...